Autism Research – a reader is looking for help with her studies.


Autism Awareness

Autism Awareness

As regular readers of this blog and our Facebook page (https://www.facebook.com/AutismTalk) will know we often help people at universities and voluntary organisations with survey and research projects on autism and ASD.

Today we are assisting Amy Mann, currently training to be a teacher in lifelong learners and working with young people in the spectrum, to find out more about reducing anxieties caused by social interaction.

Mann has produced a few questions which she would be very keen on having our readers answer.  You can answer in the comments box below or you can email Ms Mann at  amymann_09@hotmail.com.

Her questions are :-

1.            What was/what is your teacher’s understand of the autistic spectrum (if any)

2.            Did your teachers understand your spectrum diagnosis/presentation, if they did what did they do that benefited you?

3.            What do you feel is the biggest obstacle for you socially/emotionally in an education setting what needs to be put in place to over come these barriers to learning?

4.            Do you think/did your teachers have enough understanding of your presentation/diagnosis/ASC and its effects on you and other classmates?

Many thanks in advance


Feeding your child with autism spectrum disorder (ASD)? Please help The Irish Centre for Autism and Neurodevelopmental Research (ICAN) with a survey

Irish Centre for Autism and Neurodevelopmental Research

Irish Centre for Autism and Neurodevelopmental Research

Have you experienced difficulties with food with your child?  Maybe feeding problems have not been an issue for your child?   The Irish Centre for Autism and Neurodevelopmental Research (ICAN) in National University of Ireland, Galway are interested in hearing about your experiences with feeding issues with a child or adolescent aged 3 to 17 years with autism.  We are interested in understanding how feeding problems affect a child’s gastrointestinal symptoms, sensory problems and behaviour problems. Even if your child doesn’t have these symptoms, we can still learn a lot from your information on why some children have these symptoms and others do not.

Please click below to learn more.

https://docs.google.com/forms/d/1_idSZPwZVjCQMD5hRl3fkvzzdzmX3T0AJaxoPbRnLWk/viewform

You may also be interested in a  previous blog post on this very subject https://patienttalk.org/autism-and-challenging-behaviour-part-four-eating-and-diet/


Does your child with autism spectrum disorder (ASD) have behaviour problems? Please help The Irish Centre for Autism and Neurodevelopmental Research (ICAN) with their important research.


Irish Centre for Autism and Neurodevelopmental Research

Irish Centre for Autism and Neurodevelopmental Research

We are posting this invitation on behalf of Irish Centre for Autism and Neurodevelopmental Research (ICAN).  You can have a look at their web site here http://www.nuigalway.ie/ican/index.html

 

Some children with autism have behaviour problems. Other children have Attention Deficit/Hyperactivity Disorder (AD/HD) or display some AD/HD symptoms, while some children do not have these symptoms. The Irish Centre for Autism and Neurodevelopmental Research (ICAN) are interested in investigating behaviour problems and AD/HD symptoms in children with autism. We are also interested in investigating whether there is a link between behaviour problems and gastrointestinal symptoms. We would like to hear from parents of children with autism who are aged 6 to 17 years. Even if your child doesn’t have these symptoms, we can still learn a lot from your information on why some children have behaviour problems and why others do not.

Please click below to learn more.

https://docs.google.com/forms/d/1oryAGsvFfdrM3ebhRuuSqVSCLKpipKsBAm7ISjmG93k/viewform

 


You might be interested in our previous blogs on autism and challenging behaviour here https://patienttalk.org/tag/autism-and-challenging-behaviour/

Parents of Children with Autism – Please help a student at the University of East London with some research on the emotional impact to parents with a child with autism


University of East London

University of East London

We have recently been contacted by Priya Summan at student at University of East London who is conducting some valuable research with parents of children with autism.  It would be great if you would consider taking part!

Summan shares “My name is Priya Summan and I am a 26 year old  final year student at the University of East London. For the past four years,  I have been studying my undergraduate degree of Early Childhood Studies with Special Educational Need and currently, I am in my final year doing my dissertation. I have a background in early years and special needs and have worked with a lot of children on the autistic spectrum. I became interested in special needs especially autism, is because I have always been intrigued with the way society behaves towards children with autism and how, this has an affect on the child itself and finally, I wanted to learn how children with autism learn and play amongst other children .

My dissertation is based on the emotional impact of parents with a child with autism. I want to know how parents learn to cope with their child’s diagnosis of autism and how, parents feel society behave towards their children. My dissertation is due for submission 6th of May 2014.

The methods I am using for this dissertation are questionnaires and interviews. If I am able to, then I would like to put up questionnaires where, parents would be able to fill them in and then at the end, provide their contact telephone numbers  then which, I could contact them in regards to a telephone interview to get more in-depth details of parental experiences of having a child with autism .  Please be rest assured, that all information provided for this dissertation, will remain confidential  between my self and the participants who fill out the questionnaires. Amongst the questionnaires, I will also put up consent letters, which parents will need to mark to make sure they understand the basis of the research in question. After the research is completed, you  are more than welcome to ask for a copy of my dissertation and I can provide this without hesitation. After the research is completed, all data collected will be shredded and no data will remain after this.  On  the questionnaire, at the end, it will say patient signature where I will only want parents to put ‘parent 1’ ‘parent 2’ etc so that confidentiality is remained at all times. If parents wish to contact me at any time, parents will be provided with my university email address 0612370@uel.ac.uk on which, parents will be able to contact me at any one time.”

If you have an questions for Ms Summan please either email her or use the comments box below.

UPDATE

The questionnaire and consent form are now ready.  Please can you download here Questionnaire for autism research and here Consent tick sheet for participants in autism research.

Please can you email to Ms Summan once completed at  0612370@uel.ac.uk

Many thanks in advance


Unlimited Potential – a film about autism with Dr Stephen Shore – a guest post from AttitudeLive


Dr Stephen Shore

Dr Stephen Shore

AttitudeLive of New Zealand have asked us to share this guest blog post with you about a new short film looking at ASD and the work of Dr Stephen Shore.  Dr Shore is himself autistic.The blog was written by  Dan Buckingham one of the produces at AttitudeLive.  Outside of work he represents New Zealand’s wheelchair rugby team, the Wheel Blacks.

He shares ”

As a toddler, Stephen Shore was struck with what he now describes as ‘the Autism bomb’, which, for most people at that time, would have meant a life sentence in an institution.

His path however was one that would defy the expectations of that time.

Through extensive support that would have seemed ground breaking for the mid 1960s, he became verbal by the age of 4, and continued to go from strength to strength.

Stephen is now a professor at Adelphi University where his research focuses on matching best practice to the needs of people with autism. He also teaches music to children with autism and has written many books about the condition.

In this short film he talks about some of the obstacles he’s overcome, the social situations he’s navigated, and provides some advice for parents of children with autism.”

You can watch the film here http://attitudelive.com/blog/dan-buckingham/film-unlimited-potential