Posted on Autism, Patient Talk

Parents of Children with Autism – Please help a student at the University of East London with some research on the emotional impact to parents with a child with autism


University of East London

University of East London

We have recently been contacted by Priya Summan at student at University of East London who is conducting some valuable research with parents of children with autism.  It would be great if you would consider taking part!

Summan shares “My name is Priya Summan and I am a 26 year old  final year student at the University of East London. For the past four years,  I have been studying my undergraduate degree of Early Childhood Studies with Special Educational Need and currently, I am in my final year doing my dissertation. I have a background in early years and special needs and have worked with a lot of children on the autistic spectrum. I became interested in special needs especially autism, is because I have always been intrigued with the way society behaves towards children with autism and how, this has an affect on the child itself and finally, I wanted to learn how children with autism learn and play amongst other children .

My dissertation is based on the emotional impact of parents with a child with autism. I want to know how parents learn to cope with their child’s diagnosis of autism and how, parents feel society behave towards their children. My dissertation is due for submission 6th of May 2014.

The methods I am using for this dissertation are questionnaires and interviews. If I am able to, then I would like to put up questionnaires where, parents would be able to fill them in and then at the end, provide their contact telephone numbers  then which, I could contact them in regards to a telephone interview to get more in-depth details of parental experiences of having a child with autism .  Please be rest assured, that all information provided for this dissertation, will remain confidential  between my self and the participants who fill out the questionnaires. Amongst the questionnaires, I will also put up consent letters, which parents will need to mark to make sure they understand the basis of the research in question. After the research is completed, you  are more than welcome to ask for a copy of my dissertation and I can provide this without hesitation. After the research is completed, all data collected will be shredded and no data will remain after this.  On  the questionnaire, at the end, it will say patient signature where I will only want parents to put ‘parent 1’ ‘parent 2’ etc so that confidentiality is remained at all times. If parents wish to contact me at any time, parents will be provided with my university email address 0612370@uel.ac.uk on which, parents will be able to contact me at any one time.”

If you have an questions for Ms Summan please either email her or use the comments box below.

UPDATE

The questionnaire and consent form are now ready.  Please can you download here Questionnaire for autism research and here Consent tick sheet for participants in autism research.

Please can you email to Ms Summan once completed at  0612370@uel.ac.uk

Many thanks in advance


34 thoughts on “Parents of Children with Autism – Please help a student at the University of East London with some research on the emotional impact to parents with a child with autism”

  2. I have helped my daughter raise our 9 year old boy diagnosed with severe Autism. After 5 years of working with him  to cope with his condition, he is now diagnosed with mild Autism. Would be happy to share our experience with Autism

  3. Thank you for your support. If you could let other people know about this I would very much appreciate this. Thank you.

    • Hi Sunman I completed but the email address you provided was undeliverable as I explained below

    • Hi Joanna, if you could try again please. The email is 0612370@uel.ac.uk. If that doesn’t work again, please email the consent letter and questionnaire to summan87@hotmail.com. but if you could try the first email first, that would be great.thank you.or try u0612370@uel.ac.uk.please let me know what email address you have sent the consent letter and questionnaire to.thank you again, and thanks for participating.

  6. Ive just completed the questionnaire & consent form and sent it to the email address 0612370@uel.ac.uk but it has come back as undeliverable.

  8. Would love to help!! Not enough awareness around Autism in this country. I have an almost 7 year old non verbal autistic son. And. Would appreciate people like you making a difference!!!

    • Hi. I know I’m being forward. But would like to know what its like having a child with aspergers? What are the challenges u face? Does he talk? Is he at school? I would really like to hear from u. Please email me jannetleeyanca@gmail.com. My son has low functioning autism.

    • The questionnaires and consent letter to complete are up. Please fill them in if you wish to participate. Thank you.

  12. The questionnaires will be up tomorow as I am unable to upload them from my computer due to using a different programme at home and uni. So please bear with me, whilst I upload the questionnaires and consent letters. Thank you for the enthusiasm you are showing very appreciative of your efforts x

    • Thank you. The questionnaires will be uploaded tomorow so if u could fill those for me, I will appreciate this. Thank you

    • Thank you. The questionnaires will be uploaded tomorow so if you could do those for me I would be very greatful. Thank you.

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