Self-help for fibromyalgia – some really great tips

Fibromyalgia -where doesn't it hurt

Fibromyalgia -where doesn’t it hurt

Self-help for fibromyalgia

If you have fibromyalgia, there are several ways to change your lifestyle to help relieve your symptoms and make your condition easier to live with.

Your GP, or another healthcare professional treating you, can offer advice and support about making these changes part of your everyday life.

There are organisations to support people with fibromyalgia that may also be able to offer advice. Visit UK Fibromyalgia’s support group section for a list of support groups across the country. You may also find it helpful to talk to other people with fibromyalgia on this online community.

Below are some tips that may help relieve symptoms of fibromyalgia. You can also read more information about living with pain.

Exercise

As fatigue (extreme tiredness) and pain are two of the main symptoms of fibromyalgia, you may find that you’re not able to exercise as much as you’d like. However, an exercise programme specially suited to your condition can help you manage your symptoms and improve your overall health.

Your GP or physiotherapist (healthcare professional trained in using physical techniques to promote healing) can design you a personal exercise programme, which is likely to involve a mixture of aerobic and strengthening exercises.

Aerobic exercise

Aerobic activities are any kind of rhythmic, moderate-intensity exercises that increase your heart rate and make you breathe harder. Examples include:

walking

cycling

swimming

Research suggests that aerobic fitness exercises should be included in your personalised exercise plan, even if you can’t complete these at a high level of intensity. For example, if you find jogging too difficult, you could try brisk walking instead.

A review of a number of studies found that aerobic exercises may improve quality of life and relieve pain. As aerobic exercises increase your endurance (how long you can keep going), these may also help you function better on a day-to-day basis.

Resistance and strengthening exercises

Resistance and strengthening exercises are those that focus on strength training, such as lifting weights. These exercises need to be planned as part of a personalised exercise programme; if they aren’t, muscle stiffness and soreness could be made worse.

A review of a number of studies concluded that strengthening exercises may improve:

muscle strength

physical disability

depression

quality of life

People with fibromyalgia who completed the strengthening exercises in these studies said they felt less tired, could function better and experienced a boost in mood.

Improving the strength of your major muscle groups can make it easier to do aerobic exercises.

Read more information and advice on health and fitness.

Pacing yourself

If you have fibromyalgia, it’s important to pace yourself. This means balancing periods of activity with periods of rest, and not overdoing it or pushing yourself beyond your limits.

If you don’t pace yourself, it could slow down your progress in the long term. Over time, you can gradually increase your periods of activity, while making sure they’re balanced with periods of rest.

If you have fibromyalgia, you will probably have some days when your symptoms are better than others. Try to maintain a steady level of activity without overdoing it, but listen to your body and rest whenever you need to.

Avoid any exercise or activity that pushes you too hard, because this can make your symptoms worse. If you pace your activities at a level that’s right for you, rather than trying to do as much as possible in a short space of time, you should make steady progress.

For example, it may help to start with gentler forms of exercise – such as tai chiyoga and pilates – before attempting more strenuous aerobic or strengthening exercises.

Relaxation

If you have fibromyalgia, it’s important to regularly take time to relax or practice relaxation techniques. Stress can make your symptoms worse or cause them to flare up more often. It could also increase your chances of developing depression.

There are many relaxation aids available, including books, tapes and courses, although deep-breathing techniques or meditation may be just as effective. Try to find time each day to do something that relaxes you. Taking time to relax before bed may also help you sleep better at night.

Talking therapies, such as counselling, can also be helpful in combating stress and learning to deal with it effectively. Your GP may recommend you try this as part of your treatment.

Read more about stress management.

Better sleeping habits

Fibromyalgia can make it difficult to fall asleep or stay asleep (known as insomnia). If you have problems sleeping, it may help to:

get up at the same time every morning

try to relax before going to bed

try to create a bedtime routine, such as taking a bath and drinking a warm, milky drink every night

avoid caffeine, nicotine and alcohol before going to bed

avoid eating a heavy meal late at night

make sure your bedroom is a comfortable temperature, and is quiet and dark

avoid checking the time throughout the night

Sleep Apnea – might you have sleep apnea? What are your treatment options?

Sleep Apnea is a common but seemingly ignored condition in the western world.  Lagging it seemsstar wars not far behind Diabetes Type 2 as a medical condition and often with a similar profile of sufferers.  In fact between 3-7% of middle aged men and around 2.5% of women of that age have sleep apnea.

So what actually is sleep apnea?

Simply put it is abnormal breathing during sleep.  With obstructive sleep apnea (the most common kind) there is physical obstacle impeding breathing during sleep.  In many cases this is due to obesity.  The net result is, of course, a bad night’s sleep and the person with sleep apnea is unable to get the rest she or he needs.

The symptoms can include

a)      Snoring.

b)      Fatigue due to poor sleep.  For more information on fatigue please have a look at our previous blog https://patienttalk.org/?p=239.

c)       Poor concentration during the day due to tiredness and possible cognitive dysfunction.

d)      Altered emotional states are common, in particular, moodiness.

e)      From long term sleep apnea depression seems to be a likely outcome.

If any of these apply to you it is important that you discuss these symptoms with a healthcare professional.

A problem is that the person with undiagnosed sleep apnea does not realise that they have sleep apnea because they are asleep when the apneas take place.

But the good news is that there are treatments.  These include:-

  • Medications which encourage improved respiration such as acetazolamide.
  • For people with mild to moderate sleep apnea dentists can produce a mouthpiece which opens the bite slightly thus increasing the airflow.  This is called a mandibular advancement splint.
  • For more severe sleep apnea a continuous positive airway pressure (CPAP) device is used.  This pumps air into the patient’s nose and mouth increasing air to the lungs and promoting easier sleep.
  • In some rare cases surgery is used when other strategies to cure sleep apnea have failed.

As part of this blog we would be very interested to hear your views and experiences of sleep apnea.  In particular it would be great if you could consider the following questions:-

1)      Have you ever been diagnosed with sleep apnea?

2)      What were the symptoms of your sleep apnea?

3)      What tests were you given to make the diagnosis?

4)      What treatments for sleep apnea were you given?  How successful were these treatments?

If you could use the comments box below to contribute any of your thoughts that would be great.

You might be interested to know that in the UK the condition is spelt sleep apnoea?  Divided by language as always.