Multiple sclerosis! What is your worst symptom of MS?

Multiple Sclerosis

Multiple Sclerosis

As readers of this blog will know one of the topics we are interested in is that of multiple sclerosis?

We are particularly interested in the experiences of our readers with MS.  So today we are running a short poll looking which hopes to find out what for you is the worst symptom of multiple sclerosis.  It would be great if you could take part in the poll below to share your opinion.

Feel free to use the comments box to explain in more detail about your problems with that symptom of multiple sclerosis.

Many thanks in advance


Optic Neuritis – what treatments have you received for optic neuritis? Take our poll

Optic Neuritis

Optic Neuritis

For many of us optic neuritis is one of the first symptoms that present for multiple sclerosis.  You may be interested in a previous blog we ran where many of our readers told their optic neuritis story.  You can read them here https://patienttalk.org/?p=312.

That being said their are a number of other conditions which can also lead to optic neuritis.  These include syphilis, Lyme disease, herpes zoster, lupus, neurosarcoidosis, inflammatory bowel disease, vasculitis, and diabetes.

Today we would like to explore in more detail the treatments people have received for optic neuritis.

It would be great if you could take our poll below to share your experiences.

Feel free to use the comments box below to add anything you think may be of interest to our readers.

Thanks in advance



Multiple Sclerosis Hug! Have you ever suffered an MS Hug?

One of the big topics surrounding the symptoms of multiple sclerosis is the MS Hug.

Multiple Sclerosis

Multiple Sclerosis

But not all people with Multiple Sclerosis experience an MS  Hug?

Today we are asking our readers to tell us about the MS  Hig via our poll below.

It would also be great if you could use the comments box below to share a bit more about what it is like to have had an MS Hug.

Thanks very much in advance


Cure Multiple Sclerosis For Christmas: The PatientTalk.Org Advent Calendar Day One


Today is the first in our Advent series of health awareness images.

A sort of online Advent Calendar for health.   It would be great if you could like and maybe share the image on our status for just a few minutes.

Cure Multiple Sclerosis Advent 1

Cure Multiple Sclerosis Advent 1

For the first in the series we felt we would like to highlight the need for a cure for multiple sclerosis (ms) .

If you have any ideas for other areas we should be covering in our advent series please use the comments boxes to share.

Thanks in advance


Multiple Sclerosis and Diet Part Two – MS and the Gluten Free Diet.

MS and Gluten free

MS and Gluten free

As regular readers may recall we ran a blog recently on the subject of multiple sclerosis and diet.  For the first post we looked at MS and the Paleo or caveman diet.  You can read up about it here https://patienttalk.org/?p=1383.  As you can see it created a lot of interest.  A number of commenters both on our blog and on the Facebook MS page (https://www.facebook.com/MultipleSclerosisTalk) said they had found benefit from a gluten free diet.

So we thought we would look more closely at the gluten free diet and how it might be of value to people with multiple sclerosis.

Now gluten free diets are used to treat a number of medical conditions.  Obviously gluten intolerance and the similar, but unrelated condition, Celiac, come to mind.  You can find out more about Celiac in a past blog here https://patienttalk.org/?p=349.

So what is a gluten free diet?  Well, as the name suggests it is intolerance to gluten, a protein found in wheat and other grains such as spelt and rye.

This means that people who require a gluten free diet need to avoid products from those cereals.  So typical cereal-based items which need to be avoided can include bread, pasta and beer.  That being said, gluten free alternatives are available and they include other grains and starch sources which include chick pea flour, arrowroot, millet, quinoa, taro, teff, chia seed, almond meal flour, coconut flour, pea flour, corn-starch and yam.  These are normally available in your local health-food store.

Now many people with MS do find improvements with the diet.  This may be in part due to “non-celiac gluten sensitivity”.  It is thought that such sensitivity in a person with multiple sclerosis may increase the severity of their neurological symptoms.

One of the objectives of this blog post is to allow our readers to share their experiences with the gluten free diet as a treatment for multiple sclerosis.  It would be great if you could tell your story in the comments box below.   You may wish to think about the following questions when framing your answer.

a)   Have you ever used the gluten free diet to treat your MS?  And for how long?

b)  How effective was it?

c)    Tell us a bit about the realities of the diet.  Was it more expensive and time-consuming?

d)  Please share an average day’s menu with us.

e)   Would you recommend this diet?

f)     Any advice for a person with MS about to embark on a gluten free diet.

Feel free to use the comments box below to share your story and include any links you think may be of use.

Thanks very much in advance.