Heart Valve Disease – Professor Ben Bridgewater tells us about signs, symptoms and treatments of heart valve disease. And why more needs to be done for the million plus people who receive inadequate treatment.


Professor Ben Bridgewate

Professor Ben Bridgewate

  • What is Heart valve disease?
  • What are the symptoms of Heart valve disease? Are their early signs for us to look out for?
  • What treatments are available?
  • Why do some of us not get the treatment we need?

PatientTalk.Org were luck enough to catch up with Professor Ben Bridgewater for an overview of the subject. Professor Bridgewater is the Heart Valve Voice Chair and Consultant Cardiac Surgeon at University Hospital of South Manchester and one of the planets leading experts on the topic of Heart valve disease.

PATIENTTALK.ORG -Professor Bridgewater,  what is Heart valve disease?

PROFESSOR BRIDGEWATER – So heart valve disease is a disorder in the valves of the heart, there’s four valves in the heart and they ensure that the blood flows one way and one way only around the body, a lot of people think that heart disease is about heart muscles and having heart attacks but also valves are really important to make sure that it functions well and those valves can become narrowed which means the heart has to work hard to pump blood through the narrowing or they can become leaky which means every time the heart pumps it pumps the blood round the wrong way of the body or it falls back into the heart and has to do it all over again, so either way it means that the heart struggles.

PATIENTTALK.ORG -What causes Heart valve disease?

PROFESSOR BRIDGEWATER – Well there’s different causes, the most common cause is just wear and tear, if people are around for a long time their heart valves are opening sixty to eighty times a minute all through their life the heart valves start to deteriorate so its unusual for people under the age of fifty its becomes more common and its really quite common for people when they get over their eighty’s but after the age of sixty it really starts to ramp up and become more common.


PATIENTTALK.ORG -So what is the main treatment for heart valve disease?

PROFESSOR BRIDGEWATER – Well the symptoms of heart valve disease is usually shortness of breath, chest tightness and feeling tired and often people put their symptoms down to the ageing process rather than heart valve disease parse but actually if there is a significant narrowing or a significant leaking of the valve there’s nothing that can be done with medications the only real treatments are valve procedures so those would usually be replacements of the aortic valve or repair or replacement of the mitral valve and both of those treatments are very effective.

PATIENTTALK.ORG -So the next question on this one was can you describe Heart Valve surgery, I don’t suppose you could answer that briefly?

PROFESSOR BRIDGEWATER – Heart valve surgery is typically open heart surgery where you use a bypass machine to isolate the heart from the rest of the body, the machine takes over the work from the heart and the lungs for a short period of time, you then isolate the heart and then have a look at valves and you remove them and replace them with a mechanical valve or a valve which is made of pig and cow tissues or occasionally with a Mitral valve you can repair it by keeping the body’s own tissues but putting a few stitches in to stop the valves leaking, That’s the classical treatments and those are very effective, there are new treatments which are coming in now which are either similar to the old treatments but through smaller incisions but now there are new treatments which are coming though catheter based approaches where rather than having open heart surgery at all you just have a catheter put in through the groin and those treatments can be very effective in some situations.

PATIENTTALK.ORG -Tell us what the prognosis is after the diagnoses?

PROFESSOR BRIDGEWATER – The prognosis after diagnoses is very good if the diseases is picked up early enough and treated appropriately but if its missed and people are referred to late into the disease  process the prognosis is not so good at all and unfortunately if its missed the heart can deteriorate such that these treatments aren’t appropriate, but if its picked up the early the procedures will return people back to an age matched healthy population the lifestyle will be the same an aged much healthy population and their life expectancy will be very good.

PATIENTTALK.ORG -Heart valve always is calling for a better diagnosis, why do you think it’s so poor at the moment?

PROFESSOR BRIDGEWATER – Heart Valve Voice is calling for better awareness about Heart valve disease, we know that in the UK about half of the number of procedures for aortic surgery’s as there are in France and France has a similar size population so we know it’s being under diagnosed and untreated in this country. We also know that there are big regional variations so there’s a postcode lottery of care, so we know those things and so we are calling for greater awareness, were calling for better diagnosis and earlier treatment for patients who are unlucky enough to suffer from heart valve disease.

PATIENTTALK.ORG -Do the rates of diagnosis differ for people with private health care?

PROFESSOR BRIDGEWATER – We have no information that the rates of diagnosis and treatments differ for people with private health care and it’s not something we would look to specifically but we have no evidence on that case at the moment.

PATIENTTALK.ORG -What other things can be done to improve the rates of diagnosis and treatments?

PROFESSOR BRIDGEWATER – For patients to get effective treatment they need to have the diagnosis made early and they need to be referred to people that have expertise in treating the disease, so that starts off with patients being aware particularly as they get older, if they are not feeling as well as they were, they need to see their GP and their GP should have a low index of suspicion for diagnosing heart valve disease, you can usually pick up a murmur by listening with a stethoscope , which I think is very important that the GPS do that. If they pick up a murmur they should be referring on for more detailed investigations which will often be an echo study, which is done in a quick study with a little bit of gel on the chest and a machine has a look at how they valves are working and that will give you a clear diagnosis, if that shows significant valve disease people need to be referred onto a specialist to see what treatment is best for them.

PATIENTTALK.ORG -What else Heart Valve Voice is calling for? You’ve released this white paper and there’s some other things in there that you would like to see happen?

PROFESSOR BRIDGEWATER – Heart Valve Voice is a group of patients, primary care doctors, secondary care doctors and surgeons and cardiologists like myself who treat the disease have come together and we launched the white paper yesterday at the houses of parliament. We think that it’s important that heart valve disease has a greater level of awareness right throughout the community, in patients and across health care professionals so that the diagnoses are made earlier and people are referred across. We think it’s very important that the elderly get more time with the GP’s so we are calling for longer consultations, 15 minute consultations for people over the age of seventy five, it can be quite often be difficult to unpick different symptoms in people as they become more elderly if they have multiple problems we are also asking for longer consultations for those types of patients, were asking for appropriate referrals pathways right through the disease so that people get the treatments effective and that decision should be made by multidisciplinary groups of  expertise in all of the various different treatment options and were asking for the same level of surgical treatments in the UK as we see in our European neighbours and if we can achieve those things we will do very well for the patients .

Heart Valve Voice – a new group is launched to tackle potentially fatal heart condition called Heart Valve Disease that puts one million ageing lives at risk


Heart Valve Voice

Heart Valve Voice

Leading physicians and patients have joined together to launch the first ever group – Heart Valve Voice – to tackle heart valve disease after new survey results highlighted a worrying lack of concern amongst the over 60s in the UK: the demographic most likely to suffer from the condition.

Results of the survey commissioned by Heart Valve Voice reveal that less than 3% of the UK’s over 60s are concerned by heart valve diseaseii even though it affects approximately one million people over 65 years of age in the UK.i Additionally, more than half of people aged over 60 claimed that their doctor rarely or never checks their heart with a stethoscope,ii despite this being one of the simplest ways to detect heart valve disease.[iii]

Heart Valve Voice, a new multidisciplinary group launched today, brings together patients and doctors in the field of heart valve disease. It aims to raise awareness of the severity of the disease, encourage its timely detection and ensure more patients receive the right treatment at the right time; ultimately leading to a future with greater quality and longevity of life.


The lack of awareness of heart valve disease amongst both patients and healthcare professionals is of increasing concern due to the poor prognosis if left untreated. Aortic stenosis, which affects 2-7% over 65s, can lead to death within two years if left untreated in severe symptomatic cases.[iv]

Additionally, epidemiological studies have identified a striking relationship between heart valve disease and advancing age, with estimates suggesting that by the age of 75, the prevalence of heart valve disease is over 13%.[v] With the UK over-65 population set to nearly double by 2050,[vi] this adds to the cause for concern.

Heart valve disease is severely debilitating and a potentially fatal conditioniii yet, many people put symptoms such as breathlessness, fatigue, and chest pain,[vii] down to the natural ageing process. However, if diagnosed in good time, heart valve disease can be effectively treated through surgical or less-invasive procedures, improving the quality and longevity of life.

Heart Valve Voice believes every patient with heart valve disease, or those over 65 years of age at risk of heart valve disease, should receive a timely diagnosis, effective care and optimal treatment at the earliest opportunity.  The group is calling for every patient to have a right to expect:

  • Provision of understandable and accurate information about heart valve disease from their healthcare professional
  • Automatic screening and routine stethoscope use to aid diagnosis whenever possible symptoms of heart valve disease or other comorbidities present
  • Appropriate referral and follow-up between primary, secondary and tertiary care
  • Access to treatment accompanied by a clear and personalized care plan
  • Frequent updates, by a preferred method of communication, throughout the treatment pathway

 


[iii] Heart valve disease. Bupa. http://www.bupa.co.uk/individuals/health-information /directory/h/heart-valve-disease. Accessed: 24 March 2014.

[iv] Spaccarotella C et al. Pathophysiology of aortic stenosis and approach to treatment with percutaneous valve implantation. Circulation Journal. 2011;75:11-19.

[v] Nkomo V et al. Burden of valvular heart disease: a population-based study. Lancet. 2006; 368:1005-11.

[vi] Key issues for the New Parliament 2010. The ageing population. Available at: http://www.parliament.uk/documents/commons/lib/research/key_issues/Key%20Issues%20The%20ageing%20population2007.pdf. Accessed 24 April 2014.

[vii] Lindroos M, Kupari M, Heikkala J, Tilvis R. Prevalence of aortic valve abnormalities in the elderly: an echocardiographic study of a random population sample. J Am Coll Cardiol 1993;21:1220-5.

About Heart Valve Voice

Heart Valve Voice is a multi-disciplinary group of experts in the field of heart valve disease including patients and representatives from cardiac societies, cardio-thoracic surgery, interventional cardiology, primary care and cardiac patient groups.

 

Formed in 2013, the group exists to help support people with heart valve disease and to drive change in the diagnosis, treatment and management of the condition in the UK to ultimately provide patients with longevity and quality of life.  Further information on the group and heart valve disease can be found at www.heartvalvevoice.co.uk.

About heart valve disease

Heart valve disease is a condition caused by either wear or disease of the heart valve(s), affecting the flow of blood through the heart.[viii] When diseased or defective, heart valves may not open or close properly and can interfere with the flow of blood. The most common valve problems involve the mitral and aortic valves, which are located on the left side of the heart.vii

 

Aortic valve stenosis is most often due to age-related degeneration or hardening (calcification) of the aortic valve, leading to progressive narrowing (stenosis) or leakage – changes which compromise valve function and impair normal blood flow through the heart.vii

 

Heart valve disease and disorders are almost always detected during a medical visit. A heart “murmur” or “click-murmur” heard through a physician’s stethoscope is usually the first indication of a valve disorder.

 

Current clinical guidelines on the management of aortic stenosis make a clear distinction between symptomatic and asymptomatic conditions – however what they identify is the need to treat severe aortic stenosis. Without treatment, patients with severe disease face reduced longevity, and impairments in physical and social functioning and emotional well-being that contribute to poor quality of life.[ix],[x],[xi],[xii]

 

Many heart valve disease patients present in hospital with advanced heart failure[xiii],[xiv] and are ultimately denied optimal outcomes due to late access to surgery. Disease intervention data shows that nearly half (46%) of all isolated aortic valve replacement surgery patients and 42% of isolated mitral valve repair patients display advanced symptoms of heart failure at the time of surgery.

Recent research

In 2013 a European heart health survey was conducted among 9,579 people over the age of 60.  It was completed online across 10 European countries.  In the UK over 1005 over 65s participated in the survey to assess the awareness and understanding of heart valve disease, the level of concern of heart valve health and, the frequency of heart health check-ups and stethoscope testing.ii

 

WEBLINKS                 

For more information on heart valve disease and Heart Valve Voice, please visit the Heart Valve Voice website at: www.heartvalvevoice.co.uk

Follow us on Twitter @HeartValveVoice #HeartValveDisease #HeartValveVoice

BACKGROUND AND REGIONAL INFORMATION 

The research for European Heart Valve Health was carried out online by Opinion Matters between 24/10/2013 and 13/12/2013 amongst a panel resulting in 9,579 respondents over the age of 60

Feeling older than your age? Think HEART Valve Disease:

 

Having chest pain – Are you suffering from chest pain, dizziness, or experiencing palpitations?

Exercise difficulties – Are you finding it difficult to exercise and move around as easily?

Age – Are you feeling older than your age?

Respiratory difficulties – Are you feeling short of breath?

Tiredness – Are you suffering from tiredness and fatigue?