Diet and Fibro- Has a change in diet helped your fibromyalgia?

A change in diet has often recommended for conditions such as rheumatoid arthritis and multiple sclerosis. Looking at our page FibromyalgiaTalk it is also used by many people who have fibromyalgia.

"I don't look sick" - Life with Fibromyalgia - Please like and share Donnee Spencer's great infographic which explains to others what it is like to have Fibromyalgia

“I don’t look sick” – Life with Fibromyalgia – Please like and share Donnee Spencer’s great infographic which explains to others what it is like to have Fibromyalgia

So we thought we would use this opportunity to find out how useful a change in diet has been to our readers with fibro.

Firstly it would be great if you could take our poll below which asks “Has a change in diet helped your fibromyalgia?”

Once you have taken part in the poll we would love it if you might add your thoughts in the comment boxes below. It would be great if you could think about the following questions!

a) How long have you or a loved one been diagnosed with fibro? What are your main symptoms of fibromyalgia?
b) Have you tried diet as a treatment for fibromyalgia? If so which one?
c) How successful was the diet? What do you feel it achieve?
d) Would you recommend it to others?
e) Have you tried other natural treatments for fibromyalgia? If so which ones and how effective were they for you?

Many thanks in advance for your help.

 

Multiplicity I followed a strict no flour, no sugar diet and lost 70 pounds in under a year. Then I was diagnosed with Fibromyalgia (with MS) and was started on Gabapentin. I have gained almost all the weight back now after only a few months. I am now off the gabapentin and started taking MagSense. I feel good and have dropped a couple of pounds already in only about 1 week.
SaraBarnes I have found cutting out caffeine has helped immensely with pain. It has not taken all the pain away, however I have found I can manage so much better on so much less painkillers having taken out the caffeinexxx
GretaLarssonSerra I’ve had to go all in with; no dairy, no gluten (in fact no grains at all), no processed food and no sugar(except natural fruits/berries and small amounts of honey.
It works a bit with the pain, loads on the cognitive side and gives higher energy and better moods.
opotikimaori @Beeyaach have you tried Kyäni?
Beeyaach I will try to remember.. lol
patienttalk
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Beeyaach Wow that does seem very expensive.  Canadian $?
patienttalk
patienttalk.org
Beeyaach Will you be able to share the Dr’s suggestions after the appointment?
Beeyaach I stopped the diet shortly after I was diagnosed due to cost and the fact that I had already started to put weight on (at an alarming rate!) due to the medication I had started taking WHILE on the diet. At $250-270 per WEEK, it just didn’t make sense. After gaining 30lbs+ I decided to try going back on it, but I couldn’t lose weight, exercise or truthfully stick to the program financially as I’d had to decrease hours at work.
Beeyaach I also forgot to mention that I have tried pretty much EVERY holistic approach out there. Chiropractor, massage therapy, acupuncture, traction, osteopathy, vitamin D supplements, probiotics, to name a few. I had a naturopathic doctor suggest going gluten free, as she figures it’s a gluten “sensitivity”. As being gluten free is so en vogue right now, I just felt like it was yet another dead end and have up there. I am seeing a doctor this week from the Environmental Health Clinic @ Women’s College Hospital in Toronto to discuss other options.
patienttalk
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Beeyaach Why did you decide to stop using it?
Beeyaach It is a diet plan based on prepackaged food. Calorie restrictive based mainly, also substitutions such as soy instead of meat protein, low sodium, sugar substitutions. You eat strictly their menu with the addition of your own fruits/veggies and fat free milk. I was on a 1200 calorie intake. They also have a “bar” that is supposed to contain all your necessary vitamins/minerals that I ate once daily.
patienttalk
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Beeyaach What is the Jenny Craig diet please?
Beeyaach Nothing changes with diet. Pain is the same. Low sodium, low carb, no meat, no dairy, doesn’t seem to matter. No difference in lower or higher weight. (I’ve gained 70lbs since starting on meds and not being able to exercise) I’ve been diagnosed about 3 years now. I was on Jenny Craig for about 2 years before all of this started with my body and I’ve often wondered if something in the prepackaged food contributed to it.

Did you know that up to 40% of medial diagnoses are wrong? Find out the most common mistakes here.

Nobody wants it to happen. But wrong diagnosis is much more common than we are lead to believe.

According to this infographic up to 40 of medical diagnosis are wrong. It looks at various conditions such as Parkinson’s disease, fibromyalgia, chronic fatigue syndrome, Lupus, celiac disease, multiple sclerosis, hydrocephalus, aortic dissection and hypothyroidism. It also has a very useful brief guide to the early symptoms of each condition.

Have you ever been misdiagnosed? What ever response you might be interest in taking our poll on the misdiagnosis of a medical condition here.

Thanks very much.

The Most Commonly Misdiagnosed Illnesses

From Visually.

Have your symptoms of fibromyalgia got worse over the last 12 months? Please take our poll

Fibromyalgia Awareness

Fibromyalgia Awareness

Have your symptoms of fibromyalgia got worse over the last 12 months?

Over the last few years we have conducted various polls among the fibromyalgia community.

However we have not fully explored the fibromyalgia journey. So we thought we would start off with a simple poll which asks the question “Have your symptoms of fibromyalgia got worse over the last 12 months?”

The poll is below but it would be great if you could also use the comments box below to tell us in a bit more detail how your symptoms of fibro have got worse in the last year.

Many thanks in advance for your help!

Invisible Disabilities – the Facts and Figures

One of the objectives of this blog is to help raise awareness of various different medical conditions. Especially those which are less well and often invisible to most people. So when Izzy asked me if I would like to share this infographic I was delighted to do so.  It gives a useful overview of some of the main conditions including Chronic Fatigue Syndrome, Lupus, Complex Regional Pain Syndrome, Fibromyalgia, Multiple Sclerosis, IBD, and Lyme disease!

You can read the original here.


Invisible Disabilities