Fibromyalgia – The Invisible Disease – What are the signs , symptoms and treatments for #fibro?
We thought this was a brilliant infographic for sharing with those of us who have friends who may not fully understand the impact of fibromyalgia on our lives.
Thanks in advance.
From Visually.
Strategies for dealing with fear and anxiety caused by a chronic medical condition.
I came across this fascinating infographic just now and felt I should share it with your all.
While it as written for people with multiple sclerosis but it is very suitable for other conditions such as diabetes, rheumatoid arthritis and fibromyalgia.
Do feel free to share with anyone you feel may be interested.
From Visually.
Stephanie Woodacre – Fibromyalgia Research
We have been contacted by Stephanie Woodacre, a student at The University of Central Lancashire, to help her located people with fibromyalgia to take part in some research!
Woodacre shares “I am researching the dietary preferences of women suffering with Fibromyalgia, as part of my final year dissertation at The University of Central Lancashire. (Full ethical approval has been obtained from The University of Central Lancashire’s Ethics Committee to carry out this research).
The overall aim of this research is to help identify if a link can be found between dietary preferences and the severity of the condition.
Research of dietary interventions or the effect of diet on Fibromyalgia is scarce. Symptoms such as chronic fatigue or disturbed sleep could be down to deficiencies or a poor diet; I decided to conduct a study of dietary preferences and the impact on Fibromyalgia to see if dietary interventions could be advised to help relieve some of the symptoms of Fibromyalgia.
Participation is entirely voluntary and are free to withdraw from the study at any time before submission. All data collected will be anonymous and confidential and only used for this research. Participants can be notified of any feedback and further evidence following completion of the study.
Research information can be sent by email or by post if required. The closing date for the study is 21st March 2016.”
Participants can contact Ms Woodacre to participate or request any additional information on swoodacre@uclan.ac.uk
Pain
Quite a number of medical conditions have what are called flares. These include fibromyalgia, multiple sclerosis, rheumatoid arthritis and lupus. And indeed any painful condition.
So what exactly is a flare? Simply put it is an exacerbation the symptoms of a chronic medical condition . Sometimes referred to as a flare-up or relapse, a it takes place when your symptoms temporarily get worse.
What interests us today is not the underlying condition but rather the external factors which trigger the flare.
To help us find out more it would be great if you could take part in the poll below.
Once you have done so please feel free to tell us a bit more about the causes of your flare in the comments section below.
Many thanks in advance for your help!
Pain – what works best?
With many of our readers having multiple sclerosis, rheumatoid arthritis, fibromyalgia and diabetes in particular the whole area of pain management is an important part of our mission as a blog.
So when one of our readers asked us “What treatments do your readers take for pain?” we thought that this would be an excellent opportunity to find out.
So that is the purpose of the poll below.
But we would also like to take the discussion a little bit further. While we have looked generally at pain management in the past today we want to do something a bit different.
Once you have taken part in the poll (for which many thanks) it would be very grateful if you could tell us a bit more in the comments section below. In particular could you rate the treatments in terms of your own pain outcomes. A bit like this blog on TENS machines and pain.
Many thanks in advance and we are confident your comments will be of great help to others on their pain journey.
| CindyJones1 | We should be able to choose more than one. I do take medication but I also have a spinal cord stimulator, my trusty heating pad. PT exercises and therapeutic exercises given to me by my therapist. I had to get one due to my adhesive arachnoiditis, she has given me a lot of tools. |
| patienttalk patienttalk.org |
MancFlickChick Great tip – many thanks |
| MancFlickChick | When my fingers felt like they were being stabbed by thousands of tiny knifes (this doesn’t happen with everyone) the only thing that did any good was to put them in cold water which worked instantly, much better than the incredibly strong pain killers the ER staff gave me which did nothing. |
