Do you have blood cancer and live in the USA? In which case you might qualify for $125 for taking part in an interview!


Blood Cancer research

Blood Cancer research

Our friends at M3 Global Research have used us to help them find people to help them with some research in America.

They are interested in people who wish talk about the unmet needs of people with blood cancer, the factors that may motivate a person to talk to his/her doctor about a new treatment and how people want to receive information about new treatment options. They are very interested in listening to their perspectives and thoughts on a series of messages, as the insights you can provide will help them understand how to improve information given to people about new treatments. The results of the research will be used to help provide patients the information necessary to make a treatment decision that is best for them.

They are offering $125 to the patients who successfully complete the interview, which will last for 60 minute over the telephone. They are looking to conduct interviews with the patients in the weeks of 8th and 15th of December.

There is some criteria you will need to meet to qualify, this is as follows:

• You will need to be 18 years of age or older
• Live in the USA
• Diagnosed with Mantle Cell Lymphoma (MCL) or Chronic Lymphocytic Leukaemia (CLL)
• Be on current treatment/ in-between treatments or have discontinued treatment
• Have access to a computer/ laptop/ tablet with working internet for the interview

If you would like to take part please call Juli Finney 610-952-6176. Alternatively you can email her email her at jfinney@usa.m3.com.

Thanks very much in advance.


Looking for parents of children with autism! Please help a student at The Irish Centre for Autism and Neurodevelopmental Research with a survey.


Over the last

Irish Centre for Autism and Neurodevelopmental Research

Irish Centre for Autism and Neurodevelopmental Research

year we have help promote a number of research projects run by the Irish Centre for Autism and Neurodevelopmental Research (ICAN) . Which is part of National University of Ireland.

A few days ago one of their PhD students, Arlene Mannion, contacted us to ask for some assistance from our readers with a survey she is running on sleep problems or gastrointestinal symptoms in children with autistic spectrum disorder (ASD).

It would be great if you could help her with the research as we think it may prove very useful to all the ASD community going forward.

Mannion writes “Does your child with autism spectrum disorder (ASD) experience sleep problems or gastrointestinal symptoms?

Some children with autism have both sleep problems and gastrointestinal symptoms, while other children have one of these issues or none at all. The Irish Centre for Autism and Neurodevelopmental Research (ICAN) in National University of Ireland, Galway is interested in hearing about your experiences with your child or adolescent aged 3 to 17 years with autism. We are interested in understanding how sleep problems and gastrointestinal symptoms affect both child and parent. Even if your child doesn’t have sleep or gastrointestinal problems, we can still learn a lot from your information on why some children have these issues and others do not. If you wish to participate, please use the link below.

https://docs.google.com/forms/d/1rdm3IrSWzZcrG14jezW1FjrjoF5T62zUH4cX26ecs2k/viewform?c=0&w=1

If you need any more information on the survey you can contact Ms Mannion at a.mannion3@nuigalway.ie.

Thanks very much in advance!


Alcohol Awareness Week – Does not drinking in January actually work the rest of the year?


Alcohol Awareness Week

Alcohol Awareness Week

Like many of us I enjoy a glass of wine in the evening but I do like to go dry in January. The last two weeks of December are an opportunity for me to eat and drink far too much (even by my standards) so a dry January is a great way to kick start the year.

But what are the affects and does it have any affect the rest of the year!

Well according to research by the UK’s University of Sussex it does have a long term impact. Short term they found that of people who had given up a tipple for January:-

• 82% of participants felt a sense of achievement
• 79% of participants saved money
• 62% of participants had better sleep
• 62% of participants had more energy
• 49% of participants lost weight

Indeed Emily Robinson, Director of Campaigns at Alcohol Concern told us, “The long term effects of Dry January have previously been questioned, with people asking if a month booze-free would cause people to binge drink once the 1st February comes around. This research is the proof of how, with the help, advice and support we offer throughout the month, our model can really change behaviour and reduce drinking.”

Alcohol Awareness Week is run in the UK by Alcohol Concern who also promote, what they call, Dry January!


The research suggest that nearly 20% of the UK population drinks more than the recommended amount!

The main findings are :-

• 72% of participants had sustained reduced levels of harmful drinking six months after completing Dry January
• The 23% of people who had “harmful” alcohol consumption when they started Dry January are now in the “low risk” category
• 4% of participants were still dry in June

Dr Richard De Visser, Senior Lecturer at the University of Sussex who led the research, said: “What’s really interesting to see is that these changes in alcohol consumption were also seen in the participants who didn’t complete the whole month alcohol free. Even if participants took part but didn’t successfully complete the 31 days, it generally led to a significant decrease across all the measures of alcohol intake.”

“The Effect of Caregiver Stress on Prospective Memory.” Please help a student at Northumbria University which her research into the impact of stress on parents of children with developmental disability


Northumbria University

Northumbria University

As the parent of a child with autism I am always keen to promote research into the area of developmental delays. We were contacted by Lisa Bartle of Northumbria University in the UK who asked us post this on her behalf.

“Hello, I am a final year Psychology Student at Northumbria University. As part of my final year project I am looking for people to take part in a short, online study looking at the effects of caregiver stress on prospective (everyday) memory. The study should only take 10 minutes to complete. To take part you must be 18 years or older and a parent of a child aged between 3-19 years whom lives at home full time. If you would like to take part please click on the link below. The study and all procedures have been approved by the Faculty of Health and Life Sciences UG Ethics Committee”. Please take the survey here.

Bartle is looking for parents of children “with a developmental disability (Autism, Cerebral Palsy or Sensory Disorder)” to take part in the survey.

As some background the research “will compare levels of stress between caregivers of children with developmental disabilities and caregivers of typically developing children, and we will also consider the effect of care-giving stress on prospective memory. The study will also assess whether negative coping behaviors such as smoking and use of alcohol might underlie the negative impact of caregiver stress on memory”.

Thanks very much for your interest. You can access the survey here.


Healthcare Associated Infections – Britons will go a long way to avoid them – A guest post from MindMetre Research


C.difficile

C.difficile

As regular readers of the blog will know we has been covering the topics of superbugs and the related issue of MRSA here at PatientTalk.Org.

So we are delighted to share this guest post from MindMetre Research which tells us more about a recent study the contacted in the UK looking at attitudes toward hospital provision and infection.

They share “How far would you go to avoid being treated in a hospital with a poor record for antibiotic-resistant Healthcare Associated Infections (HCAIs), or ‘superbugs’? The answer – “up to a hundred miles” – according to almost half of British citizens.



Latest research on the subject from MindMetre seeks to calibrate the likelihood of British citizens to insist on treatment at an alternative hospital if their local provider had a below average record of HCAI reduction, along with the distance they would be prepared to go to get treatment in a safer environment.

The findings from the MindMetre study were definitive and clear:
· 76% of citizens say that if they learned that their hospital was a low performer on HCAI reduction, they would insist their GP referred them to a hospital with a better record;
· 83% would be happy to travel 20 miles to be treated in a hospital with a better HCAI reduction record than their local hospital;
· 62% would be happy to travel 50 miles for treatment;
· And 48% would be happy to travel 100 miles in the same situation.

Paul Lindsell, Managing Director at MindMetre Research, comments, “In the new structure of the NHS, with acute clinical services commissioned by GP-managed Clinical Commissioning Groups (CCG), patient mobility has become a clear and present reality. Patients, in partnership with their GP, can choose to be treated at an Acute Trust of their choice, with the associated funds following the patient. CCGs are clearly charged with the mandate to improve patient outcomes, and so offering this level of patient choice is systemically built in to the new NHS structure.”

“Acute Trusts have done a great job addressing very specific HCAIs, notably MRSA and C.difficile, but there is a rising tide of other infections, and the problem needs to be addressed holistically.”

“This research note clearly demonstrates that Acute Trusts need to take their initiatives to reduce HCAIs even more seriously if they are to avoid patients opting to be treated at a hospital with a better record, with funds following the patient.” ”

Research Methodology
Fieldwork was conducted by MindMetre Research between May and July 2014, in person and via online questionnaires, amongst a nationally representative sample of 2,003 British citizens (age, gender, region, social class). Margin of error: – +/- 1.78%

About MindMetre
MindMetre, part of the Lindsell Marketing Group, is a leading consumer and business analyst. The organisation has been investigating trends in a number of fields and sectors since the late-1990s, including health & medicine, finance, central & local government and internet technology. Research programmes are regularly conducted across the globe, embracing geographies from the Americas to the Far East. In the healthcare sector, MindMetre is particularly known for its series on healthcare financing, beginning in the early 2000s. All MindMetre research activity strictly protects the privacy and confidentiality of respondents.