Hoarding disorder – more common than you might think

Hoarding disorder

Hoarding disorder

A hoarding disorder is where someone acquires an excessive number of items and stores them in a chaotic manner. The items can be of little or no monetary value and usually result in unmanageable amounts of clutter.

It’s considered to be a significant problem if:

  • the amount of clutter interferes with everyday living – for example, the person is unable to use their kitchen or bathroom and cannot access rooms
  • the clutter is causing significant distress or negatively affecting the person’s quality of life or their family’s – for example, they become upset if someone tries to clear the clutter and their relationships with others suffer

Hoarding disorders are challenging to treat, because many people who hoard frequently don’t see it as a problem, or have little awareness of how it’s impacting their life or the lives of others. Many others do realise they have a problem, but are reluctant to seek help because they feel extremely ashamed, humiliated or guilty about it.

It’s really important to encourage a person who is hoarding to seek help, as their difficulties discarding objects can not only cause loneliness and mental health problems, but also pose a health and safety risk. If not tackled, it’s a problem that will probably never go away.

Why someone may hoard

The reasons why someone begins hoarding aren’t fully understood.

It can be a symptom of another condition. For example, someone with mobility problems may be physically unable to clear the huge amounts of clutter they have acquired. People with learning disabilities or people developing dementia may be unable to categorise and dispose of items. Mental health problems associated with hoarding include:

severe depression

psychotic disorders, such as schizophrenia

obsessive compulsive disorder (OCD)

In some cases, hoarding is a condition in itself and often associated with self-neglect. These people are more likely to:

live alone

be unmarried

have had a deprived childhood, with either a lack of material objects or a poor relationship with other members of their family

have a family history of hoarding

have grown up in a cluttered home and never learned to prioritise and sort items

Many people who hoard have strongly held beliefs related to acquiring and discarding things, such as: “I may need this someday” or “If I buy this, it will make me happy”. Others may be struggling to cope with a stressful life event, such as the death of a loved one (bereavement).

Attempts to discard things often bring up very strong emotions that can feel overwhelming, so the person hoarding often tends to put off or avoid making decisions about what can be thrown out.

Often, many of the things kept are of little or no monetary value and may be what most people would consider rubbish. The person may keep the items for reasons not obvious to other people, such as sentimental reasons, or feeling the objects appear beautiful or useful. Most people with a hoarding disorder have a very strong emotional attachment to the objects.

What’s the difference between hoarding and collecting?

Many people collect items such as books or stamps and this isn’t considered a problem. The difference between a “hoard” and a “collection” is how these items are organised.

A collection is usually well-ordered and the items are easily accessible. A hoard is usually very disorganised, takes up a lot of room and the items are largely inaccessible.

For example, someone who collects newspaper reviews may cut out the reviews they want and organise them in a catalogue or scrapbook. Someone who hoards may keep large stacks of newspapers that clutter their entire house and mean it’s not actually possible to read any of the reviews they wanted to keep.

Signs of a hoarding disorder

Someone who has a hoarding disorder may typically:

keep or collect items that may have little or no monetary value, such as junk mail and carrier bags, or items they intend to reuse or repair (see below)

find it hard to categorise or organise items

have difficulties making decisions

struggle to manage everyday tasks, such as cooking, cleaning and paying bills

become extremely attached to items, refusing to let anyone touch or borrow them

have poor relationships with family or friends

Hoarding can start as early as the teenage years and gets more noticeable with age. Many people seem to start problematic hoarding in older age. It’s estimated that between 2% and 5% of adults in the UK may have symptoms of a hoarding disorder.

Items people may hoard

Some people with a hoarding disorder will hoard a range of items, while others may just hoard certain types of objects.

Items that are often hoarded include:

newspapers and magazines

books

clothes

leaflets and letters, including junk mail

bills and receipts

containers, including plastic bags and cardboard boxes

household supplies

Some people also hoard animals, which they may not be able to look after properly. More recently, hoarding of data has become more common. This is where someone stores huge amounts of electronic data and emails that they’re extremely reluctant to delete.

Why hoarding disorders are a problem

A hoarding disorder can be a problem for several reasons. It can take over the person’s life, making it very difficult for them to get around their house. It can cause their work performance, personal hygiene and relationships to suffer.

The person hoarding is usually reluctant or unable to have visitors, or even allowing tradesmen in to carry out essential repairs, which can cause isolation and loneliness.

The clutter can pose a health risk to the person and anyone who lives in or visits their house. For example, it can:

make cleaning very difficult, leading to unhygienic conditions and encouraging rodent or insect infestations

be a fire risk and block exits in the event of a fire

cause trips and falls

fall over or collapse on people, if kept in large piles

The hoarding could also be a sign of an underlying condition, such as OCD, other types of anxiety, depression and potentially more serious conditions, such as dementia.

What you can do if you suspect someone is hoarding

If you think a family member or someone you know has a hoarding disorder, try to persuade them to come with you to see a GP.

This may not be easy, as someone who hoards might not think they need help. Try to be sensitive about the issue and emphasise your concerns for their health and wellbeing.

Reassure them that nobody is going to go into their home and throw everything out. You’re just going to have a chat with the doctor about their hoarding to see what can be done and what support is available to empower them to begin the process of decluttering.

Your GP may be able to refer you to your local community mental health team, which might have a therapist who’s familiar with issues such as OCD and hoarding. If you have difficulties accessing therapy, the charity OCD-UK may be able to help.

It’s generally not a good idea to get extra storage space or call in the council or environmental health to clear the rubbish away. This won’t solve the problem and the clutter often quickly builds up again.

How hoarding disorders are treated

It’s not easy to treat hoarding disorders, even when the person is prepared to seek help, but it can be overcome.

The main treatment is cognitive behavioural therapy (CBT). The therapist will help the person to understand what makes it difficult to throw things away and the reasons why the clutter has built up.

This will be combined with practical tasks and a plan to work on. It’s important that the person takes responsibility for clearing the clutter from their home. The therapist will support and encourage this.

 

Cognitive behavioural therapy (CBT)

CBT is a type of therapy that aims to help you manage your problems by changing how you think (cognitive) and act (behaviour). It encourages you to talk about how you think about yourself, the world and other people, and how what you do affects your thoughts and feelings.

Regular sessions of CBT over a long period of time are usually necessary and will almost always need to include some home-based sessions, working directly on the clutter. This requires motivation, commitment and patience, as it can take many months to achieve the treatment goal.

The goal is to improve the person’s decision-making and organisational skills, help them overcome urges to save, and ultimately clear the clutter, room by room.

The therapist won’t throw anything away, but will help guide and encourage the person to do so. The therapist can also help the person develop decision-making strategies, while identifying and challenging underlying beliefs that contribute to the hoarding problem.

The person gradually becomes better at throwing things away, learning that nothing terrible happens when they do so, and becomes better at organising items they insist on keeping.

At the end of treatment, the person may not have cleared all their clutter, but they will have gained a better understanding of their problem. They will have a plan to help them continue to build on their successes and avoid slipping back into their old ways.

Borderline personality disorder – and introduction to BPD

Borderline personality disorder

Borderline personality disorder

Borderline personality disorder (BPD) is a disorder of mood and how a person interacts with others. It’s the most commonly recognised personality disorder.

In general, someone with a personality disorder will differ significantly from an average person in terms of how he or she thinks, perceives, feels or relates to others.

The symptoms of BPD can be grouped into four main areas:

emotional instability – the psychological term for this is ‘affective dysregulation’

disturbed patterns of thinking or perception – (‘cognitive distortions’ or ‘perceptual distortions’)

impulsive behaviour

intense but unstable relationships with others

The symptoms of a personality disorder may range from mild to severe and usually emerge in adolescence, persisting into adulthood.

Read more about the symptoms of BPD.

Causes of BPD

The causes of BPD are unclear. However, as with most conditions, BPD appears to result from a combination of genetic and environmental factors.

Traumatic events that occur during childhood are associated with developing BPD. Many people with BPD will have experienced parental neglect or physical, sexual or emotional abuse during their childhood.

Read more about the causes of BPD.

When to seek medical advice

If you’re experiencing symptoms of BPD, make an appointment with your GP. They may ask about:

how you feel

your recent behaviour

what sort of impact your symptoms have had on your quality of life

This is to rule out other more common mental health conditions, such as depression, and to make sure there’s no immediate risk to your health and wellbeing.

You may also find MIND a useful website.

Read more about how BPD is diagnosed.

Treating BPD

Many people with BPD can benefit from psychological or medical treatment.

Treatment may involve a range of individual and group psychological therapies (psychotherapy) carried out by trained professionals working with a community mental health team. Effective treatment may last more than a year.

Read more about treatments for BPD.

Over time, many people with BPD overcome their symptoms and recover. Additional treatment is recommended for people whose symptoms return.

Associated mental health problems

Many people with BPD also have another mental health condition or behavioural problem, such as:

misusing alcohol

generalised anxiety disorder

bipolar disorder

depression

misusing drugs

an eating disorder – such as anorexia or bulimia

another personality disorder – such as antisocial personality disorder

Bipolar disorder – what are the signs and symptoms of Bipolar disorder?

Van Gogh - Bipolar

Van Gogh – Bipolar

Bipolar disorder is characterised by extreme mood swings. These can range from extreme highs (mania) to extreme lows (depression).

Episodes of mania and depression often last for several weeks or months.

Depression

During a period of depression, your symptoms may include:

feeling sad, hopeless or irritable most of the time

lacking energy

difficulty concentrating and remembering things

loss of interest in everyday activities

feelings of emptiness or worthlessness

feelings of guilt and despair

feeling pessimistic about everything

self-doubt

being delusional, having hallucinations and disturbed or illogical thinking

lack of appetite

difficulty sleeping

waking up early

suicidal thoughts

Mania

The manic phase of bipolar disorder may include:

feeling very happy, elated or overjoyed

talking very quickly

feeling full of energy

feeling self-important

feeling full of great new ideas and having important plans

being easily distracted

being easily irritated or agitated

being delusional, having hallucinations and disturbed or illogical thinking

not feeling like sleeping

not eating

doing things that often have disastrous consequences – such as spending large sums of money on expensive and sometimes unaffordable items

making decisions or saying things that are out of character and that others see as being risky or harmful

Patterns of depression and mania

If you have bipolar disorder, you may have episodes of depression more regularly than episodes of mania, or vice versa.

Between episodes of depression and mania, you may sometimes have periods where you have a “normal” mood.

The patterns aren’t always the same and some people may experience:

rapid cycling – where a person with bipolar disorder repeatedly swings from a high to low phase quickly without having a “normal” period in between

mixed state – where a person with bipolar disorder experiences symptoms of depression and mania together; for example, overactivity with a depressed mood

If your mood swings last a long time but aren’t severe enough to be classed as bipolar disorder, you may be diagnosed with cyclothymia (a mild form of bipolar disorder).

Living with bipolar disorder

Bipolar disorder is a condition of extremes. A person with the condition may be unaware they’re in the manic phase.

After the episode is over, they may be shocked at their behaviour. However, at the time, they may believe other people are being negative or unhelpful.

Some people with bipolar disorder have more frequent and severe episodes than others. The extreme nature of the condition means staying in a job may be difficult and relationships may become strained. There’s also an increased risk of suicide.

During episodes of mania and depression, someone with bipolar disorder may experience strange sensations, such as seeing, hearing or smelling things that aren’t there (hallucinations).

They may also believe things that seem irrational to other people (delusions). These types of symptoms are known as psychosis or a psychotic episode.

Am I Just Freaking Out- Or Is It an Anxiety Disorder? Know the Signs

Am I Just Freaking Out- Or Is It an Anxiety Disorder

Am I Just Freaking Out- Or Is It an Anxiety Disorder?

Am I Just Freaking Out- Or Is It an Anxiety Disorder? Know the Signs

For some tips on dealing with anxiety check out this blog post!

1. Am I Just Freaking Out- Or Is It an Anxiety Disorder from Adprime Media on Vimeo.

Delirium: A Patient Story

Delirium: A Patient Story at Leicester's Hospitals

Delirium: A Patient Story at Leicester’s Hospitals

This is David and his wife Gloria’s story. Two years ago David was treated at Leicester’s Hospitals for community acquired pneumonia. During his admission David experienced an episode of delirium. Patients with delirium frequently experience hallucinations, false ideas or paranoia. These symptoms can be very distressing and frightening for patients and their families.

David explains what the experience was like: “Slowly but surely I descended into this land of…well it was different. Unfortunately my brain was telling me this isn’t real but no matter what I did I couldn’t wake up, I couldn’t get rid of it. This is the first experience, it was quite frightening.”

Patients may act in a way that is not normal for them, leading them to be labelled a nuisance or troublesome. David was isolated due to his ‘rude’ behaviour, which was very out of character. David adds: “All types of weird things were going on in my head. The whole thing was quite terrifying but I remember speaking to Gloria on the phone to tell her there was a bomb going to go off. I was firmly convinced this was going to happen. This thought was there but I knew it was wrong.”

It is important to recognise this is not the patient’s fault, in this case David, and to help re-orientate them to their surroundings and the care that they are being provided with.

Delirium can also have a significant impact on family and carers. Gloria didn’t know how to respond: “I didn’t know whether to say you’ll be ok it’s not really happening or to say thank you for the last 64 years, it’s been nice knowing you… you just don’t know how to reply to a person. I found it very difficult. Delirium can change the character of a person; this can be very distressing and difficult to understand for loved ones. A better understanding can help lessen the distress and family members can work alongside healthcare professionals to resolve the delirium quicker.”

Slowly but surely reality returned for David, who says: “Two years later it is still clear in my head what I was thinking. It is quote frightening. It felt so real. You can taste it. The only regret I have is that I would like to go back to say sorry to those people, if they all existed and I didn’t make them up, that I was rude to.”

Dr Chris Miller, Geriatric Medicine Specialist Doctor at Leicester’s Hospitals, looks after patients like David: “Delirium affects up to half our adult inpatients. Those with chronic conditions such as dementia, or Parkinson’s disease, and those with sensory deficits such as visual or hearing impairments are more at risk. Unfortunately, delirium is not very well recognised and frequently leads to poorer outcomes. Patients are often distressed by these episodes. A lack of understanding of this medical condition can exacerbate problems.”

David spent three weeks in hospital recovering from his pneumonia and delirium. He was subsequently discharged home to his wife, Gloria. He remains distressed by his experiences of delirium that he still remembers vividly.

As Chris highlights: “We encourage our staff to ask if their patients are more confused or more withdrawn than normal and if so, to ‘THINK DELIRIUM’ and work to find, investigate and treat any cause. Similarly, if family members or carers notice their loved one is more confused or more withdrawn than their normal self to alert our staff to this. Prompt actions can reduce the severity of any episode and improve outcomes for our patients.”

We would like to thank David and Gloria for sharing their story.