Pain for pressure
Simply put Allodynia can be defined as pain due to pressure on the body where in normal circumstances people would not expect to feel any pain.
Examples of medical conditions which have Allodynia as a symptom include Fibromyalgia (https://patienttalk.org/?tag=fibromyalgia), Neuropathic pain (https://patienttalk.org/?p=281), complex regional pain syndrome (https://patienttalk.org/?p=1003) and migraines.
The objective of the blog is first to raise awareness of Allodynia. And also to provide a forum for people to share their experiences of living with; and treating Allodynia.
The pain can be from both touch and from changes in skin temperature.
It would be great if you can use this blog to share your experiences of Allodynia. We are interested in some of the following issues:-
a) Which condition caused your Allodynia?
b) How did this Allodynia present itself?
c) In one sentence how would you describe the pain to somebody who has never experienced it before?
d) How your Allodynia was treated and how successful was that treatment?
e) What advice would you give to somebody who suffers from this kind of pain?
Please feel free to share any part of your pain story with our readers in the comments box below. If you have any links you think might be of interest, again, please put them boxes below
Many thanks in advance
jackweds Thanks for the post
Hi. I’m new here. I have had allodynia on my chest for 12 years odd. But it has been seriously bad since an operation in 2012. All clothing is real agony. I only wear modal fabric which is very soft, but here in England it’s hard because it’s wet and cold.
I struggle with my pain a lot. I don’t work because of it and I am very depressed. Allodynia has taken me to the point of suicide. It just doesn’t end or get any better for me. I see a pain management consultant but they don’t seem to know what to do either. I have been on provably 20 drugs and had various procedures. These include Botox, capsicum, ketamine, lydacain infusion. I am on opiates, sleeping tablets and anti depressants. I don’t want to be but have no choice,
I meditate a lot and keep a clean diet. I am overweight though due to inactivity, I would love to get back to the gym and get on with life but this condition is terrible.
Hello!
You are not crazy. Sitting on a cold toilet hurts me too. The Thermal Allodynia is all over my body. Anything cool hurts.
I also have mechanical allodynia in my feet. So walking hurts. The pressure of walking feels horrible.
I also have movement allodynia. So all movement hurts.
I am currently creating a website for Allodynia myself. I will be putting together information on treatments I have tried and there success or lack of success. I have made improvements but currently in a spiral right now. I know I can get back faster. Valarian Root takes down my mechanical allodynia. Gabapentin and Cymbalta help a little. Ive also started on Lamictal. I am looking to go to the Cleveland Pain Clinic, which is the only hospital I have found that might be able to help.
To make any approvement we need to expose yourself to the stimulus and stop as soon as it starts to wind up….slowly increasing the time before wind up occurs. I am also trying an experiment with salt water to see if this helps at all. Today was my first day. It helped a little.
I am hoping if the person running patient talk to contact me. Anyway we can come together for change will be huge. I am reaching out to pharmaceuticals. I am also hoping once there is strength in numbers that we can go to the media.
For all who want to reach me please email me @ glorad.avon@gmail.com
BUENO YO TENGO EM DESDE HACE 12 AÑOS,,,DIAGNOSTICADA,,AHORA SE Q ES DESDE NACIEMINTO,,,PERO LOS DOLORES DE UNA REGION FUERON DESDE LOS 10 AÑOS EN LA REGION LUMBAR Y FUERON CRECIENDO CONFORME MI DESRROLLO,,,,CON LOS CAMBIOS DE CLIMA Y FUERZA,,,DESDE HACE 12 AÑOS,,,,
I was diagnosed with Fibromyalgia many years ago, but most doctors I’ve seen don’t believe in it and therefore I have never been treated. The pain I experience is often so severe that I involuntarily scream out. My poor grandson only has to wrap his little arms around my legs and it sets off the pain, which I still feel long after he has let go. Sometimes cold bothers me, like sitting on a cold toilet seat in the winter. So painful. People think it’s loony; they really do not understand, including those closest to me. It is isolating. To describe the pain to someone, I explain how the lightest touch is as painful as if I were to punch you. I have tried Lyrica and Neurontin, prescribed for nerve pain from a back condition, with no relief.
I have multiple sclerosis, diagnosed 22 years and have had so much pain just wearing clothes especially pants. The last 5 years I will only wear them if I HAVE to go out of the house, otherwise I stay in shorts and tank tops to not have anything touch my skin. Although it is easier to wear tight pants, tights or leggings rather than long skirts as it is better to have the constant pressure than have fabric just rub on me as that is almost like lightning. The constant pressure is easier to deal with than the shock of just the wind blowing on me. I know it does not sound normal and I am probably not good at explaining but this condition is the closest i have ever come to knowing anyone’s skin is as sensitive as mine. Sometimes I cannot have blankets or even a sheet on me as it causes so much pain. It also gets worse when I have iv steroids, much more pain