A couple of days ago we were asked by a Emma, a student at St Francis Xavier’s College in Australia, to help her find people to take part in a survey.
Emma writes ” I am currently completing Year 12 in Australia and for my major work I plan on creating a short film about Autism both generally and within Australia.
I was wondering if anyone with an ASD or a child with ASD would like to complete a survey for me. I am conducting a set of surveys as a part of my HSC Major Work for Industrial Technology – Multimedia. The purpose of these surveys is to:
1. investigate what people with Autism Spectrum Disorders would like other people to know about the disorder, specifically in Australia,
2. investigate what people would like to see in an informative video about Autism Spectrum Disorders
Each survey should only take 5-10 minutes to complete. All responses will be anonymous and confidential. The findings in the research will only be published in my folio for assessment purposes.
Thank you in advance for taking the time to help me create this.
Please feel free to share these links with other people who may like have an input.”
Wandering by children with Autism and other developmental disorders is a significant safety concern. It is estimated that more than 250,000 children with disabilities wander away from adult supervision each year. Few researchers have looked at this major issue, and there has been little focus on prevention measures and the impact that wandering concerns have on families.
Cohen Children’s Medical Center of New York is conducting a major national study about wandering, and we very much want you to participate.
It takes just a few minutes to complete the anonymous, on-line questionnaire. If enough families complete our questionnaire, then:
We will have the most representative study done to date – giving voice to as many families as possible
We can help guide families like yours about which prevention strategies seem to be most effective
We can document the impact that wandering has on families in terms of activities and household stress
Please click HERE to complete the survey. You may also go towww.WanderingResearch.comto take the survey, request a copy of our results, and be contacted regarding a follow-up research project related to wandering.
Earlier this week we were contacted by one of our readers who asked us to help find people to take a survey. Suzanne Axelsson, herself a mother with a child on the spectrum told us “My husband is starting up some research into the sleep routines of children with autism. Sleep is an essential part of learning… and also social interaction… if we are tired it is harder to react appropriately to a given situation… and as I see with my own son, who has autism, he is depleted of his energy reserves sometimes rapidly by things that would hardly bother others… this means that good sleep hygiene is even more essential for my son”.
Her husband John Axelsson of the Karolinska Institutet , a leading medical university in Sweden, shared:
“Karolinska Institutet is currently conducting a study to explore the complex relation between autistic traits and sleep quality.
While we know that sleep is often affected in this group, the underlying mechanisms remains largely unknown.
If you have a child that has been diagnosed with an autism spectrum disorder or have autistic traits, you can contribute to this research by filling out a questionnaire about your child and his/her sleep, taking approximately 15 minutes. You will not be asked to provide any identifying information such as name or date of birth, meaning that your answers will remain strictly anonymous and confidential. The data will be used for developing better interventions to improve sleep quality and day time functioning in children with autism.
Simply click on this link to participate (https://survey.ki.se/Survey/4695/en) but please make sure that you have 15 minutes to spend as you only can access the questionnaire once.
Thank you very much for your time, and don’t hesitate to contact me if you have any questions!