When our son was diagnosed with autism (just over six years ago) it took me months to tell many of my closest friends. Why? Because I was at the time ashamed of the fact our beautiful (and yes at times difficult) son had such a disability.
I don’t feel that now but if I am truthful I do occasionally feel a pang of regret about things that i thought I would do with him but now never will. Though in fact you don’t need a child with a disability to feel that.
So I was wondering am I alone?
Have others felt shame and stigma because of a medical condition?
If you have it would be great if you would share a bit more about your story in the comments section below.
Also we have set up a poll on the subject below. It would be great if you could take part.
PS There is a reason for the picture of Bulgaria. But that is for my wife and I!
Disabled children end up facing a lot more issues in school due to a lack of awareness among staff and non-disabled peers. Bullying is a common complaint voiced by disabled children, sometimes even as young as seven years old. However, this situation can be easily rectified by making sure that schools have proper access and mobility equipment, teachers are trained in special needs education, educating non-disabled children in equality, tolerance and diversity. For more information on how to improve the life of a disabled child at school, check out this below infographic from UKSMobility.
The purpose of this blog and this post, in particular, is to help raise awareness of disabilities and invisible illness within the wider community.
So the idea is for us all to share our stories about our relationships with the various disabilities which have so much impact upon our lives.
So let’s start with me.
My background, as some of you may know, is healthcare market research. Which is one of the reasons I support so many students who wish to run surveys as part of their research.
But it was only six years ago that it became very real to me. Because it was them that my son was diagnosed with Autism Spectrum Disorder. You can read the story of the ASD here. You can read other people’s stories here as well.
As many of you know autism is a learning disability (among other things) which means my wife and I have our time cut out supporting him. Some becoming a caregiver was not something I planned and certainly don’t relish (all the time) but it is what I do.
From helping him get dressed through special needs swimming to working on his spellings and helping him type. Both for my wife and I. Would we have it any other way? Well given the circumstances I’d say no.
So what about you?
Please feel free to share how disability have impacted upon your life in the comments section below.
Thanks very much in advance.
PS The photo is of our son (well his silhouette anyway) at his sports day a couple of days ago.
Access to the right mobility products at the right time can do wonders to the dignity and confidence of a disabled person and help them maintain a regular job and lead a better social life. UKS Mobility recently came out with this infographic, which tries to do away with some of the stigma and beliefs people with disabilities have to battle every day of their life. At the same time, the infographic also highlights the importance of mobility products in the life of a disabled person. Nearly 74 percent of people who took part in a UK-wide survey said that they would not consider making the same types of journeys if they could not use their mobility scooter.