The original reason I was interested in the subject goes back to the days I worked in medical market research. We were always being told that between 80%-90% of people with MS had Relapsing-Remitting Multiple Sclerosis.
But according to the internal polling I conducted this figure is rubbish. RRMS comes in at around 60%-65% of the MS community. You can view the original research here.
But is this correct still? I thought I would re-run the poll and see what the current situation looks like. It would be great if you could take the poll below and share your diagnosis story in the comments section below. We would be very interested in hearing if you type of multiple sclerosis has changed since your original diagnosis.
It’s the unpredictable part of relapsing/remitting, that’s the worst. You just never know what’s going to happen, where or when! That on itself is a walking risk every day. I doubt any medication can help that really.
Was originally diagnosed with RRMS in 1996 (but had it at least 3-4 years before)
Have been on DMDs for some time, but only since the introduction of the risk sharing scheme between the manufacturers and the NHS
For the last few years I have wondered whether my MS has progressed (as it is thought that this may occur sometime around 15 years from original RRMS diagnosis)
On my last Consultant appointment (hadn’t seen him for 3 years) the subject was raised and he did think this was a distinct possibility, but as he had not seen me for 3 years he would discuss this with my MS Nurse before coming to any conclusion.