New Multiple Sclerosis Treatment
One of the best description of multiple sclerosis I have come across is that it is a “snowflake disease”. By that it means that no one person will share the same exact set of symptoms of MS. A bit like a snowflake , in fact. Each one like each person with multiple sclerosis is unique.
Hence many of the problems with making a diagnosis of multiple sclerosis.
We therefore thought that it would be really useful to run a discussion blog and poll looking in more detail at our readers MS symptoms.
Firstly it would be great if you could take the poll below to share your current symptoms of MS.
If you have a symptom of multiple sclerosis which does not appear in the list please share it in the comments section below.
It would also be great if you would share a bit more about your multiple sclerosis journey in the comments box. You might want to consider and comment upon some of the following questions:-
1) What was the first symptom of multiple sclerosis?
2) How have the symptoms changed over time?
3) Which is the worst symptom of multiple sclerosis?
4) Overall what impact has multiple sclerosis had on your life?
Please remember that these questions are just a guide so anything you want to share will be of great interest!
Thanks.
| herekitty | Constant UTI’s, urinary and bowel incontinnce, RLS, Trigeminal Neuralgia |
| JenniferVillegas | Can’t walk |
| MLCB56 | tbeck2115 Vitamin B complex in liquid form helped me. |
| sally_martin | Since I was diagnosed with acute ms in 2013, it’s just been a mountain of paperwork! Dvla have now taken my driving licence aaarrrggghhhaaarrrggghhh! I can drive, passed test 20 years ago, never crashed or pranged a car! I have to walk with a stick but that’s it! |
| RachelBaileyBuelow | Fatigue, Bowel and bladder difficulties, extremely slow peristalsis. |
| KarolyneRoy | Fatigue, headache, twitches |
| tbeck2115 | Extreme fatigue. Nothing seems to help. I’ve tried provigil, nuvigil and Ritalin. If anyone has suggestions I would appreciate it. |
| mbarrera | I have had severe pain, incontinence and really sensitive on my neck and spine. Was hospitalized and drs couldn’t control my pain |
| AmandaButeau | Hearing distortion. The louder the volume, the more distorted and painful that sound becomes. I’ve had two separate flares that have affected hearing but there seems to not be a whole lot of info on it. |
| ygtMSlife | My newest symptom is my right eye shifting back/forth. I went to my Neuro and she acted like it really didn’t matter. She couldn’t see anything when looking in my eye with her light. I am on Tysabri. So after 3 days of IV Solmedro the shifting stopped for 6 days and has begun again. If anyone else can advise me on this… does Gabapentin or Baclofen help?? I am 49 and have a 10year old son. It is getting harder and harder to just do what must be done daily. |
| Kimberly Flipp | I have Spinal Stenosis as well and I think something has seriously changed, but even using my walker, my legs don’t want to support me, so I’m hunched over like an old lady. The pain is a major drawback as well. I don’t have a neuro currently to help me with this, and my Lupus doc and my Internist won’t address it as they say it is MS related. I have a new neuro and I see her the 23rd and I can tell you the last month and a half have been hell. |
| tuxeltje | first symptom was in 2005, muscle-weakness, diagnosed with MS in 2012, with PPMS in 2014, worst probs are the brainfog/memoryloss, but most shamefull is incontinence. Started heavy muscle-training (body building) in 2013 and it helps me, I can walk (somewhat) again. |
| DawnElizabeth1 | I was diagnosed with RRMS in January 2010. I have overcame a lot of struggles. From being a STNA one day to being zapped the next with SOLU MEDROL, having a mini stroke, achieving sobriety August 27, 2010 , falling and messing up my knee and ending up in a wheelchair, from not being able to walk to long grueling hours of physical therapy and low and behold i could walk again. I was on BETA SERON Injection every other day and they were making me sicker than I was. So now I am on a gluten free and sodium free diet, but the flare ups keep coming. My greatest hope and prayer is that a MS cure is found. My current symptoms are foggy brain, forgetfulness, memory loss (past and present), SEVERE PAIN AND BURNING in my legs..and we can’t find anything that works. I am falling down, severe constipation, bladder leakage, I have had vision changes, very bad balance and lots of fatigue. Don’t get me wrong I have some good days, but since my last flare up in October its more bad then good. I see Nuro in Feb. I think I am going back on MS meds. |
| jennya2584 | I am waiting for my diagnoses of MS which should have happened 3 years ago when I has optic neuritis which showed in my MRI or at least be diagnosed with CIS (clinically isolated syndrome). I have been to hell and back sine! I have seen specialists (all of them), had every test in the book to rule out everything and now I’m back for round 2 with my neurologist. My sx are; blurry vision with visual changes, left sided numbness and tingling, extremely painful jaw, neck, head and back with a ridiculous amount of knots that are new, fatigue, memory loss, I could go on and on!! Tomorrow I’m having another MRI and I just want a diagnoses to know what is actually going on even though I have a pretty good idea! Any suggestions?? Maybe what my next step could be or a second opinion?? Thanks a lot!!! |
| ColletteGary | My weakness in the hands and arms and legs are very scary for me. It is getting worse each and every day. I get up after a good night sleep, so tired I feel so weak. it is painful to put my right foot on the floor. I feel extreme bruising like pain on the bottom of my foot. My legs feel like they are going to go out from under me. I have fallen so often, that I am learning how to fall without hurting myself. It is hard to hold a cup in my hand or any food for that matter. My diagnosis came to light when I woke up and could not see out of my right eye. The pressure behind me eye was so sever that my husband rushed me to the doctor and they sent me right to a retina specialist and he told me I had a detached retina and that something was not right and they sent me to a Nero doctor and he put me in the hospital and ran a battery of test and I then was diagnosed with MS. I have relapsing Progressive thype. I slowly get worse, but it seems that I am in the middle of a relasp. I am going to work hard to be ok . I am trying hard not to get depressed. |
| tlbrandon | I’m in process of trying to get into a neurologist to test for MS. I have a lot of issues that I believe will be ms but having multiple auto immune issues confuses a diagnosis. What I am wondering is if someone with MS has a problem with skin pain? When I itch sometimes the pain can be an 8-10 on the pain scale. It can cause me to shake in pain, just from itching, dropping stuff, loss of balance, bowel problems, numb spots and again some difficulty with swollowing. My eyes and hands twitching, bumping into walls as I walk are a few problems I’ve been experiencing. I keep asking my Dr’s what’s causing these symptoms and not much response, I’ve started asking if MS but can’t get an appointment with out referral from their doctors and their booked till next jan… had many of these symptoms for over 20 years.. does any of this sound familure..? |
| linemanwife | spine/back pain…bladder problems…eyes twitching back and forth (nystagmus)…balance and walking problems…muscle spasms…fatigue my first symptom was optic neuritis… The symptoms go from one to another a you have to figure out if …hmmm …I wonder if this is ms or something else… my worst symptom was vertigo and my muscle spasms that are debilitating … I had to quit my job and I have had to change my life style tremendously. I am unable to sit for long periods of time with the muscle spasms and the pain in my spine is unbearable at times. (then you have to literally beg for things to stop the pain. |
| RobinLMaclennan | Fatigue extreme |
| LindaPike | Minimal symptoms, a little fatigue, minor dizzy spells, migraines |
Constant UTI’s, urinary and bowel incontinnce, RLS, Trigeminal Neuralgia
Can’t walk
tbeck2115 Vitamin B complex in liquid form helped me.
Since I was diagnosed with acute ms in 2013, it’s just been a mountain of paperwork! Dvla have now taken my driving licence aaarrrggghhhaaarrrggghhh! I can drive, passed test 20 years ago, never crashed or pranged a car! I have to walk with a stick but that’s it!
Fatigue, Bowel and bladder difficulties, extremely slow peristalsis.
Fatigue, headache, twitches
Extreme fatigue. Nothing seems to help. I’ve tried provigil, nuvigil and Ritalin. If anyone has suggestions I would appreciate it.
I have had severe pain, incontinence and really sensitive on my neck and spine. Was hospitalized and drs couldn’t control my pain
Hearing distortion. The louder the volume, the more distorted and painful that sound becomes. I’ve had two separate flares that have affected hearing but there seems to not be a whole lot of info on it.
My newest symptom is my right eye shifting back/forth. I went to my Neuro and she acted like it really didn’t matter. She couldn’t see anything when looking in my eye with her light. I am on Tysabri. So after 3 days of IV Solmedro the shifting stopped for 6 days and has begun again. If anyone else can advise me on this… does Gabapentin or Baclofen help?? I am 49 and have a 10year old son. It is getting harder and harder to just do what must be done daily.
I have Spinal Stenosis as well and I think something has seriously changed, but even using my walker, my legs don’t want to support me, so I’m hunched over like an old lady. The pain is a major drawback as well. I don’t have a neuro currently to help me with this, and my Lupus doc and my Internist won’t address it as they say it is MS related. I have a new neuro and I see her the 23rd and I can tell you the last month and a half have been hell.
first symptom was in 2005, muscle-weakness, diagnosed with MS in 2012, with PPMS in 2014, worst probs are the brainfog/memoryloss, but most shamefull is incontinence. Started heavy muscle-training (body building) in 2013 and it helps me, I can walk (somewhat) again.
I was diagnosed with RRMS in January 2010. I have overcame a lot of struggles. From being a STNA one day to being zapped the next with SOLU MEDROL, having a mini stroke, achieving sobriety August 27, 2010 , falling and messing up my knee and ending up in a wheelchair, from not being able to walk to long grueling hours of physical therapy and low and behold i could walk again. I was on BETA SERON Injection every other day and they were making me sicker than I was. So now I am on a gluten free and sodium free diet, but the flare ups keep coming. My greatest hope and prayer is that a MS cure is found. My current symptoms are foggy brain, forgetfulness, memory loss (past and present), SEVERE PAIN AND BURNING in my legs..and we can’t find anything that works. I am falling down, severe constipation, bladder leakage, I have had vision changes, very bad balance and lots of fatigue. Don’t get me wrong I have some good days, but since my last flare up in October its more bad then good. I see Nuro in Feb. I think I am going back on MS meds.
I am waiting for my diagnoses of MS which should have happened 3 years ago when I has optic neuritis which showed in my MRI or at least be diagnosed with CIS (clinically isolated syndrome). I have been to hell and back sine! I have seen specialists (all of them), had every test in the book to rule out everything and now I’m back for round 2 with my neurologist. My sx are; blurry vision with visual changes, left sided numbness and tingling, extremely painful jaw, neck, head and back with a ridiculous amount of knots that are new, fatigue, memory loss, I could go on and on!! Tomorrow I’m having another MRI and I just want a diagnoses to know what is actually going on even though I have a pretty good idea! Any suggestions?? Maybe what my next step could be or a second opinion?? Thanks a lot!!!
My weakness in the hands and arms and legs are very scary for me. It is getting worse each and every day. I get up after a good night sleep, so tired I feel so weak. it is painful to put my right foot on the floor. I feel extreme bruising like pain on the bottom of my foot. My legs feel like they are going to go out from under me. I have fallen so often, that I am learning how to fall without hurting myself. It is hard to hold a cup in my hand or any food for that matter. My diagnosis came to light when I woke up and could not see out of my right eye. The pressure behind me eye was so sever that my husband rushed me to the doctor and they sent me right to a retina specialist and he told me I had a detached retina and that something was not right and they sent me to a Nero doctor and he put me in the hospital and ran a battery of test and I then was diagnosed with MS. I have relapsing Progressive thype. I slowly get worse, but it seems that I am in the middle of a relasp. I am going to work hard to be ok . I am trying hard not to get depressed.
I’m in process of trying to get into a neurologist to test for MS. I have a lot of issues that I believe will be ms but having multiple auto immune issues confuses a diagnosis. What I am wondering is if someone with MS has a problem with skin pain? When I itch sometimes the pain can be an 8-10 on the pain scale. It can cause me to shake in pain, just from itching, dropping stuff, loss of balance, bowel problems, numb spots and again some difficulty with swollowing. My eyes and hands twitching, bumping into walls as I walk are a few problems I’ve been experiencing.
I keep asking my Dr’s what’s causing these symptoms and not much response, I’ve started asking if MS but can’t get an appointment with out referral from their doctors and their booked till next jan…
had many of these symptoms for over 20 years.. does any of this sound familure..?
spine/back pain…bladder problems…eyes twitching back and forth (nystagmus)…balance and walking problems…muscle spasms…fatigue
my first symptom was optic neuritis…
The symptoms go from one to another a you have to figure out if …hmmm …I wonder if this is ms or something else…
my worst symptom was vertigo and my muscle spasms that are debilitating …
I had to quit my job and I have had to change my life style tremendously. I am unable to sit for long periods of time with the muscle spasms and the pain in my spine is unbearable at times. (then you have to literally beg for things to stop the pain.
Fatigue extreme
Minimal symptoms, a little fatigue, minor dizzy spells, migraines
I have muscle spasms, fatigue, bladder & bowel problems. I use a walking frame indoors & a wheelchair/scooter for outdoors
Hearing loss, Ms hug, bladder and bowls, and paralysis I aso have major fatigue. I have a KAFO brace, because my right leg my knee hipper expands, I walk on my ankle and I have a touch of drop foot. I only lost my hearing for 3months. I didn’t respond to steroids.
I have fatigue also. I just found out last month that my MS has progressed,so my Dr has put me on Tysabri. Had 1st infusion last week and the side effects are similar to the MS lol. Am 37 and having to use my walker pretty often. I get strange looks, but I’m not one to hold my tongue so I just say I have MS and walk away. 🙂
I feel a belt compressing my ribs for 2,years now… More fatigued I am. More hard the belt oppression