World Multiple Sclerosis Day. In your view was it a success? How is it best to raise awareness of multiple sclerosis?


Multiple sclerosis awareness

Multiple sclerosis awareness

I’ve been involved, over the years, with number of awareness raising days and events.

And I ask myself do they have any effect? (Actually to be fair it must work as I was targeted by people who hate people with autism on World Autism Day and this blog was brought down for most of the day by a DDoS attack – so somebody must notice.)

Yesterday was many of us in the multiple sclerosis community will know was World MS Day. Run every year it is full on great ideas and real commitment from its supports.

Burt what is the upshot of all this hard work?

Can I be honest and say not much from where I am typing? Sure with in the MS community we take note but outside I don’t think much. I mean treatments get approved slowly but everyone thinks you are drink when you fall over. Which strikes me as not much change!

So over to you. What do you think?

Did World MS day meet its objectives?

How would you raise multiple sclerosis awareness.

Any suggestion gratefully received. You can use the comments section below to add your view. Or indeed share any links to useful events.

Thanks very much in advance.


Autism Awareness Month 2014 – looking back and looking forward?


Autism Awareness Day 2014

Autism Awareness Day 2014

As one of those bloggers* who spend a fair bit of time earlier this month promoting World Autism Day and Autism Awareness Month  I think that it is worth spending a few moments to reflect on where the autism community is going.

For most of us it is easy to think what we need for ourselves or our children and friends. (Improved Occupational therapy comes to mind).  

But I’d like us to focus a bit more on what we actually need for  a real advance in autism awareness and autism acceptance. So the point of this blog is really simple.  

Using the comments box below it would be great if you could answer one simple question.

“What one thing would improve the lives of the autism community globally and how should be go about achieving it?”

So over to you the podium is yours!

* (There were loads of us involved and once again can I give a heartfelt thanks for everyones efforts this month)


World Autism Awareness Day 2014 – Thanks for supporting #WAAD


I thought I would say thanks.

Erm, that’s it really.

For many of us in the autism community yesterday was, I feel, a massive boost in getting autism acceptance (and not just autism awareness) on the global map.

Just have a look at the posting on our Facebook Page AutismTalk (https://www.facebook.com/AutismTalk) to get a feel of the power being unleashed –

So we have made a card to show our appreciation – feel free to use it to keep getting the message out!

World Autism Awareness Day 2014 #WAAD

World Autism Awareness Day 2014 #WAAD


World Autism Day 2014 – What have you got planned? Share your ideas and links at our post!


World Autism Awareness Day

World Autism Awareness Day

This does look like a big one.  The interest in World Autism Day seems to me at least to be overwhelming.  I really think tomorrow could make a difference for the 1 in 68 who have been diagnosed with ASD.

Loads of different events are being planned across the planet and the aim of this blog post is to help people find out about them.  Please use the comments box below to share any information you have about any events you may be involved in.

To start the ball rolling my son’s school is have a crazy socks day to raise money for the National Autistic Society.  Each child in the school has been invited to wear the most outlandish pair of socks they own to school for the day.    The school has both neurotypical and ASD students so it is a great way of helping other children understand autism,  For some background to the school please have a look at https://patienttalk.org/autism-and-education-part-two-compromise-or-half-way-house-our-autistic-sons-educational-journey-explained/.

We have also made an awareness raising picture for the day.  You can download it here https://patienttalk.org/world-autism-awareness-day-2014-please-like-and-show-your-support-for-the-day/.  Please share with everyone you know.

Many thanks in advance.

Autism Health FAQ: What Makes Exercise Different for Autistic Children?

 

Autism-Exercise-E-book-Sample-Cover-300x292Hello to the readers of PatientTalk, and thank you for reading! This post comes from Seth McNew at Play Through Autism, a resource for kids with autism and their families, to develop better health and fitness habits.  Please like our Facebook page and join our emailing list for an autism exercise e-book. 
The honest answer is that youth fitness has the same end goals across the board:
1.) Give kids the tools, resources, and knowledge to understand their own fitness needs.
2.) Develop healthy life-long habits.
3.) Get kids moving – exercise begets exercise, and sitting begets more sitting.
4.) Finally, keep records of what the child liked and what they excelled at.

Now, if you are the parent of a child with autism, you will understand that the list is easier said than done for your child. That is why exercise is different for kids with autism. While the general population may have team sports, athletic motivations, and natural social play groups, we don’t always have those same amenities and possibilities in the youth population with autism.

This is one reason why the population of kids with autism has a 7% higher rate of obesity than the general population. While the end goals are the same for both sets of kids, the approach needed to get there may be very different. The same goals, as applied to our kids with autism may read something more like this:

1.) Make the learning process easier to provide better understanding.
2.) Use different prompts that promote habit formation, instead of just following commands.
3.) Find the right motivation that will get your child started, and help them to keep going.
4.) Finally, measure progress so that you know where you started, and where to go from that point on.
Sound familiar? That’s Applied Behavioral Analysis, as applied to exercise.

ABA Simplified for Autism Exercise
Applied Behavioral Analysis, ABA, is the practice of using rewards and consequences as behavioral reinforcement to encourage specific actions. ABA therapy goes much more in depth than that, but following basic principles can be important tools when planning exercise routines for children with autism. Here are the basic elements of ABA, as applied to exercise:
1. Making the learning process easier: ABA breaks actions down into basic building blocks and as the child masters a skill or motion, the action is made more difficult.

2. Different and Better Prompts: Physical and verbal prompts can both be used to help the young athlete work through new skills.

Autism-Exercise-PTA-Main-Background3. Finding the Right Motivation: Positive Reinforcement (rewarding good actions, instead of punishing bad actions) is used to encourage activities the young athlete likes that are also beneficial to his or her health.

4. Progress is Measured: Another important step is to measure the progress your child is making in his or her skill level and change the plan according to fitness goals.

5 Exercises for Everyday Fitness

We’ve developed a special, free e-book with 5 examples of appropriate exercises for kids with autism. You can get that instantly here.

Good luck with these exercises and get creative with making the exercises a little more complicated as they become too easy.