My First Multiple Sclerosis Symptoms – What were yours?

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My First Multiple Sclerosis Symptoms

I started to notice that something was wrong in October, 2012. This is a brief introduction to my experience with MS and the first symptoms that led to my diagnosis.

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Multiple Sclerosis – what are the symptoms of MS? Which do you have?

Multiple sclerosis awareness

Multiple sclerosis awareness

Multiple sclerosis (MS) can cause a wide range of symptoms and affect any part of the body. Each person with the condition is affected differently.

The symptoms are unpredictable. Some people’s symptoms develop and worsen steadily over time, while for others they come and go.

Periods when symptoms get worse are known as relapses. Periods when symptoms improve or disappear are known as remissions.

 

Most people with MS only have a few of these symptoms.

See your GP if you’re worried you might have early signs of MS. The symptoms can be similar to several other conditions, so they’re not necessarily caused by MS.

Fatigue

Feeling fatigued is one of the most common and troublesome symptoms of MS.

It’s often described as an overwhelming sense of exhaustion that means it’s a struggle to carry out even the simplest activities.

Fatigue can significantly interfere with your daily activities and tends to get worse towards the end of each day, in hot weather, after exercising, or during illness.

Vision problems

In around 1 in 4 cases of MS, the first noticeable symptom is a problem with one of your eyes (optic neuritis).

You may experience:

some temporary loss of vision in the affected eye, usually lasting for days to weeks

colour blindness

eye pain, which is usually worse when moving the eye

flashes of light when moving the eye

Other problems that can occur in the eyes include:

double vision

involuntary eye movements, which can make it seem as though stationary objects are jumping around

Occasionally, both of your eyes may be affected.

Abnormal sensations

Abnormal sensations can be a common initial symptom of MS.

This often takes the form of numbness or tingling in different parts of your body, such as the arms, legs or trunk, which typically spreads out over a few days.

Muscle spasms, stiffness and weakness

MS can cause your muscles to:

contract tightly and painfully (spasm)

become stiff and resistant to movement (spasticity)

feel weak

Mobility problems

MS can make walking and moving around difficult, particularly if you also have muscle weakness and spasticity.

You may experience:

clumsiness

difficulty with balance and co-ordination (ataxia)

shaking of the limbs (tremor)

dizziness and vertigo, which can make it feel as though everything around you is spinning

Pain

Some people with MS experience pain, which can take 2 forms.

Pain caused by MS itself (neuropathic pain)

This is pain caused by damage to the nervous system.

It may include:

stabbing pains in the face

a variety of sensations in the trunk and limbs, including feelings of burning, pins and needles, hugging or squeezing

Muscle spasms can sometimes be painful.

Musculoskeletal pain

Back, neck and joint pain can be indirectly caused by MS, particularly for people who have problems walking or moving around that puts pressure on their lower back or hips.

Problems with thinking, learning and planning

Some people with MS have problems with thinking, learning and planning, known as cognitive dysfunction.

This can include:

problems learning and remembering new things – long-term memory is usually unaffected

slowness in processing lots of information or multitasking

a shortened attention span

getting stuck on words

problems with understanding and processing visual information, such as reading a map

difficulty with planning and problem solving – people often report that they know what they want to do, but can’t grasp how to do it

problems with reasoning, such as mathematical laws or solving puzzles

But many of these problems aren’t specific to MS and can be caused by a wide range of other conditions, including depression and anxiety, or even some medications.

Mental health issues

Many people with MS experience periods of depression. It’s unclear whether this is directly caused by MS or the result of the stress of having to live with a long-term condition, or both.

Anxiety can also be a problem for people with MS, possibly because of the unpredictable nature of the condition.

In rare cases, people with MS can experience rapid and severe mood swings, suddenly bursting into tears, laughing, or shouting angrily for no apparent reason.

Sexual problems

MS can have an effect on sexual function.

Men with MS often find it hard to obtain or maintain an erection (erectile dysfunction).

They may also find it takes a lot longer to ejaculate when having sex or masturbating, and may even lose the ability to ejaculate altogether.

For women, problems include difficulty reaching orgasm, as well as decreased vaginal lubrication and sensation.

Both men and women with MS may find they’re less interested in sex than they were before.

This could be directly related to MS, or it could be the result of living with the condition.

Bladder problems

Bladder problems are common in MS.

They may include:

having to pee more frequently

having a sudden, urgent need to pee, which can lead to unintentionally passing urine (urge incontinence)

difficulty emptying the bladder completely

having to get up frequently during the night to pee

recurrent urinary tract infections (UTIs)

These problems can also have a range of causes other than MS.

Bowel problems

Many people with MS also have problems with their bowel function.

Constipation is the most common problem. You may find passing stools difficult and pass them much less frequently than normal.

Bowel incontinence is less common, but is often linked to constipation.

If a stool becomes stuck, it can irritate the wall of the bowel, causing it to produce more fluid and mucus that can leak out of your bottom.

Again, some of these problems aren’t specific to MS and can even be the result of medications, such as medicines prescribed for pain.

Speech and swallowing difficulties

Some people with MS experience difficulty chewing or swallowing (dysphagia) at some point.

Speech may also become slurred, or difficult to understand (dysarthria).

4 Tips for Managing Multiple Sclerosis

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There are many symptoms of multiple sclerosis—weakness and muscle fatigue, bowel and bladder problems and extreme tiredness—can make living with MS extremely difficult. Even if you have a few bad days, it doesn’t mean all of your days will be hard to manage. In this video, Melissa Pulver-Bloch, MD, Renown Institute for Neurosciences provides four helpful tips to you help manage MS.

Multiple Sclerosis – Some Less Common Symptoms of MS

Less Common Symptoms  of Multiple Sclerosis

Less Common Symptoms of Multiple Sclerosis

The National MS Society has produced a brilliant video on the less common symptoms of MS.

Check it out below!