survey

Leave a comment Posted on Arthritis, Fibromyalgia, Pain Management, Patient Talk, Research

Do you suffer from chronic pain? Take part in a survey for the University of Colorado and you could be entered in a draw and win $50


University of Colorado Denver

University of Colorado Denver

The University of Colorado Denver is running some interesting research with people who suffer from various types of chronic pain including fibromyalgia.  Jessica Payne-Murphy, who is running the survey, has written a short post outlining the scope of the study!

Payne-Murphy writes “You are invited to take part in a research study: Acceptance-Based Factors in Chronic Pain: A Comparison Between Fibromyalgia and Low Back Pain Patients in an Internet Support Group Sample (COMIRB No: 13-3263). This study is being led by Jessica Payne-Murphy, M.A. at the University of Colorado Denver.

The study involves answering a series of online questionnaires designed to increase understanding of chronic pain. We are inviting participants (age 18 and older) who have been and are currently managing low back pain or fibromyalgia for at least 3 months to complete an online survey. It is anticipated that this survey will take approximately 30-45 minutes of your time to complete.

If you choose to participate in the study, you will have the opportunity to enter a drawing for one of up to ten $50 Amazon.com or Amazon.eu gift cards.

In addition, we request that you forward/share the survey link to other individuals with chronic low back pain or fibromyalgia who may wish to participate in this study so that they may have the opportunity to assist us in gathering information about chronic pain and online support groups.”

Please click on the following link if you are interested in learning more about the research study:

https://redcap.ucdenver.edu/surveys/?s=GCZEdEQBgd

If you have any questions or concerns, please contact Payne-Murphy at at https://www.facebook.com/UCDChronicPainResearchStudy?ref=hl

Or use the comments boxes below to ask her any questions.


Leave a comment Posted on Autism, Patient Talk

A survey for parents of ASD children. Drop round and find out more about this important research!


Northumbria University

Northumbria University

Laura Czekirda of Northumberland University is conducting some research into parents of children with autism! Czekirda says “I am currently recruiting participants for my study which is for my dissertation. I am recruiting parents who have a child with autism 3-19 years old to assess the affect locus of control has on their health and well-being.

I am recruiting for my study which involves assessing the psychological and health correlates of locus of control, the feeling that you are in control of your life in parents of children with Autism or Down syndrome, and parents of typically developing children. For more information, and to complete the short survey, please use the following link:

https://www.surveymonkey.com/s/LZ_Caregivers

This study and all its procedures have been approved by the Faculty of Health and Life Sciences Ethics Committee at Northumbria University.
Please forward this to your friends. Your contribution to this extremely worthwhile project is gratefully received.”

If you have any questions about the study please use the comments box and we will ask Ms Czekirda  to respond.


Leave a comment Posted on Patient Talk

Caregivers of Patients needed by the University of Oxford to take part in a survey about the health related web sites!

Oxford University

Oxford University

Patient and carers experiences of health can be an important source of information to other people with similar concerns. Traditional health information has been based on facts and figures, not the experiences of other patients or carers of people with similar conditions. Today health websites can contain traditional health information, accounts or stories of people’s experiences of health, blogs about health and discussion boards. It is important to understand what impact these health websites have on patients and carers.

A research team in the University of Oxford are researching the effects of sharing online patient and carer health information. The wider aim of this research is to find out how the NHS and other health information providers should incorporate people’s experiences into online health information in an effective manner.

Just click here to take part

https://oxforddph.qualtrics.com/SE/?SID=SV_54JzaA3Ub5gWBG5

One component of this research seeks to pilot-test a questionnaire to measure the impact of using health-related websites. This measure will be used in a clinical trial to assess the impact of websites containing personal experiences. It is therefore extremely important to establish if this questionnaire is suitable for its intended use. The questionnaire will also be available for use in future research.

The development of the e-Health Impact Questionnaire is being carried out in collaboration with a number of study groups in Northumbria, Oxford and Scotland. The Programme is funded by the National Institute for Health Research.

Can you help with this research?

The research team are asking carers who are aged 18 or over and have access to the internet to complete this questionnaire. They must also live in the United Kingdom.

In this study a ‘carer’ is a family member or friend who provides care in terms of help and support to a person due to their health condition. Examples of care are:

  • Personal care such as help with dressing or washing.
  • Healthcare such as help with medications or medical equipment.
  • Household duties such as cooking or shopping.
  • Physical care such as lifting or helping with walking.

 

What will taking part in this study involve?

Those wishing to take part in the study will be asked a series of questions about their general views of online health information. They will then be asked to spend 10-15 minutes browsing a care related website and answer a series of questions relating to that website. Where participants provide an email address, they will be sent an email after a period of two weeks asking them to repeat a section of the questionnaire again. This is to test if they questions are reliable and accurate over time. Completing the questionnaire should take approximately 20-25 minutes on two separate occasions.

How can I take part?

Please click on the following link to access the questionnaire: https://oxforddph.qualtrics.com/SE/?SID=SV_54JzaA3Ub5gWBG5

If you would like to contact the research team, you can do so by emailing Laura Kelly at laura.kelly@hmc.ox.ac.uk