survey

Leave a comment Posted on April 28, 2015April 28, 2015 Autism

The University of Indianapolis is looking for parents of children with autism to help with some survey research. Please do take part!

University of Indianapolis Autism Research

My normal preface to guest posts like this is to explain that I’m both a parent of a child with ASD and I’m an ex-market researcher which is why I like to help promote academic research into autism.

So there. I’ve said it.

Anyhow Jessica Mueller of the University of Indianapolis is running a survey with people who have children and she would like your help.

Mueller writes “Hello All:

Please read and share the following information and link about my dissertation research!

My name is Jessica Mueller, M.A., and I am a 4th year clinical psychology doctoral student conducting my dissertation research through the University of Indianapolis. I would like to invite you to participate in my online survey. This study aims to investigate family feelings, sibling relationships and parental stress. As a parent, you will be asked to consider both positive and negative feelings in the area of family interactions. The survey is estimated to take 30 to 45 minutes to complete, and can be accessed via the link at the bottom of this notice.

To be eligible for participation, individuals must be the parent/guardian of at least two children between the ages of 5 and 17. One of the children in the age range of 5 to 17 must be diagnosed with autism spectrum disorder.

As a thank-you for completing the survey, you can elect to enter a drawing to win one of two $25 Amazon gift cards. All collected information will remain anonymous and confidentially stored. No identifying information will be collected from you. You may contact me with any questions (muellerjk@uindy.edu). Please feel free to share and post this study information with friends and other acquaintances. Thank you!!

Here is the link to the survey:

https://uindy.co1.qualtrics.com/SE/?SID=SV_dcjU5wVlHb6g8mh

Alternatively if you have any queries you can use the comments box below and we will ask Ms Mueller to reply.

Thanks for your consideration in advance.

Leave a comment Posted on November 22, 2014November 21, 2014 Autism, Patient Talk

Autism and Parenting – how does parenting influence the emotional development of children with autism? Please help students at West Virginia University with some important research.

West Virginia University

As many of you know I come from a survey research background. So am aware of both value and the pitfalls of research. That being said more needs to be done in and around the world of autism. Indeed I consider surveys to be a great way of giving people in the ASD community a voice.

I few days ago I was contacted by some students studying the impact of parenting on the emotional development of children with ASD.

The study is being conducted by This study is being conducted by Hilary Bougher and Amy Root in the Department of Learning Sciences & Human Development at West Virginia University.

Bougher and Root write:-

“ATTENTION PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER BETWEEN THE AGES OF 3 AND 11: I am currently conducting a study examining how parents of children with autism promote their children’s emotional development. We are interested in examining the unique experiences and ways in which parents of children with autism respond to their children’s emotions and teach them to regulate their emotions. If you are a parent or guardian of a child aged 3 – 11 years with autism spectrum disorder, you may be eligible to participate in a West Virginia University IRB-approved study on parenting. We are interested in learning about the parent-child interactions of parents of children with autism between the ages of 3 and 11. If you are eligible to participate, you may opt into a drawing to receive a $100.00 gift card for completing a 45-minute survey. Surveys can be completed online. Please note, your answers will be completely anonymous and no identifying information will be linked to your answers. IRB Approval is on file for this study. ”

You can take part in the study by following the link here.

Leave a comment Posted on November 20, 2014November 19, 2014 Autism, Research

Looking for parents of children with autism! Please help a student at The Irish Centre for Autism and Neurodevelopmental Research with a survey.

Over the last

Irish Centre for Autism and Neurodevelopmental Research

year we have help promote a number of research projects run by the Irish Centre for Autism and Neurodevelopmental Research (ICAN) . Which is part of National University of Ireland.

A few days ago one of their PhD students, Arlene Mannion, contacted us to ask for some assistance from our readers with a survey she is running on sleep problems or gastrointestinal symptoms in children with autistic spectrum disorder (ASD).

It would be great if you could help her with the research as we think it may prove very useful to all the ASD community going forward.

Mannion writes “Does your child with autism spectrum disorder (ASD) experience sleep problems or gastrointestinal symptoms?

Some children with autism have both sleep problems and gastrointestinal symptoms, while other children have one of these issues or none at all. The Irish Centre for Autism and Neurodevelopmental Research (ICAN) in National University of Ireland, Galway is interested in hearing about your experiences with your child or adolescent aged 3 to 17 years with autism. We are interested in understanding how sleep problems and gastrointestinal symptoms affect both child and parent. Even if your child doesn’t have sleep or gastrointestinal problems, we can still learn a lot from your information on why some children have these issues and others do not. If you wish to participate, please use the link below.

https://docs.google.com/forms/d/1rdm3IrSWzZcrG14jezW1FjrjoF5T62zUH4cX26ecs2k/viewform?c=0&w=1

If you need any more information on the survey you can contact Ms Mannion at a.mannion3@nuigalway.ie.

Thanks very much in advance!

Leave a comment Posted on November 4, 2014November 4, 2014 Autism, Patient Talk, Research

“The Effect of Caregiver Stress on Prospective Memory.” Please help a student at Northumbria University which her research into the impact of stress on parents of children with developmental disability

Northumbria University

As the parent of a child with autism I am always keen to promote research into the area of developmental delays. We were contacted by Lisa Bartle of Northumbria University in the UK who asked us post this on her behalf.

“Hello, I am a final year Psychology Student at Northumbria University. As part of my final year project I am looking for people to take part in a short, online study looking at the effects of caregiver stress on prospective (everyday) memory. The study should only take 10 minutes to complete. To take part you must be 18 years or older and a parent of a child aged between 3-19 years whom lives at home full time. If you would like to take part please click on the link below. The study and all procedures have been approved by the Faculty of Health and Life Sciences UG Ethics Committee”. Please take the survey here.

Bartle is looking for parents of children “with a developmental disability (Autism, Cerebral Palsy or Sensory Disorder)” to take part in the survey.

As some background the research “will compare levels of stress between caregivers of children with developmental disabilities and caregivers of typically developing children, and we will also consider the effect of care-giving stress on prospective memory. The study will also assess whether negative coping behaviors such as smoking and use of alcohol might underlie the negative impact of caregiver stress on memory”.

Thanks very much for your interest. You can access the survey here.

Leave a comment Posted on September 15, 2014September 15, 2014 Autism, Research

The Caldwell Foundation would like to know more about communication difficulties faced by people with autism!

The Caldwell Foundation

Can you help? We have been asked to post the following by The Caldwell Foundation.

They share “The Caldwell Foundation is a small charity providing communication support to people with autism who experience distress and isolation in their lives because of their communication difficulties. Do visit our website at http://thecaldwellfoundation.org.uk

We have just launched a survey to find out more about the communication difficulties experienced by people with autism and by those who care for and work with them.
The survey is very short and would really help us get our charity up and running.
We’d love to hear your views and experiences. Just click on the relevant link below.

https://www.surveymonkey.com/s/AUTISM-AND-COMMUNICATION-PARENTS-AND-CARERS

PS As part of the survey we have a prize draw in which recipients could win a copy of Phoebe Caldwell’s DVD Learning the Language AND a copy of her latest book, The Anger Box!!!”