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3 Comments Posted on October 14, 2013 Patient Talk

Who and what is the future of patient blogging?

Blogging

Erm……….. well actually you. Have you ever thought about being a patient blogger?

Sorry let me explain. I’ve been involved in blogs and social media for about six years. In fact I was introduced to the concept of blogging by a cheerful idiosyncratic Irishman. He was (and is) a great proponent of the idea that blogging offers us all an opportunity to become what he called “citizen journalists”. All of us could be a press baron from the comfort our own homes!

At that time there were a huge number of patient and healthcare blogs active on the web. While there are still plenty around the amount of activity seems to have decreased. Which in my view is a shame because they can really give a voice to the needs of the patient community.

Indeed one of the reasons I run this blog is that I am the father of an autistic child and use this blog to raise autism awareness. Between you and me I was a bit disappointed by the lack of response to a recent post on autism blogging which requested links to autism blogs. As you can see pretty much nothing came in. You can see the evidence here https://patienttalk.org/?p=933.

So, I hear you cry, what on earth is the point on another moaning post on the state of the blogosphere.

Easy. I’d like to see more patient blogs. So I’ve decided to do something about it.

I’m asking my readers if they want to submit a guest blog to the site. We’ve run this sort of thing before. You can read one on National Arthritis week from Catherine Manning here https://patienttalk.org/?p=1015.

What sort of topics are we interested in?

Well pretty much anything that looks at the world from a patient/healthcare point of view. If you have a blog we would be delighted to publicise it. Or you can just tell your medical story. An opinion piece about a medical condition would be great. Maybe you have found yoga helps your RA and want to share with others. As we say the options are pretty much endless.

So please consider this an invitation to provide a guest post for this blog. If you are interested in more information why not drop us an email at patienttalkblog@gmail.com. We can chat a bit more about your interests and ideas.

Many thanks in advance.

1 Comment Posted on September 12, 2013September 12, 2013 Patient Talk

Out of Step – an online marketplace where people with disabilities can find a path to economic success .A guest post from Nikki Zimmerman.

Welcome to a guest post from Nikki Zimmerman of Out of Step. Out of Step is a revolutionary way of assisting people with various disabilities to sell their skills and enter the workplace. PatientTalk.Org are proud to suuport what we believe to be a fantastic initiative for the disabled community.

Nikki is the founder of Out of Step (http://www.outofstep.com/), an innovative online marketplace where people with disabilities can find a better path to economic success by selling products or services. As the mother of a daughter with a disability, Nikki saw the need for a modern tool to employ each individual’s talents and strengths rather than focus on the disability. Nikki is the author of “A Life with Riley” and lives in the Northwest USA

“I feel like the Out of Step tool has had this tremendous positive effect on my life, and on me. I feel motivated, I am happier, I feel more confident and worry a lot less.” – Christy Lloyd, Portrait Artist and a Member of Out of Step.

As the founder of Out of Step, a new, free website where people with disabilities can offer services or sell products, I get inspiring emails like this almost daily. When I dreamt of a marketplace for those with disabilities, I knew it would be an amazing place for people to showcase their skills and earn money. But it’s proved way more valuable – we’re motivating individuals to move forward and believe in possibilities again…or in some cases for the first time.

Our team launched the Out of Step tool because we believe people with disabilities can and do want to work. We’re proudly “out of step” with the notion that people with disabilities have to continue within a nearly 70 percent unemployment rate. On our website, members with a disability show their industriousness every time they create a profile to sell a product or service.

Through the Out of Step tool, consumers can now find all sorts of great things, from books to industrial tools and dating services to computer help…all by people who happen to have a disability.

We have a seller in Tennessee providing rental dirt track karts to the general public. The karts can be used on a half mile contoured dirt track. There is nothing like it in the US. 15 minutes of absolute fun. Oh yeah – and he is blind.

Another member created a company called Wheel New York, which is creating a mobile accessibility app. As a person in a wheelchair, he knows firsthand the challenges of getting around the city.

The inspiration for Out of Step came from my daughter Riley, who was disabled but still wanted to have purpose. Her passion was folding laundry, and our family dreamed of helping her open Riley’s Laundry Service. While her illness didn’t allow that to come to fruition, my goal is to provide a solution for others with a disability.

Before launching, we reached out coast-to-coast to connect with the disability community – both those with disabilities and the agencies that serve them. We heard two important themes about the search for economic opportunity:

People with disabilities want real solutions that are truly designed for their participation. No more platitudes and feel good programs.
Many of the agencies that work with people with disabilities are lacking the tools necessary to provide those real solutions. Rather than take someone on unrealistic job interviews, they want modern, innovative options. And in a difficult, transitioning economy, their work has become so much more challenging.

The Out of Step tool was created with one thing in mind: to help people with disabilities find better economic success. We believe in each and every person with a disability – and that showcasing their skills and talents will change the way people with disabilities are seen by all.