“We Feel ” Using social media to measure community mental health.


Mental Health around the world!

Mental Health around the world!

As regular readers of this blog know I am fascinated by the use of social media to promote health and wellness. So you can imagine how interested I was in the just released We Feel Twitter tool.

Black Dog Institute and Commonwealth Scientific and Industrial Research Organisation (CSIRO) have just released ‘We Feel’ an product which analyses the words from all those millions we send outs to show a real-time view of our emotions.

“So what” I hear you cry. Sounds a bit of a gimmick. Not so!

We Feel should be able to determine factors which cause emotions to fluctuate over time. These could be social, economic and environmental factors such as weather, time of day, news of a natural disaster or political instability.

From a health point of view We Fell should be able to increase understanding of community mental health and assist in the sensible allocation of relevant services.


Professor Helen Christensen who heads up Aussie based Black Dog Institute thinks that ” We Feel represents the world’s first foray into understanding how social media can be used to detect poor mental health and observe shifts according to time and place”

Christensen takes the view much of the data we use is well past its sell by date! She adds “Should the real-time data gained using this incredible tool prove accurate, we will have the unique opportunity to monitor the emotional state of people across different geographical areas and ultimately predict when and where potentially life-saving services are required.”

So how does it work?

“We Feel looks for up to 600 specific words in a stream of around 27 million tweets per day and maps them to a hierarchy of emotions which includes love, joy, surprise, anger, sadness and fear. You can explore emotion and trends on a minute by minute time scale, across locations around the globe and gender to further refine the result” says Dr Cecile Paris, Research leader in language and social computing at CSIRO’s Digital Productivity and Services Flagship told PatientTalk.Org.

If you want to have a look at We Feel then drop round to http://wefeel.csiro.au.

Black Dog Institute have produce a rather useful FAQ for We Feel which we share below.

What is We Feel?
We Feel is a tool developed by CSIRO for The Black Dog Institute that aims to verify whether social media can accurately map emotions of human populations. The online tool passively analyses a ‘massive pipe’ of Tweets up to 32,000 tweets per minute on average, or around 27 million tweets per day, CSIRO uses language-processing techniques to look at the English words people use in their Twitter posts. We Feel then maps these words to a hierarchy or ‘wheel of emotions’, offering a summary view of the prevalence of different emotions across the world.

What is the reason for the project?

The aim of this project is to validate the use of Twitter as a tool for measuring mental health of a “community” of people.

Tweeting in Anger

Tweeting in Anger

In addition to providing real time population data, this tool will also help us to uncover where people are most at risk of poor mental health and how the mood and emotions of an area/region can fluctuate over time. We Feel will also help us to understand how strongly our emotions are related to social, economic and environmental factors such as the weather, time of day, day of the week, news of a major disaster or a downturn in the economy. This information is of vital importance to the health services industry who can potentially use it to both monitor community mental health and predict where/when services need to be assigned.

Having access to real-time data is also of enormous benefit to mental health researchers. Currently, research and potentially life-saving public health programs are based on statistics that may be years old. Further to this, our current data sets are based on snapshots of a particular place and time. Twitter offers a large and fast sample of information that could hold the key to a real-time view of our emotions.

Finally, this project is supporting Black Dog Institute researchers to gather evidence on role of social media in the development of more effective public health campaigns as well as the evaluation of existing campaigns.

What are some of the limitations of Twitter for big data analytics?

The main limitation of using Twitter is that it provides only limited information about the people tweeting. We Feel currently makes assumptions on the gender (using people’s names) and location (using time zones) of tweeters. We would like to provide other demographic breakdowns (e.g. age, profession) in the future but this currently this information is not available.

They also share a fair bit of more technically orientated information which may be of use to researchers and potential users.

How does We Feel work?

In order to create ‘We Feel’, CSIRO researchers had to create an emotional map. To do this they set up a crowd-sourcing task on the internet and asked people to look at a sample of 600 words in our vocabulary that relate to emotions and asked them 1. Is the word an emotion? and 2. Which emotions does the word best correspond to?

Tweet with Joy

Tweet with Joy

The researchers then plotted these emotions across a four quadrant scale and selected colours that corresponded to the emotions (Yellow= Surprise, Green = Joy, Red= Anger, Blue= sadness for example) in order to design the user interface.

CSIRO researchers wrote several data mining applications to analyse the Tweets, which look for key words associated with emotions, use geographic location where available or determine it based on time zone and allocate gender based on an analysis of Twitter names.

What types of emotions are analysed by the tool?

The emotions are based on US Psychology Professor W. Gerrod Parrott’s standard list of basic emotions including love, joy, surprise, anger, sadness and fear. Each of these emotions is then segmented further to a list of more specific secondary emotions – for example, the primary emotion of sadness includes suffering, disappointment, shame, neglect and sympathy.

We Feel allows researchers to explore each of these emotions and its sub emotions on a segmented coloured wheel and look at its prevalence over time. Users can also explore emotions across different locations around the globe to further refine the results.

 Can We Feel analyse Tweets in languages other than English?

We Feel currently only analyses Tweets in English but it is possible to translate the technology into other languages with further development and research.

 What is the output of the We Feel initiative? Will there be a report issued from BDI/CSIRO based on the insights found from the tool?

There will be a report issued to the NSW mental health commission at the conclusion of the project. Researchers have only just started analysing the signal, and will need a backlog of a few months of data before they can verify patterns and trends.

 Is this spying or invading people’s privacy?

We Feel uses publically available information from tweets people post on Twitter. It doesn’t identify individuals, analyse direct messages, monitor private accounts or protected tweets. On Twitter everything you post is public (by default) and is therefore is available to be analysed. We Feel offers a summary view of the prevalence of different emotions across the world.

Why doesn’t this tool analyse emotions from Facebook posts?

Whilst Facebook has a lot of information about who we are and how we feel, each Facebook account has strict privacy settings so the information in posts isn’t necessarily available and thus suitable for this kind of analysis.

How do you identify emotions?

We Feel uses a large vocabulary of emotion terms that were compiled from multiple sources, including the ANEW and LIWC corpora, and a list of moods from LiveJournal. We conducted a crowdsourcing task (using Crowdflower) to organize these terms against Parrott’s hierarchy of emotions. The emotions are color-coded using a dataset of affective norms provided by the Center for Reading Research at Ghent University.

How do you identify gender?

We determine gender by inspecting the user name of a twitter account, and comparing it against large lists of male and female names obtained from the BabyNameMap project.

 How do you obtain the tweets?

We Feel has three sources of tweets: a random 1% sample from the public Twitter API (affectionately known as the gardenhose), a random 10% sample from GNIP (called the decahose), and a third source that specifically monitors the public Twitter API for a large vocabulary of emotion terms (we call this the emohose).

 

What volume of tweets do you handle?

The gardenhose delivers about 900 thousand English tweets a day, of which about 250 thousand contain emotion terms. The decahose predictably delivers ten times that amount. The emohose delivers about 27 million English tweets a day, all of which contain emotion terms. That averages out to 19 thousand tweets per minute, though this fluctuates quite widely.

How do you handle the tweets?

We Feel relies heavily on the Amazon AWS infrastructure to deal with this volume of tweets. We use several EC2 instances to capture tweets, annotate them (with emotions, gender and rough location) and build up the summaries that are needed by the visualization. Communication between these instances is achieved with Kinesis: a simple yet highly scalable pipeline through which we funnel our tweets and annotations. This allows anything consuming the data to be freely restarted and rescaled without missing a beat (or tweet). The tweets are backed up to S3 and then archived to Glacier for cold storage and summarized into DynamoDB tables to be queried by the web application. We also use Cloudwatch to monitor everything.

How was the web interface constructed?

The We Feel website was made using AngularJS (from Google) and Bootstrap (originally from Twitter). The visualizations were constructed using D3, which is an open-source JavaScript Library created by Mike Bostock.

 

These excellent frameworks have allowed us to construct a highly responsive web application that should be able to run on any modern browser, without any annoying dependencies like Flash or Java. It has been tested most extensively on Chrome.

Can I use the information you are collecting?

Yes! Along with the visual explorer, We Feel provides a table builder and a REST API that researchers and developers can access. We hope you try these out, and find new exciting ways to explore and mash-up the data.

This data is shared under the CSIRO Data license, meaning that you can use the data royalty-free for any non-commercial purpose. We only ask that you get in touch with us before attempting any large-scale data collection (there are rate limits in place), and that you clearly acknowledge us with a link back to the wefeel.csiro.au website.

 

You’ve Got This – How a new social media web site called Healthline help a person with multiple sclerosis. A guest post from Jeri Burtchell


Healthline

Healthline

It was March 4, 1999 and I was driving through the countryside on my way home from the University of Florida in Gainesville. I had left my infant son in my mother’s care while I’d gone there for a second opinion, referred by my neurologist. He had been treating me for what he said was “possible MS.”

I clung tightly to that word “possible,” knowing it meant there could be another explanation. Some other reason my legs had betrayed me, leaving me nearly unable to walk. “It’s got to be a pinched nerve,” I kept telling myself, even though an MRI had revealed a lesion on my cervical spine.

“If you’re here to verify what your doctor thinks,” said the head neurologist at Shands Teaching Hospital, “then I completely agree with him. I’ve looked over your records, the films, etc. and he was spot on,” he said, almost as if we were talking about a ref’s call on an NFL game and not about my life. “You’ve definitely got multiple sclerosis.”

Then he grabbed the lapels of his white lab coat and gave a little shrug as if to say, “What are ya gonna do?” I think he meant it sympathetically, but it struck me as odd. He opened the door to leave and, glancing back, he smiled.  “Good luck with that,” he said.

I had come there by myself, sure the expert would think my doctor was a quack. In hindsight I wish I’d have taken a friend. As I drove home, fear and worry began poking at the numbness of my denial until they finally broke through. I could no longer hold back the flood of emotions.

I pulled over on a lonely stretch of two lane highway and shut off the engine. No other cars around, all I heard was chirping birds in the nearby woods. I got out of the car and sat on the hood. And I cried. Sobbing and full of mourning for a life that had just ceased to exist. I had never felt such loneliness and fear. Everything in my life had changed. Everything.

Was I going to die from it? Worse yet, was there going to be endless suffering? I had a baby who was never going to know a healthy mother. What was I going to do?

I didn’t have a computer and Google had only been around for six months. We didn’t have a support group in our rural community. I didn’t know anyone I could reach out to. There was nobody who said “You’ve Got This.”

Flash forward. Now it’s been almost 15 years to the day since I cried all alone in the woods. So much has changed. If I had the chance to go back and tell my newly diagnosed self what things would be like 15 years later, I’d have told myself to get on with the business of living. I’d be strong enough to deal with this disease no matter what it threw at me.

When Healthline asked me to participate in a video campaign to share my message of hope with others who are just facing their MS diagnoses, I jumped at the chance. What I wouldn’t have given for this kind of resource back in 1999.

So I made my video and tried to say all the things I wished someone would have told me. I emphasized that you need to take control of this disease. Don’t let anyone make your decisions for you, and learn everything you can.


It is now part of a collection of inspirational YouTube vignettes that Healthline is sharing in their You’ve Got This campaign. If you’ve been living with MS, you can share your message of hope, too. Just make a short video about what motivates you to stay positive with MS. Imagine you’re talking to a friend who just got diagnosed. What would you say? Then upload it to YouTube.com and submit the link to Healthline by clicking the big blue “Add Your Video” button. Your message will join a host of others in an ever growing collection of inspiration.

But it’s more than that. Healthline has partnered with the National MS Society and MSWorld to raise money and awareness. For every video that’s submitted, Healthline will donate $10 to the NMSS. So do something special, and empowering–and help raise money at the same time.

So much has happened since that dark day, 15 years ago. I found a therapy that works for me and I’m taking care of myself. My son is a sophomore in high school now, and the most compassionate person I know. I’ve been speaking as a patient advocate at events around the country and I’ve started a new career as a freelance writer, covering the MS News for Healthline. So many things I never could have imagined — all positive — that have come after my diagnosis.

So if you are one of the 200 people in the US this week who just heard the words, “You’ve got MS,” don’t let it be your darkest day. Just remember, you’ve got this!


HealClick – find out about this new social media website for patients to discuss healthcare – a guest post by Rachael Korinek


HealClick

HealClick

Welcome to our latest guest post on healthcare and social media

Today Rachael Korinek introduces us to to HealClick and new social media website for patients to discuss healthcare issues.

Korinek shares “HealClick is a brand new and completely free website created for patients and by patients. This unique hybrid of social network and medical forum matches people based on shared details like diagnoses, symptoms, and treatment responses. This makes it much for patients to share and compare treatment experiences. The data that you and other patients provide will be made completely anonymous so it can fuel new research for autoimmune and neuroimmune conditions like Fibromyalgia, Rheumatoid Arthritis, Lupus, Lyme Disease, ME/CFS, and so many others.

Sign up at www.HealClick.com

Help us grow at www.indiegogo.com/projects/revolutionizing-patient-sharing

This project was created by a team of patients in 2013. The co-founders are both chronically ill with multiple neuroimmune and autoimmune conditions. This unique perspective has allowed them to create a site that truly caters to the needs of patients.

Forums are extremely helpful  when researching treatments and for connecting with other patients. But, what about when you can’t find anyone your age?  Or when it seems like no one shares your set of co-conditions and symptoms? What about when you don’t respond normally to standard treatments? Come on over to HealClick.

Our unique matching feature allows you to focus on what’s important; your health. The site factors in your diagnoses, symptoms, treatments tried, and treatment responses and then tells you how similar you are to every other member. No more guessing whether you and another member share medical details in common, just check the match percentage under their profile picture.

Sometimes networking with people with different conditions can be just as beneficial as talking to someone with the same illness. We currently have patients representing over 20 different neuroimmune, autoimmune, and related conditions. Since we have so many conditions represented on our site you can also see how patients with other diagnoses are managing similar symptoms. There are many symptoms like fatigue that are common with multiple conditions and we believe that patients can learn from these other patients even though they might not share a diagnosis.

By combining information from your medical matches and ideas from patients with other conditions we believe that you will be better able to take charge of your health care. Come sign up, make meaningful connections for social support, share your treatment reviews, and compare your results with the results of other patients. Who knows, you might even end up with some new ideas to bring up at your next appointment with your Doctor!

Whenever people share their experiences and network with other patients online they generate huge amounts of data.  Previously, the majority of this valuable health data has gone unused. What if instead, all of this data could be used by medical researchers to help diagnose, treat, or even cure us? That’s HealClick’s goal. But don’t worry, we take pride in protecting patient privacy every step of the way. The data that you share on the site will never be made public and will be completely stripped of all identifiers before being shared with researchers. Check out the link for more information about HIPAA-compliant data security.


We are so excited to share this technology with you. We also want you to know that we pride ourselves on being there for patients.  I don’t have to tell you that having quality social support is important. Chronic illness can be incredibly isolating and hard for other people to relate to or understand. The founders as well as the entire HealClick team all patients. We understand what you’re going through on a personal level and we strive to make HealClick a place where you can find support on bad days and celebration on your good days.

Come join us at www.healclick.com. We can’t wait to meet you!

Still have questions? Check out our blog for answers to 5 frequently asked questions:  http://blog.healclick.com/uncategorized/we-got-answers

Healthcare Feedback – How easy is it to really communicate with your healthcare providers? Social media and healthcare!


Healthcare feedback

Healthcare feedback

I need a check-up.

Well actually my wife tells me I need a check-up – so that is much more serious.    Middle age and Christmas excess leads to thoughts of diabetes but that is another matter.

At my primary care provider (family doctor) it is pretty straight forward to make an appointment online.  Though I have to wait 2 weeks to see my GP which seems a bit long.  But such is the price we pay for socialised medicine.

But the purpose of this post is not to whine about the UK’s NHS waiting lists.  (Though I could if I wanted to!)

Rather it is to look at the ways that our healthcare providers allow us to communicate with them.   My PCP allows me to make appointments with an online booking system but otherwise

Healthcare feedback

Healthcare feedback

communication is via telephone and letter rather than email.  Even more irritating the PCP will often act as a gate keeper to communication with other more specialist services.   (Though this situation is improving in the UK it still has a long way to go).

So what am I getting at?   Well it strikes me that in these days of social media and apps that healthcare providers (doctors, hospitals etc)  not having even embraced email seems more than a bit silly.

Indeed as regular readers will know our son is autistic.  This means that we have to attend meetings with various people across the provider world.  In one of these meeting I asked if we could communicate by email.  She actually looked a bit shocked that a “client” should want to be able to communicate quickly and efficiency.    Naturally she turned down the request briskly.    That was less than a month ago and I dread to think what not being able to communicate via email has cost the British tax payer.   I’ve spend time on the phone and received costly letter (as has my doctor) when a 30 second email could have sorted everything.

Healthcare feedback

Healthcare feedback

So I’m wondering what the situation in like in different countries.  Do feel free to share your experiences of what works best (or doesn’t) in your country?  How do you communicate with your healthcare providers and how might communication be improved?  Do you use apps and social media?  Would you like to?

As regular followers of this blog may know I have spent quite a large part of my career in healthcare market research.  This sort of explains some of the pictures adorning the blog.  They are of a new way to collect feedback by users of a hospital local to me.

So I’m also wondering what you think of this kind of market research taking place in hospitals.  Do anonymous research surveys have their value or are they just an excuse for Public Relations puff from the hospital’s marketing department?

Use the comments box below to share your views.

Thanks in advance.


The Quantified Self Movement. Can you shed those pounds with the aid of the internet?


EyeA couple of mornings ago I received a text from my wife with a suggestion for a blog post.   She had been reading a magazine on the train which carried an article on the Quantified Self Movement.  Knowing my interest in social media and health she immediately thought of me.  Which is nice!

As regulars know I am firmly of the view that social media has the potential to (and in some cases actually is) revolutionising healthcare.  Often without the healthcare industry (or even the technology industry) being aware of the change.  For a previous blog on social media and health please have a look at https://patienttalk.org/?p=585.

I have to confess that I’d never come across the term “Quantified Self Movement “before but after a few minutes goggling I was fascinated by what I read.   So I felt that a brief blog was in order.  The aim is to introduce my readers to the concept but also to get feedback on the effectiveness of the method.

The title of the blog links the Quantified Self Movement to weight loss but it has many other applications.

The idea is that we can use technology to collect data about our healthand use that data to monitor our own health performance.   And thus to optimise the effectiveness of any interventions.

A simple example is weight loss.  By monitoring food intake, exercise and weight changes it is possible to provide a frame work for long tern weight loss.  What these various types of technology (such as smartphone apps) can do is to actually quantify (make sense of) the information collected.  Because the information is bespoke to you it helps you develop an optimum weight loss strategy.   I’m sure you have seen plenty of runners with various bits of tech strapped to their bodies which give then directly information on how they can improve their performance during the run.

Interestingly the Quantified Self Movement does not stop at technology.  Across the globe there are a huge number of MeetUps where people can share information and resources.  You can check out the different groups by location here http://quantified-self.meetup.com/.

But does it work?   Well the theory seems good to me and there are lots of claims, especially regarding weight loss, being made.  However there are critical voices; as this article in The Scotsman by Tiffany Jenkins makes clear http://www.scotsman.com/news/tiffany-jenkins-the-problem-with-quantified-life-1-3118718.

But as my old grandmother would say “the proof of the pudding is in the eating”.  I’m asking my readers to share their opinions in the comments section of this blog.  We are really interested in hearing your experiences of using technology for improving health via data collection.  You might want to think in terms of the following questions:-

a)      What were you trying to achieve through the process?  E.g.  weight loss

b)      What technology did you use?  E.g. Apps, web sites or sensors?

c)       How effective was the process?

d)      Can you see other applications for the Quantified Self Movement other than weight loss?

Thanks very much in advance for sharing your information.  I am really looking forward to reading your responses.