bTizzy.com – a new website for people with disabilities a guestpost from Vanessa López-Kopp


For the past year, we’ve been really busy.

bTizzy

bTizzy

Upgrading. Expanding. Shifting. Building. Facelifting. Renaming.
Some of you knew us as OUT OF STEP. We’ve shed that skin and are now called bTizzy. All the work we’ve been doing has put us in a, yep, you guessed it: a Tizzy. When we were brainstorming names, bTizzy seemed to best reflect the new direction we were headed.

More specifically, it has an attitude about it. What we are trying to do is shift the paradigm and existing perceptions about the disability community. We are leaving the pity party behind. We are embracing a more open dialog, fostering community, speaking to issues, passions and yes, frustrations, too: all the things that make up the diverse lifeblood of our population. And most critically, we aim to increase the economic power of people with disabilities (PWD).


Toward that end, bTizzy.com has an array of offerings that are about and for disability. A few highlights:

• K-TIZ RADIO. With four shows covering every corner of disability, we’re putting the mic in front of the movers and shakers as well as everyday advocates and heroes in our world.

• FORUM. We want to get people talking. And helping. Whether it’s finding a new apartment or a friend, the key is connecting.

• KNOW. This area is a vital resource for PWD. Legal, medical, events, relevant articles, it’s all here for you to know. And learn.

• SHOP. Products and Services by PWD have a new marketplace: bTizzy.com. Commercial success is critical to our success. And yours. Our goal is to level the economic playing field. To help disabled people become financially independent. To thrive.

We welcome you to stick around and check out the new digs.

We welcome your feedback. Post what you think about us, about the current state of disability, about your latest triumphs – whatever you are impassioned about — in our FORUM.

We welcome [and would be most grateful for] your social engagement online: spread the word, tell your friends and colleagues, post away. Communication is everything. We want folks to join the conversation. We’re at our best when we’re engaged.

We welcome you to bTizzy.com.

We welcome you to Get Into One.

 

bTizzy is a one-stop shop for all things disability.  From product and service offerings made by people with disabilities (PWD) to an extensive information hub featuring radio, community services and invaluable references, bTizzy’s ultimate mission is to increase economic opportunities and create positive social change for PWD.  

Join the conversation at: bTizzy.com

Dystonia Awareness Week – Join the social media thunderclap and help raise Dystonia awareness!


Dystonia Awareness Week

Dystonia Awareness Week

Even you have visited this site before you will know that as well as promoting awareness of different health conditions I am also of the view that social media represents a game changer as far as healthcare is concerned.

This week is Dystonia Awareness Week and the organisers are organising a social media thunderclap to promote the week. I would urge all my readers to take part and help change the perception of dystonia. You can sign up below!


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So what is dystonia? The excellent Dystonia UK describe it as follows. “Dystonia is an incurable neurological condition that affects around 70,000 people in the UK. The condition causes involuntary muscle spasms that force the body into disabling movements and postures. Dystonia can affect muscles in almost any part of the body, resulting in symptoms such as functional blindness, severe twisting of the neck and debilitating contortion of the hands. It can cause difficulties with movement, eating, talking, writing, reading and sometimes even sitting up. Pain and social isolation are also common.”

Finally can we suggest you have a look at Dystonia UK’s website here.

Thanks very much for taking part in the social media thunderclap.

Fibromyalgia and arthritis blogging. What ever happened to the fibro blogging community?


Yes I know an odd question for a blog which covers fibromyalgia and arthritis in some depth.

But let me explain (and ask for your help).

Fibromyalgia blogging

Fibromyalgia blogging

When the wonderful (and wacky) world of weblogging came into my life about 10 years ago it seemed that we could not move for citizen journalists writing on any and every subject that took their fancy. I was told about one blog which covered the history of the headgear of Roman Catholic priests before the Second Vatican Council.

But those days seem to be over especially in the whole area of healthcare and fibro in particular. To some extent this is due to the rise of social media like Twitter. Though I’m not certain how much insight you can get from 140 characters. But it does seem that there are far fewer blogs active than there were five years ago.

The reason I started thinking about this was by accident really.

A couple of days ago a lady called Catherine Manning dropped a link to her excellent blog about fibromyalgia and arthritis called “Old before my Time. You can check it out by clicking the link here.

Now I used to read Ms Manning’s blog on a very regular basis but realised that I’d not done so in a couple of years. Indeed we even published a cross post from her a few years ago. Indeed that applied to a lot of the blogs that I used to follow.

Which brings me to the reason for this post. What should I be reading online and where can I find it?

Please feel free to share the blogs you read (or even better the blogs you write) in the comments box below.

It will give both my readers and myself a great opportunity to find out what is going on out there.

And maybe it will help to prime the pump of the arthritis and fibromyalgia blogging communities.

Thanks very much in advance!


World Cancer Day 2015 – check out this great way to show your support. #KissCancerGoodbye


World Cancer Day 2015

World Cancer Day 2015

This Wednesday 4th Feb sees one of the most important days in the medical awareness diary. The day in question is World Cancer Day.

This year social media is playing a big part in help raise awareness. One idea is to use the hashtag #KissCancerGoodbye and share a picture of you kissing a friend, family member, patient or pet. If you would share them on Twitter, Facebook or any other social media you use.

World Cancer Day have also produced a page cover for Facebook users. You can see it above. Please download and place it on your Facebook page even for just a few hours.

You might also be interested in joining our cancer community called CancerTalk. This is a space where all those in the cancer community can share experiences and provide support.

Thanks very much in advance.


How Technology Changed the Medical Industry


As many readers know I’m more than slightly obsessed by how the use of technology has improved healthcare in the last couple of decades.

I’d like to share the infographic below because I think it shows in some detail recent developments and includes social media.