Lupus – what are the signs and symptoms of Lupus?

Signs of Lupus

Signs of Lupus

Symptoms

Symptoms of systemic lupus erythematosus (SLE) can vary widely from person to person. Some people may only experience a few mild symptoms, whereas others may be more severely affected.

Even if you usually have mild symptoms, SLE can “flare up”, with symptoms becoming more severe or new symptoms developing.

The three main symptoms of SLE are:

fatigue (extreme tiredness)

joint pain and swelling

rashes – particularly on the face, wrists and hands

Fatigue

Fatigue is one of the most common symptoms of SLE. You may feel very tired even though you get plenty of sleep. Carrying out everyday tasks, such as housework or office work, can leave you feeling exhausted.

Many people with SLE find that fatigue is the most distressing and disruptive aspect of the condition because it has a negative impact on their work and social life.

Joint pain

If you have SLE, you’re likely to experience joint pain in your hands and feet. You may find the pain changes from one set of joints to another quite quickly, and is usually worse in the morning.

Unlike some other conditions that affect the joints, SLE is unlikely to cause your joints to become permanently damaged or deformed.

Rashes

Many people with SLE develop rashes on their skin – most commonly on the face, wrists and hands. A rash over the cheeks and the bridge of the nose is particularly common and is known as a “butterfly rash” or “malar rash”.

Rashes caused by SLE may get better after a few days or weeks, but can last longer or even be permanent.

Rashes caused by SLE can sometimes be itchy or painful. They may get worse if they are exposed to sunlight.

Other symptoms

SLE can also cause a wide range of other symptoms. However, you’re unlikely to have all of the symptoms listed below, and many people with the condition only experience the above main symptoms.

Other features of SLE may include:

a fever (high temperature)

swollen lymph glands (small glands found throughout your body, including in your neck, armpits and groin)

recurring mouth ulcers

hair loss (alopecia)

high blood pressure (hypertension)

headaches and migraines

stomach (abdominal) pain

chest pain

depression

dry eyes

memory loss

seizures (fits)

problems thinking clearly and difficulty telling the difference between reality and imagination (psychosis)

shortness of breath

Raynaud’s phenomenon – a condition that limits the blood supply to your hands and feet when it is cold

ankle swelling and fluid retention (oedema)

When to seek medical advice

You should see your GP if you have persistent or troublesome symptoms that you think could be caused by SLE.

While it is likely that your symptoms are being caused by a more common condition, it’s important to see a doctor for a diagnosis.

Lupus Awareness Month May 2013 – help us raise awareness of Lupus by sharing on this blog

Not many people realise that around 1 in 185 people suffer from a medical condition called Lupus.  As May is Lupus Awareness Month we thought that it would be useful if we ran a Lupus blog.

The objective of this Lupus blog is twofold.  Firstly to provide some basic information and links to

Lupus Awareness Month

Lupus Awareness Month

resources which provide more information about Lupus.  Secondly it is to give people with Lupus   and caregivers of people with Lupus the opportunity to share their stories.  This sharing can also increase awareness among the wider community as well as providing support to lupus suffers.

So what is Lupus?


Lupus is an umbrella term covering a number of different conditions within the Lupus family.  The condition normally called Lupus is also known as systemic lupus erythematosus or SLE.

It is an autoimmune condition where in effect the body’s immune system attacks the body itself.  With Lupus the immune system is not able to differentiate between healthy tissue and viruses and bacteria.  The immune system attacks on healthy tissue can lead to swelling, pain and leads to tissue damage.

Typical symptoms include:-

1)      Skin rashes

2)      Fatigue (for more information on fighting fatigue please go to https://patienttalk.org/?p=239)

3)      Joint pain

4)      It may also cause flares leading to fevers.

Current thinking is that Lupus will typically have a number of causes rather than just one.  These may be:-

  • Stress
  • Genetics
  • Pregnancy – this is sometimes the trigger
  • The Epstein-Barr virus (EBV) could be linked to child hood Lupus.

Sadly SLE is not at present curable but can be treated by various medications such as steroids and anti-inflammatory drugs.  Avoiding sunlight is also advised.  Many Lupus patients now lead reasonably normal lives compared to 50 years ago when life expectancy after diagnosis was low.

So what about you?

We would love it if people with Lupus, or their caregivers, could tell their Lupus story.  We are interested in everything you have to say but the following questions might be of use.

a)      When were you diagnosed with Lupus and how old were you?

b)      What treatment for Lupus have you used and how successful have these treatments been?

c)       What lifestyle changes have you made because of the Lupus diagnosis?

d)      What do you think caused the Lupus?

e)      What advice would you give to somebody who has just been diagnosed with Lupus?

Please use the comments box below to tell your story.  Feel free to add any links to resources that you think would be of interest to our readers.


Thanks and help us promote Lupus awareness not just this month but every day!