National Institutes of Health

28th of February this year sees Rare Disease Day 2015. As with previous years we are delighted to show our support for this important event.

Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges faced by patients and the community. You might be interested in a recent post on Huntington’s Disease we ran.

According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than

Rare Disease Day 2015

200,000 people. Nearly 1 in 10 Americans live with a rare disease—affecting 30 million people—and two-thirds of these patients are children. There are more than 7,000 rare diseases and only approximately 450 FDA-approved medical treatments.

Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face. It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe, and is now observed in more than 80 nations. Rare Disease Day is sponsored in the U.S. by the National Organization for Rare Disorders (NORD)®, a leading independent, non-profit organization committed to the identification, treatment, and cure of rare diseases.
For more information about Rare Disease Day in the U.S.,or global activities click the relevant links.

To show your support please feel free to share the brilliant infographic below.

Rare Disease Day 2015

COPD Awareness

Many of us know that coughing, wheezing, and shortness of Breath are symptoms of COPD, or chronic obstructive pulmonary disease.

But to many people feel these signs can be from a mild colds, being a little bit unfit or even just the aging process. Often we are less likely to bring these symptoms up to our doctors because they don’t feel they are significant. Because our doctors do not know we have the symptoms of COPD we just don’t get diagnosed!

As this month is National COPD Awareness Month we thought we would run a blog post to highlight some key issues. As you may know COPD is a lung disease that over time makes it hard to breathe. It is often referred to as emphysema or chronic bronchitis. According to some sources it is the third biggest killer in the USA.

So what are they symptoms of COPD? Well they include:-

a) constant coughing (smoker’s cough)
b) shortness of breath during typical daily activities
c) wheezing
d) inability to take deep breaths
e) excessive sputum production
f) feeling as though it is impossible to breathe.

If you have any of these symptoms please book an appointment to see your Doctor as soon as possible.

James P. Kiley, Ph.D. Director, Division of Lung Diseases, at the National Heart, Lung, and Blood Institute, part of the National Institutes of Health has said in the past; “We urge you to pay special attention to how you are breathing, especially if you become short of breath during your daily activities. Learn more about the symptoms of COPD and if they sound like you, start the conversation with your health care provider. Talking about any symptoms you may be experiencing will help them help you. While there is no cure for COPD — early diagnosis and treatment can help people with COPD improve their symptoms, cut down the flare-ups of the disease (exacerbations) and get back to the things they love doing.”

You can test for COPD with a non-invasive breathing test called spirometry. With proper diagnosis and treatment, you can live longer and improve your quality of life.

You can find out more about COPD by visiting this website, which is part of the COPD Learn More Breathe Better® awareness campaign from the National Heart, Lung, and Blood Institute of the National Institutes of Health.

Patient Talk

Patient Talk

National Institutes of Health

Rare Disease Day 2015 – Please share to show your support!

National COPD Awareness Month – Don’t Let COPD take your breath away. Why you should get checked out if you cough, wheeze or have shortness of breath!