“Multiple Sclerosis: What are the signs and symptoms of MS?”

Terri wears a tie to promote MS awareness

Terri wears a tie to promote MS awareness

Symptoms of multiple sclerosis

Multiple sclerosis (MS) can cause a wide range of symptoms and can affect any part of the body. Each person with the condition is affected differently.

The symptoms are unpredictable. Some people’s symptoms develop and worsen steadily over time, while for others they come and go.

Periods when symptoms get worse are known as “relapses”. Periods when symptoms improve or disappear are known as “remissions”.

Some of the most common symptoms include:

fatigue

vision problems

numbness and tingling

muscle spasms, stiffness and weakness

mobility problems

pain

problems with thinking, learning and planning

depression and anxiety

sexual problems

bladder problems

bowel problems

speech and swallowing difficulties

Most people with MS only have a few of these symptoms.

See your GP if you’re worried you might have early signs of MS. The symptoms can be similar to several other conditions, so they’re not necessarily caused by MS.

Read more about diagnosing MS.

Fatigue

Feeling fatigued is one of the most common and troublesome symptoms of MS.

It’s often described as an overwhelming sense of exhaustion that means it’s a struggle to carry out even the simplest activities.

Fatigue can significantly interfere with your daily activities and tends to get worse towards the end of each day, in hot weather, after exercising, or during illness.

Vision problems

In around one in four cases of MS, the first noticeable symptom is a problem with one of your eyes (optic neuritis). You may experience:

some temporary loss of vision in the affected eye, usually lasting for days to weeks

colour blindness

eye pain, which is usually worse when moving the eye

flashes of light when moving the eye

Other problems that can occur in the eyes include:

double vision

involuntary eye movements, which can make it seem as though stationary objects are jumping around

Occasionally, both of your eyes may be affected.

Abnormal sensations

Abnormal sensations can be a common initial symptom of MS.

This often takes the form of numbness or tingling in different parts of your body, such as the arms, legs or trunk, which typically spreads out over a few days.

Muscle spasms, stiffness and weakness

MS can cause your muscles to:

contract tightly and painfully (spasm)

become stiff and resistant to movement (spasticity)

feel weak

Mobility problems

MS can make walking and moving around difficult, particularly if you also have muscle weakness and spasticity (see above). You may experience:

clumsiness

difficulty with balance and co-ordination (ataxia)

shaking of the limbs (tremor)

dizziness and vertigo, which can make it feel as though everything around you is spinning

Pain

Some people with MS experience pain, which can take two forms:

Pain caused by MS itself (neuropathic pain) – this is pain caused by damage to the nervous system. This may include stabbing pains in the face and a variety of sensations in the trunk and limbs, including feelings of burning, pins and needles, hugging or squeezing. Muscle spasms can sometimes be painful.

Musculoskeletal pain – back, neck and joint pain can be indirectly caused by MS, particularly for people who have problems walking or moving around that puts pressure on their lower back or hips.

Problems with thinking, learning and planning

Some people with MS have problems with thinking, learning and planning – known as cognitive dysfunction. This can include:

problems learning and remembering new things – long-term memory is usually unaffected

slowness in processing lots of information or multi-tasking

a shortened attention span

getting stuck on words

problems with understanding and processing visual information, such as reading a map

difficulty with planning and problem solving – people often report that they know what they want to do, but can’t grasp how to do it

problems with reasoning, such as mathematical laws or solving puzzles

However, many of these problems aren’t specific to MS and can be caused by a wide range of other conditions, including depression and anxiety, or even some medications.

Mental health issues

Many people with MS experience periods of depression. It’s unclear whether this is directly caused by MS, or is due to the stress of having to live with a long-term condition, or both.

Anxiety can also be a problem for people with MS, possibly due to the unpredictable nature of the condition.

In rare cases, people with MS can experience rapid and severe mood swings, suddenly bursting into tears, laughing or shouting angrily for no apparent reason.

Sexual problems

MS can have an effect on sexual function.

Men with MS often find it hard to obtain or maintain an erection (erectile dysfunction). They may also find it takes a lot longer to ejaculate when having sex or masturbating, and may even lose the ability to ejaculate altogether.

For women, problems include difficulty reaching orgasm, as well as decreased vaginal lubrication and sensation.

Both men and women with MS may find they are less interested in sex than they were before. This could be directly related to MS, or it could be the result of living with the condition.

Bladder problems

Bladder problems are common in MS. They may include:

having to pee more frequently

having a sudden, urgent need to pee, which can lead to unintentionally passing urine (urge incontinence)

difficulty emptying the bladder completely

having to get up frequently during the night to pee

recurrent urinary tract infections

These problems can also have a range of causes other than MS.

Bowel problems

Many people with MS also have problems with their bowel function.

Constipation is the most common problem. You may find passing stools difficult and pass them much less frequently than normal.

Bowel incontinence is less common, but is often linked to constipation. If a stool becomes stuck, it can irritate the wall of the bowel, causing it to produce more fluid and mucus that can leak out of your bottom.

Again, some of these problems aren’t specific to MS and can even be the result of medications, such as medicines prescribed for pain.

Speech and swallowing difficulties

Some people with MS experience difficulty chewing or swallowing (dysphagia) at some point.

Speech may also become slurred, or difficult to understand (dysarthria).

Ataxia – find out more about this symptom of multiple sclerosis

Multiple sclerosis awareness

Multiple sclerosis awareness

[Original article on NHS Choices website]

Ataxia is a term for a group of disorders that affect coordination, balance and speech.

Any part of the body can be affected, but people with ataxia often have difficulties with:

balance and walking

speaking

swallowing

tasks that require a high degree of control, such as writing and eating

vision

The exact symptoms and their severity vary depending on the type of ataxia a person has.

Types of ataxia

There are various types of ataxia, which can be categorized into three main groups:

1. Acquired ataxia: Symptoms develop as a result of trauma, strokemultiple sclerosis (MS)brain tumor, nutritional deficiencies, or other conditions that damage the brain or nervous system.

2. Hereditary ataxia: Symptoms develop gradually over many years and are caused by genetic mutations inherited from parents. The most common type is Friedreich’s ataxia.

3. Idiopathic late-onset cerebellar ataxia (ILOCA): The brain is progressively damaged over time for reasons that are unclear.

What causes ataxia?

Ataxia usually results from damage to a part of the brain called the cerebellum, but it can also be caused by damage to other parts of the nervous system. This damage can be part of an underlying condition such as multiple sclerosis (MS), or it can be caused by a head injury, lack of oxygen to the brain, or long-term, excessive alcohol consumption. Hereditary ataxia is caused by a faulty gene passed on by family members, who may or may not be affected.

Read more about the causes of ataxia.

How ataxia is treated

In many cases, there is no cure for ataxia, so supportive treatment to manage the symptoms is essential. This may involve:

– Speech and language therapy to address speech and swallowing difficulties

– Physiotherapy to assist with movement issues

– Occupational therapy to help manage daily challenges

– Medication to regulate muscle, bladder, heart, and eye issues

In a few cases, treating the underlying cause can improve ataxia or prevent its worsening.

Read more about treating ataxia.

Outlook

The outlook for ataxia can vary significantly and largely depends on the specific type of ataxia. Some types may remain stable or even improve over time, but most will worsen progressively over many years.

People with hereditary ataxia generally have a shorter life expectancy than normal; however, some individuals can live into their 50s, 60s, or beyond. In more severe cases, the condition can be fatal in childhood or early adulthood.

For acquired ataxia, the outlook depends on the underlying cause. Some cases may improve or remain stable, while others may worsen over time and reduce life expectancy.

Multiple Sclerosis and Fibromyalgia – is there a connection?

Fibromyalgia and multiple sclerosis

Fibromyalgia and multiple sclerosis

As some readers will know my background was conducting market research with people who suffer from various medical conditions. The main ones were in fact diabetes, cancer, rheumatoid arthritis and multiple sclerosis.

It was only when we started working with a lot of social media in around 2006 that I became commented with members of the fibromyalgia community.

You might also aware that we run various communities on Facebook and Twitter where we encourage discussion on a whole range of subject which are important to people with various conditions.

Over the years there has been a number of questions which come up from time to time. One of which is the relation between multiple sclerosis and fibromyalgia. After all having more than one autoimmune condition is not uncommon.

Indeed one of our members posted this on our page MultipleSclerosisTalk a few days ago “Hi. I just had a quick question. I am currently diagnosed with Fibromyalgia but with this last relapse, I have noticed many new and worsening symptoms, and I’m worried it may be more related to MS. I have a appointment with a neurologist on Tuesday and I was wondering how I should approach this with him. I’m really sick on this because I feel like they don’t really listen to how you feel sometimes. Thank you for any advice.”

Firstly if you do have any advice for this reader please feel free to use the comments box below to share your ideas.

Secondly I’m wondering how common this situation actually is? So I thought it would be useful to run the following poll to see how our readers have been diagnosed in the past.

It would great if you could take part below.


 

Bonnie2405 I think fibro me CFs lupus Lyme and ms are all the same, like polio, some get it small some get it big. If ritbixin works, they may have a cure for all of it, the virus attacks the autoimmune system that goes into overdrive, ritbixin removes all B cells wipes long term memory and the mitochondria has to start building healthy cells all over again freshly removing the virus from our bodies. The drug will be ready within three years are u ready to start recommending it DR because patients are desperate and want to try it they are that desperate.
traceychace Hi my name is Tracey, I was diagnosed with fibro about 3years ago after suffering for many years before hand.
My Dad had MS, my Mom has always said that she thought that’s what I have more than fibro.
My neurologist said that I deffinatley don’t have ms as there is no connection & its not hereditary.
My health seems to be deteriorating quite quickly, does fibro usually deteriorate quickly?
emily89 My mom was diagnosed with ms in her 30’s & im 24 I was just diagnosed with fibromyalgia, my older sister also has fibromyalgia. All of our symptoms are similar the only difference is that in an mri my mom has visible plaque on her brain.
anarivera Hi my name is ana rivera and i have fibromyalgia and i just cant find thevright medication can someone please help !!
RebeccaRaeThomas Go in with a detailed history of all symptoms over time and voice your concerns. Be assertive in getting additional tests. Don’t let them dismiss your concerns.

Barb MacLeod – 1 year ago
Diagnosed with IDDM (Type 1 or Insulin Dependent Diabetes Mellitus) in 1984; Diagnosed with RRMS (Relapsing Remitting Multiple Sclerosis) in 2015. My sister has Type 2 Diabetes diagnosed in 2012. My mother has Fibromyalgia diagnosed in 2014. It is tough being female in our family ! 🙂

Ileana Peters – 2 years ago
I was diagnosed with MS in 2011. i have a cousin that has fibromyalgia. Our symptoms are very similar . Its crossed our minds, she might have been misdiagnosed.

Carole mellor – 3 years ago
I was diagnosed with MS in 2008 and just been diagnosed now with Fibromyalgia the symptoms are very similar

linda Barlow – 3 years ago
Iv just fibormyalgy it’s a very painful ms what symptoms for that.

This bike has MS. What would a bike with Multiple sclerosis look like? A brilliant way of explaining MS to people!

This bike has multiple sclerosis

This bike has multiple sclerosis

This bike has MS. What would a bike with Multiple sclerosis look like? A brilliant way of explaining MS to people!

This_Bike_Has_MS from MethodStudiosAustralia on Vimeo.

Multiple Sclerosis. How long did it take your to get diagnosed with Multiple Sclerosis after you first symptoms of MS had presented themselves?

Stress Management for Multiple Sclerosis

 Multiple Sclerosis

As regular readers of this blog know we are running a series poll and blogs about our readers

diagnosis of multiple sclerosis.

You can read more here https://patienttalk.org/?p=399.  We have, at time of blogging, 74 responses so please drop over and find out more.

In today’s poll we are interested in finding out how long it took you too get diagnosed with  with multiple sclerosis after your first symptoms of MS had presented themselves.

Please take our poll below.  If you would like to add anything more please feel free to use the comments box.

Thanks very much in advance


MarilynRoberts

My car and a palm tree got into a nasty fight. Guess who won? I had a piece of titanium and 5 pins surgically installed to hold together the hip that my left leg was shoved through. Three years later an ER tech told me privately that the metal may have given me MS. If I could get that officially in writing we’d be having this conversation in my beach house in the virgin islands.