Carers UK responds to report warning of growing strain on sandwich generation of carers

Carers UK responds to report warning of growing strain on sandwich generation of carers

Carers UK responds to report warning of growing strain on sandwich generation of carers

Carers UK responds to research published today by Macmillan Cancer Support, which shows that around 110,000 people in the UK are caring for a parent with cancer, whilst also looking after their own children [1].

Emily Holzhausen, Director of Policy and Public Affairs at Carers UK, said:

“In raising awareness of the pressures facing people who are caring for a parent with cancer whilst also looking after their young children and often juggling work, Macmillan’s research highlights a far wider and deeper issue for carers who support loved ones across many conditions.

“Indeed, there are a staggering 2.4 million people who are sandwiched between raising families of their own whilst providing care to an older loved one with a disability or chronic illness. And it is women who are more likely to shoulder this responsibility, with our research showing that they are four times more likely than men to have given up work due to multiple caring responsibilities.

“Today’s report adds to growing evidence that this is fast becoming one of the hardest pressed generations [2]. As a society, we must recognise that we all likely to either receive or provide care at some point in our lives. Without the right support at the right time, caring can take a serious toll on carers’ health, finances and ability to have a life outside of caring. With this in mind, the Government must use the opportunity of its new Carers Strategy to make lasting change in the way public services and workplaces support families.”

Carers UK is here with advice, information and support wherever you are on your caring journey. For practical advice and information about caring:

[1] Under Pressure – The growing strain on cancer carers (2016) Macmillan Cancer Support

[2] Caring responsibilities in

Major new White Paper reveals compelling case for clinical homecare – read our interview with Christine Outram, Chair of the Christie NHS Foundation Trust

Experts call on health leaders to review and implement findings for the benefit of patients and the wider health and social care system

  • An inquiry involving NHS, charity and private sector experts is set to reveal a growing body of evidence on the value of clinical homecare in a new White Paper being launched today
  • The White Paper builds a compelling case for the role of clinical homecare in addressing two of the most pressing challenges facing today’s NHS:
    • Patient benefits: faster recovery, improved quality of life and fewer-hospital readmissions
    • System benefits: reduced pressure on hospital beds, waiting times and inpatient visits

A new White Paper being launched today reveals the value and future potential of clinical homecare in helping to address two of the key challenges facing today’s NHS: quality of patient care and system capacity.

Christine Outram

Christine Outram

The inquiry was launched as there was no specific mention of clinical homecare included in the NHS Five Year Forward View (5YFV) – the NHS roadmap that outlines the future vision of an NHS which can deliver better care and a better experience for patients.

The White Paper sets out to clearly define clinical homecare and highlights the high level value it delivers to patients and the wider health and social care system. The case for clinical homecare is explored across five different models; home cancer care, end of life care, home treatment of long-term conditions, timely discharge from hospital, and virtual wards. All five clinical homecare models meet the guiding principles set out in the 5YFV.


The expert panel defined clinical homecare as: Integrated care, treatment and support that takes place in a person’s home or place of residence. This can directly reduce the need for or prevent an overnight or inpatient stay in hospital or a day case or outpatient visit. This can include patients with more severe conditions and those with long-term conditions. Normally, the hospital or NHS provider retains responsibility for patient care.

 Patient benefits

The White Paper identifies wide ranging patient benefits across the five clinical homecare models reviewed. These include healthcare outcomes such as faster recovery, improved quality of life and fewer hospital readmissions, as well as practical benefits, such as not having to travel to regular hospital appointments. A study carried out at the Christie NHS Foundation Trust showed that when cancer patients received treatment and nursing care at home, there were significantly fewer side effects and unplanned admissions compared to Christie best care alone.

System benefits

Capacity remains an ongoing problem in NHS hospitals, heightened by a growing ageing population and an increasing number of people living with multiple conditions. Clinical homecare can alleviate capacity pressures by freeing up beds, reducing waiting times and reducing the number and duration of inpatient visits. This in turn allows patients to flow through the system more efficiently freeing up resources for those with more acute healthcare needs:

  • In 2014, 21 pioneering NHS Trusts across the UK were using Healthcare at Home’s virtual ward model, saving 136,000 hospital bed nights by treating appropriate patients at home. University Hospital Southampton NHS Foundation Trust used the capacity released by their virtual ward to invest in specialist services and support its move to become a regional trauma centre
  • 84 per cent of people on Macmillan Cancer Support’s end of life care service in Midhurst Macmillan Specialist Palliative Care Service died in their preferred place of death in 2012/13, resulting in fewer A&E visits and nights in hospital

Clinical homecare is already making a significant contribution to the modernisation of the NHS. Bigger system benefits are where the real value of clinical homecare can be found, including helping patients to manage their conditions, be treated in a more favourable environment and ultimately get better quickly, enabling many patients to return to work or school.

 

The White Paper, being launched by the expert panel at an event at the Houses of Parliament today, clearly confirms the value that clinical homecare is currently providing for patients and the NHS. The clinical homecare market is growing at a rate of more than 20 per cent per year, a trend which if it continues, could deliver even greater value. The inquiry was funded by Healthcare at Home, the leading provider of clinical homecare in the UK.

To find out more we interviewed Christine Outram, Chair of the Christie NHS Foundation Trust to find out more.

Patient Talk – What is clinical home care?

Outram – Well clinical home care is hospital level car that is provided in people’s homes and it can be provided by the NHS and it is provided by the NHS a lot or it can be private providers and charities.

Patient Talk – And how is it provided?

Outram – Well essentially rather than admit people to hospital to have particular treatments or be looked after they’re people are provided with the same level and treatment of support at home by staff who go into the home with whatever it Is that patient needs.

Patient Talk – OK and who uses clinical home care?

Outram – Normally it is provided as part of an interracial package of care delivered as part of the NHS and the sort of patients who can benefit, there’s a big range of them really, it can be provided by for people with cancer, for people at the end of their life, elderly people sometimes who become quite ill but actually could still be looked after at home if somebody went to do that, sometimes people with long term conditions who are on drug regimens called ‘logics’ they can be quite successfully treated at home, so a whole variety so that’s just the start really.

Patient Talk – And what are the alternatives?

Outram – Well the alternatives are that people would be treated in hospital, quite often local primary care and district nurses will provide a lot of care for people at home but when it gets to a certain level of severity they are not set up to do that so that’s at the point where people would say ‘ well that person needs to be in hospital’ but then this person may not need to be in hospital if more was available at home as part of a properly supervised programme so that’s what we are talking about.

Patient Talk – Ok and what is a virtual ward?

Outram – Well a virtual ward is a way of allowing patients to receive hospital care in their own homes so like clinical homecare, normally provided into two ways either that people can leave hospital more quickly well remaining under the car of the hospital, that’s one way of doing it, and another way I suppose is what I have just refereed to, avoiding a hospital admission so this patient has become quite poorly, needs a hospital level of care and supervision but doesn’t actually physically need to go to the hospital, the hospital in a way can come into the home and that’s what it is.

Patient Talk – Ok and is this not just a way of freeing up beds from people who will not live to save a few pennies?

Outram – No absolutely not, they can be cost saving sometimes there is a cost saving and sometimes there isn’t but that’s not really the point it’s a way of adding to the options for patients, many people prefer to receive treatment at home, I know I certainly would and I would want that for my family if it’s possible to give me the care at home who wants to go somewhere else its very stressful, I am much more likely to feel in control if I am being treated at home so it’s not about saving money and freeing up beds, it does free up bed of course which is good as they can then be used by people who don’t actually want to be at home or can’t be and who needs to be at a hospital.

Patient Talk – And finally what is 5YFV?

Outram – It refers to the 5 year forward view and all that is an unfortunate abbreviation of a plan for the NHS that was published about a year ago and the reason that we are launching this report today is because about a year on as people work to implement this vison for the future we really do feel strongly that clinical homecare should be part of it.

How one hospital is supporting Macmillan Lung Cancer Awareness Month

From tomorrow Thursday 5th November the Lung Cancer Nurse Specialist Team from Leicester’s Hospitals along with members from the Mesothelioma UK Resource Centre based in Leicester are teaming up with the Macmillan Mobile Bus Service to urge the public to be ‘Signs and Symptoms Aware’.

Macmillan Cancer Support

Macmillan Cancer Support

The public will be encouraged to play their part in helping to detect early diagnosis to fight the UK’s most lethal forms of lung cancer. The Macmillan Mobile Bus Service will be stopping off in different locations in Leicestershire from Tuesday 3rd to Thursday 5th November.

The Lung Cancer Nurse Specialist Team along with the Smoking Cessation Specialists will be attending the event on Thursday between 8am and 6pm at the Haymarket Shopping Centre on Humberstone Gate West. No appointment is necessary, and everyone is welcome.

The team will be there to offer free, confidential advice and support to anyone with a concern or a question relating to any aspect of lung cancer and its treatment.

Sharon Savory, Lung Cancer Nurse Specialist from Leicester’s Hospitals, said: “Each year our team get involved to promote the awareness of all types of lung cancer and this year has coincided with the Macmillan Cancer Support’s Mobile Bus Road Show and so we will be going along to provide support and to help hand out literature and advice to anyone who wants to talk to us. The message we want to convey is that it is important to detect symptoms early and to visit your GP immediately in order to get the best possible treatment.”

If you have questions about cancer or want to find out more about the signs and symptoms of lung cancer or want advice on how to quit smoking then please visit: www.macmillan.org.uk or call Macmillan free on 0808 808 00 00.