iphone | Patient Talk

Apps for Multiple Sclerosis

Yes I know I keep on going on about how social media will change healthcare beyond all recognition. Indeed the reason you are reading this blog post is almost certainly because you have seen a link on some kind of social media.

But how does this fit into the day to day of actually having and managing a chronic medical condition. In fact I was challenged yesterday on this very subject online.

The correspondent said that they had yet to find an app for the multiple sclerosis community which was really useful. Which got me thinking. A quick blast on my iPhone got me links to more or less marketing puff. Not that i object to marketing puff but you know what I mean.

So I thought I would find out from my readers what Apps they uses to help treat or manage their multiple sclerosis.

I would be great if you could share your experiences in the comments box below. It would be great if you could think about some of the following questions:-

1) What is the name of the App you use? Do you have a link to more information?
2) What does the App set out to do?
3) How does it specifically help your multiple sclerosis?
4) Can you give it a mark out of 10 where 10 is brilliant and 0 is well you know?
5) If you can add anything you think will be of interest to our readers that would be superb.

Finally if you have written an App for MS or have one you think would be of use to a person with Multiple Sclerosis you are very welcome to add some information below. but please do state that you are a manufacturer just so we know.

Thanks very much in advance.

Autism and haircuts

Now when I was my son’s age I have to admit that I hated getting my hair cut. I think it was the boredom of waiting so long for the barber to get round to me that did it.

But with our son John this is not the case at all. He hates having a haircut and when I mean hate I really do mean hate. So much so on one of his first outing to my mother’s hairdresser the people from the shop next door came over to see if there was a problem. So meltdowns were the order of the day. You can find some great tips for dealing with meltdowns in the comments section of one of our older blog posts here https://patienttalk.org/?p=2349. Why? Well in John’s case he has sensory processing disorder which means the feeling of having his hair cut is, to him, one of massive overload of the senses.

Over the years we tried various strategies. These included cutting his hair at home by a professional hairdresser who is also a friend. The poor woman ended up cutting her hand with her rather sharp scissors during the haircut as John attempted to do a runner! We also went to a specialist autism hairdresser. The problem was that she was only available during the hours that my wife and I were at work. Even if we could have made it would have taken around an hour’s journey to get to the venue.

So how did we solve the problem? Well actually luck rather than judgement. He rather desperately

Autism and haircuts

needed his hair cut and our then nanny Willow offered to take him. It turned out that she had spotted a local barbers shop which she thought could help.

I had a haircut there yesterday so I thought I would take the opportunity to show what the big draw for Willow was in two pictures illustrating the blog. As you can see they have a car. One John could sit in. And you can see the TV as well – offering a section of the finest space-related cartoons that humans can make. Not just that – in his hand was Willow’s iPhone with an exciting game of “Angry Birds” on the go. Did it work?
Well more or less. His hair got cut and no one went to hospital. But most importantly he started to calm down when his hair was being cut. So yes it is a rather incremental thing but it worked for us.

In fact these days he is happy to grasp an iPad and have his head clippered as long as it takes less than five minutes.

That’s how we did it. How about you? One of the objectives of blog posts like this is to get other members of the autism community to share their experiences with others. It would be great if you could share your story about getting haircuts either for yourself or your loved one. Please feel free to use the comments box below to share.

[wp_ad_camp_32

You might like to think in terms of the following questions:-

a) Did you have particular problems with haircuts?

b) What was the root cause of the problems?

c)What techniques did you use to overcome the problem and end it with a cut which worked?

d) What advice would you give to a parent about to embark on the hair cutting autism journey?

And finally there is another option. Don’t bother. One of the boys in John’s class (they all have ASD) just has long hair. It’s clean and looks great. Albeit a bit heavy mental fan circa 1980. So that may prove the best way out.

Kylesmum	My 5 year old will have a meltdown with every haircut but the funny thing is that he will keep still … it’s so hard for me to watch cause what we do is that my husband will cut his hair with the clippers whist my son is sitting in the bath (empty of course) and he puts up with with about 10-15 mind of very emotional crying, trembling and sweating but once he is done he hits the off button on the machine and my son will start so sing and laughing with relief. We have tried to put him in the empty bath with lots of thing to try to distract him but nothing seems to work e.g. iPad, favourite toys, turned the bath into a ball park nothing seems to calm him but as I said the only good thing is that he wount fight it and he can get his hair done quickly
Kylesmum	My 5 year old will have a meltdown with every haircut but the funny thing is that he will keep still … it’s so hard for me to watch cause what we do is that my husband will cut his hair with the clippers whist my son is sitting in the bath (empty of course) and he puts up with with about 10-15 mind of very emotional crying, trembling and sweating but once he is done he hits the off button on the machine and my son will start so sing and laughing with relief. We have tried to put him in the empty bath with lots of thing to try to distract him but nothing seems to work e.g. iPad, favourite toys, turned the bath into a ball park nothing seems to calm him but as I said the only good thing is that he wount fight it and he can get his hair done quickly .
MylaBides	my husband and i used to wait until my daughter was asleep before we cut her hair. that was until she was 8-9. then we bought clippers which we first used on my younger son while she watched. when it was her turn, she didn’t protest. maybe because she saw my son was alright. or maybe because she was playing around the playground, walking around while my husband followed her around. of course he had to use rechargeable clippers. the wire simply will not cut it–pardon the pun!
Timingreenville	At that age he would sit in my, his dad’s, lap.
Timingreenville	We were very concerned with taking our 16 year old. I spoke to Christian at Great Clips as she cut my hair. She said to bring him in and they would work with in. A big issue with us is getting him in and out of the car. Transitions can be very hard for him. This time he sat through and shocked my wife and I. Then he got up and had to turn off the lights. I tried to prevent but he had to do it. Then he walked right out like no big deal. Now with summer we will buzz him outside on the deck. He has gotten better about getting around his ears. It tickles.
SarahMKInnes	My (almost) 7yr old (ASD and ADHD) just had his hair cut today. He will only have it cut at Sharkey’s (kids haircutting place) and will only allow the hairdresser use scissors – NO clippers whatsoever. Today there was a minor meltdown when he found out that their Super Mario game had worn out and they threw it out (he is obsessed with Super Mario) but once we got over that he was a bit squirmy but made out ok. I find what helps is if the hairdresser warns him beforehand (eg. “I’m going to spray some more water now”). We also try to make sure it is the same person every time that cuts his hair.
SneakyMumInOmaha	Read SneakyMumInOmaha
SneakyMumInOmaha	My 5yr old screams bloody murder everytime we try to cut his hair…except for that time when he woke up with a buzz cut. Oh yes I did. The trick is to turn the clippers on from a distance and then walk toward him. They’re pretty loud when you fire them up. And make sure your clippers are well oiled so they don’t pull his hair. You don’t want him waking up with a partial buzz-cut. And you’ll want to lay a towel down for easy cleanup and an itchless night. Good luck 🙂
sneedley13	Similar to PeterKijek below , our biggest problem was getting Connor to sit still in the chair. He also like to look around and see what everyone is doing. He now plays with the iPad/iPhone when he’s in the chair. We have found that he is much better when his Dad takes him rather than me, usually because he will get his hair cut at the same time (first) so Connor can see it, although we still have problems around the ears, either with the clippers or the scissors!
marionburns	TiffanyIvison https://www.facebook.com/profile.php?id=106711162797745&ref=ts&fref=ts get in touch and i will talk you through some tips .
TiffanyIvison	I have not found a way to make it work yet and am open to suggestions! My son is almost 2 and was just diagnosed with Autism, we already knew he had SPD. He was born with a lot of hair so we have had to visit the hair dressers many times and it gets worse with each visit. We are due for another cut soon and I have anxiety just thinking about it.
EricaPurtell	I’ve found that if my Partner (his father) gets his hair cut first with my son watching we’re all good until we get to trimming around the ears- that’s the only thing we have a problem with….
lifeisarainbowmummy	My son is actually sensory seeking at times and he loved my hairdresser who offered head massages even as a baby so he looked forward to getting his hair cut. We had major issues when my hairdresser went on maternity leave but we managed to convince him to let my new hairdresser cut his hair. One interesting thing we have found is that our son dislikes parting with any part of himself, after every haircut he has had, he has got down on the floor and picked up every last hair… thankfully he has the angelic looks to get away with it and hairdressers happily provide him with a bag – and we have a money bag full of hair for every single haircut he has had in the last 6 years! We even have a little tub of nail clippings (bag over head) as he would not let me clip his nails which he despises unless he could keep them. He was also terrified of losing his first tooth and sobbed for an hour when he realised his tooth was wobbling as he was terrified the tooth fairy would take it from him. We had to promise he could keep it in his sterling silver my first tooth box and wrote to the tooth fairy to ask if he could keep it. He still got a pound and a very reassuring letter from the tooth fairy!
marybethpalo	I too had the same problems – what I had discovered was that my son not only learned from video but also we could film future events like a hair cut and the anxiety basically disappeared. So – I used video modeling for years to teach and to familiarize my son with situations. Seeing a man getting his hair cut up close and being able to watch it over and over seemed to do the trick. We had been cutting his hair at home, in the bath tub, on the swing – you name it we had tried it!
PeteKijek	Actually, I have had a similar experience with my autistic son. His main problem was not sitting still in the barbers chair, and he constantly looks round to see what the barber is doing! As you’ve mentioned, the TV nearby is a great distraction for him, (he’s a bit too big and too old for a car chair now 😉 ) but he also enjoys looking in the mirror at what the person is doing. I think he never quite understood how what was happening in the mirror was what was happening to the back of his head!