Diet – what impact has change in diet had on the signs and symptoms of Autism , ADD and ADHD?

Autism, ADHD, ADD and Diet

Autism, ADHD, ADD and Diet

A couple of days ago I was having a chat with an old college buddy.  He mentioned that he had become intolerant to gluten and that his doctor had put him on a gluten free diet.  He then mentioned that he noticed that it had significantly improved his mild symptoms of ADD.  To be fair I didn’t know he had ADD.

Now over the years a lot of research has been done on the relationship between bowel disorders  and autism.  And there certainly seems to be some kind of relationship.  This research was certainly interesting!

So I thought I would open it up to my readers and find out if they felt diet had had any effect on their signs and symptoms of ADHD, autism and ADD.  Firstly it would be great if you could take the poll below.

Second could you use the comments section below to tell us a bit more about your story!  You might want to consider some of the following questions but everything you have to say is of great interest!

a) What was the original diagnosis of you or your loved one?

b) What diet did you try/use and on whose advice?

c) How effective were these diets?

d) Would you recommend this to others?

Thanks very much for your help!

Millions of us cutting out everything from gluten and dairy to sugar and fat….but how many of us really need to?

Millions of us are cutting out different foods and ingredients from our diets, without any medical guidance to do so.

Shona Wilkinson

Shona Wilkinson

That’s according to new research released today which shows that almost one in ten have eliminated dairy from their diet – half of those based on their own self-diagnosis, slightly less wheat – more than 40% having self-diaganosed an intolerance, and a similar number gluten – with half of those having made the decision based on their own knowledge.

Furthermore, following the war on sugar in the last two years, one in five of us have eliminated it from our diets, while one in six have ditched fat.

The study by Nutricentre also asked respondents what other measures they have taken to improve their health and or lose weight in the last two years, with a third having tried eating smaller portions, one in six skipping meals and a similar number skipping breakfast.

More than one in 20 have gone on a juice diet, while slightly less have tried weight management classes and soup diets, with some having gone vegetarian and some vegan.

But do these measures actually work? And what do you need to know if you are set on cutting out certain foods in 2016?


Recent research suggests:-

• As many of us continue on with our new year health kicks, a new study released today looks at the trend for eliminating food groups from our diets as a fix-all solution to weight and health issues

• Almost one out of ten say they have cut out dairy in the last two years, with similar numbers having eliminated gluten and wheat

• More than 40% who have eliminated those food groups have done so after self-diagnosis

• With the war on sugar one of the biggest health stories of the last year, it’s no surprise that more than a fifth have cut out sugar, while one in six have got rid of fat in their diet

• But could the trend for cutting things from our diet without medical advice to do so, be unnecessary?

So Patient Talk interviewed Shona Wilkinson, a leading nutritionist, to get the facts straight!

PatientTalk.Org – What are the common food groups being eliminated and why? And is the overall effect a positive one?

Shona Wilkinson- Nutricentre has done a study on over 2000 people, and we’ve actually seen that about 1 in 10 people are cutting out a common food group. These seem to really be wheat, dairy, fat, and sugar, as the predominant ones. So sometimes this can be necessary, and sometimes it can’t. So we just have to be a bit careful if were cutting out whole food groups from our diet, to make sure that were not cutting out nutrient groups as well.

PatientTalk.Org- Is it really possible to cut out fat and sugar from a diet given basic chemistry?

Shona Wilkinson- Probably not. And I don’t know quite why you’d want to cut them totally out of your diet. Why would you want to cut out fat from your diet? This was a message that was going around in the 70s and still seems to be hanging on out there at the moment, so no we don’t want to cut fat out of our diet. Sugar, yes it’s not great for us, but again we don’t want to cut it totally out of our diet. And as soon as you cut something out of your diet, the one thing you can guarantee is that you have real cravings for it, so don’t cut it totally out of your diet, we’re talking about reducing it.

PatientTalk.Org- And how much of it is intolerance related?

Shona Wilkinson -As far as the wheat and dairy is concerned, quite a lot of it. So talking about wheat, quite often people when they have wheat in their diet it can give them digestive problems, so it could be cramping, it could be diahrrea, it could be constipation, quite often a lot of bloating as well. So that can be an intolerance. As far as dairy is concerned, common side effects of having dairy are usually kind of mucus related, a blocked nose, blocked air passages, that kind of thing.

PatientTalk.Org- Okay. What is the difference between an allergy and intolerance?

Shona Wilkinson- There’s a big difference between an allergy and an intolerance, so an example would be, being a celiac. A celiac is someone who has got an auto immune disease and cannot have gluten in their diet. So that’s an actual allergy. The difference there would be someone who gets digestive problems after they’ve had gluten. So rather than it being very severe it could be just a bit of bloating. So they are very two distinct different things.

PatientTalk.Org – So in terms of severity, an allergy is a way more severe problem than an intolerance?

Shona Wilkinson- Absolutely and it can in some cases be life threatening.

PatientTalk.Org – Why has gluten intolerance increased in the last few years?

Shona Wilkinson- Yes gluten intolerance has seemed to increase in the last few years and there’s two schools of thought about this. Partly because one reason could be its quite trendy at the moment to follow a gluten free diet. The other reason is purely the amount of gluten we have in our diets nowadays. So we may have toast or cereal for breakfast, followed by a sandwich or baguette or some sort for lunch, followed by a pasta meal in the evening. That’s quite a common diet for a lot of people nowadays, and if you think about it that’s wheat, wheat, wheat for every single meal, and it’s just becoming too much for our bodies to deal with. So if you’re in that kind of situation, it’s just a matter of reducing your intake, or perhaps cutting out of your diet for 12 weeks and then slowly reintroducing it at a steady slow level and letting your body let you know what is the amount it can deal with every day.

PatientTalk.Org – What is the difference between celiac and gluten intolerance?

Shona Wilkinson – yes so celiac is an actual auto immune disease. It’s medically recognized and it can be life threatening. An intolerance is when you get slight digestive conditions after eating wheat containing food. So they are very different, one is a medical condition and one is more an intolerance that you just can’t cope with it as much.

PatientTalk.Org – What is a juice diet and how would it work?

Shona Wilkinson – Yeah, the juice diet again is quite trendy at the moment, especially it being January. Basically its people living for probably usually about 7 days, just purely on juices. We have to be very careful about this because it’s not really training you on how to eat healthily so by the end of your juice diet you can just go back to your normal unhealthy eating habits. But also with juices, they tend to be predominately fruit, which can be high sugar content. So not the healthiest of thing, not something a nutritionist usually recommends.

PatientTalk.Org- Is there much evidence of self-diagnosis? How is it done? What are the dangers, if any, associated with self-diagnosis?

Shona Wilkinson – Yes the study done by Nutricentre shows that 40% of people have eliminated food groups from their diet just on self-diagnosis. This is usually just by monitoring their symptoms, some people keep a food diary and monitor any symptoms they’ve got after they’ve eating a certain type of food. A lot of people reading things on the internet. There aren’t really any dangers of this unless you’re cutting out a food group and not getting the nutrients that you need. So for example if you become a vegan, then you have to be careful that you’re still getting the nutrients that you need there. Self-diagnosis can also be done through a blood test, which is quite an accurate way to see if you’ve got a food intolerance. There’s lots of other tests out there which I wouldn’t necessarily recommend, but a blood test is the most accurate.

PatientTalk.Org – Does this trend suggest a decrease in confidence in traditional health care providers?

Shona Wilkinson- I don’t think it does, I think it’s just that people are more health aware nowadays, and they have access to more information through the internet.

PatientTalk.Org- What common ways are used by empowered patients to improve their health?

Shona Wilkinson- Yes, I think people are now more aware of their health. They’re more aware of where to find out information. I think also people know that if you cook your food at home you know exactly what’s going into that food. Whereas if you buy a ready meal for example you can probably guarantee it’s got sugar and salt in it to begin with because that’s what our taste buds like. So I think the health empowered patient is knowing that they want to cook their food at home and be a bit more aware of exactly what they’re eating.

PatientTalk.Org- Finally what advice would you give to somebody who has just diagnosed themselves with an allergy or intolerance?

Shona Wilkinson – Yes I wouldn’t like to think that anyone is diagnosing themselves with an allergy that has to be done by a medical professional. If they think they have a food intolerance, try keeping a food diary and making sure that you do. And perhaps speak to a nutritionist to get some advice, the best way to deal with this.

Diet and Multiple Sclerosis – Are you on a special diet for your MS?


Diet and Multiple Sclerosis

Diet and Multiple Sclerosis

As some readers of this blog will know i have for a long time been interested in the relationship between diet, food and multiple sclerosis.  Indeed I have covered the subject before in a couple of blog post here (https://patienttalk.org/tag/diet-and-multiple-sclerosis/) which you may find of interest.

In the past we have looked at the paleo diet (https://patienttalk.org/ms-and-diet-multiple-sclerosis-and-the-paleo-diet/)  and the gluten free (https://patienttalk.org/multiple-sclerosis-and-diet-part-two-ms-and-the-gluten-free-diet/).  But there are many others such as the Wahl[‘s diet (http://terrywahls.com/about/the-wahls-foundation/).

The aim of this blog post is two-fold.  Firstly we are interested in finding out how many of our readers are using a diet to help treat their multiple sclerosis.   So I have set up a short poll and the end of this post on the subject.  It would be great if you could take part. Secondly we are very interested in finding out more about that diet and how effective it is.  If you could share more about your diet in the comment boxes below that would be brilliant.

Thanks very much in advance.


NativeAtlantaGirl I started AIP Paleo in January – I admit I had preconceived notions about those “Paleo Crossfit” sorts… A friend suggested it – I said I would try it for 30 days. I thought I ate healthy, but I ate a lot of Greek Yogurt and wheat…
Within 3 weeks, my chronic joint pain COMPLETELY disappeared as well as chronic insomnia – I had been taking 75mg of Benedryl a night for years… so I decided to stick with it.
My primary complaints – fatigue, neurological issues, and balance have not been impacted. My motivation was not to lose weight, but I have lost over 50 lbs. And I no longer crave sweets/baked goods. Even ripe pineapple is “too sweet” for my liking now. I always struggled with food, but this completely altered my relationship – it is fuel, medicine, and I no longer obsess on “bad stuff”.
It was a challenge at first – I was focused so much on what I couldn’t eat… but I found a plethora of blogs and free ebooks with recipes to help me transition. I also thought it would be so much more expensive. Surprise: my grocery bill has not changed. Dairy, sports drinks, sodas are expensive! I found organic local produce at Farmers mkts is the same price or less, than regular at the grocery store. I do not shop at Whole Foods – but have sought out alternate resources. I do make my menus based on what is in season/less expensive and 90% of what I eat is local/organic/pasture-raised.
I cannot believe I haven’t had ice cream, cheese, or pasta in over 10months. I realize I have spent 40 years putting food with chemicals and inflammatory properties in me – so I cannot expect it to completely reverse things in a year – but this approach is right for me. I will be patient…

MS and Gluten free

MS and Gluten free

As regular readers may recall we ran a blog recently on the subject of multiple sclerosis and diet.  For the first post we looked at MS and the Paleo or caveman diet.  You can read up about it here https://patienttalk.org/?p=1383.  As you can see it created a lot of interest.  A number of commenters both on our blog and on the Facebook MS page (https://www.facebook.com/MultipleSclerosisTalk) said they had found benefit from a gluten free diet.

So we thought we would look more closely at the gluten free diet and how it might be of value to people with multiple sclerosis.

Now gluten free diets are used to treat a number of medical conditions.  Obviously gluten intolerance and the similar, but unrelated condition, Celiac, come to mind.  You can find out more about Celiac in a past blog here https://patienttalk.org/?p=349.

So what is a gluten free diet?  Well, as the name suggests it is intolerance to gluten, a protein found in wheat and other grains such as spelt and rye.

This means that people who require a gluten free diet need to avoid products from those cereals.  So typical cereal-based items which need to be avoided can include bread, pasta and beer.  That being said, gluten free alternatives are available and they include other grains and starch sources which include chick pea flour, arrowroot, millet, quinoa, taro, teff, chia seed, almond meal flour, coconut flour, pea flour, corn-starch and yam.  These are normally available in your local health-food store.

Now many people with MS do find improvements with the diet.  This may be in part due to “non-celiac gluten sensitivity”.  It is thought that such sensitivity in a person with multiple sclerosis may increase the severity of their neurological symptoms.

One of the objectives of this blog post is to allow our readers to share their experiences with the gluten free diet as a treatment for multiple sclerosis.  It would be great if you could tell your story in the comments box below.   You may wish to think about the following questions when framing your answer.

a)   Have you ever used the gluten free diet to treat your MS?  And for how long?

b)  How effective was it?

c)    Tell us a bit about the realities of the diet.  Was it more expensive and time-consuming?

d)  Please share an average day’s menu with us.

e)   Would you recommend this diet?

f)     Any advice for a person with MS about to embark on a gluten free diet.

Feel free to use the comments box below to share your story and include any links you think may be of use.

Thanks very much in advance.