Multiple Sclerosis Are you the only person in your family to have been diagnosed with MS?

Tie One on for Multiple Sclerosis

Tie One on for Multiple Sclerosis

Are you the only person in your family to have been diagnosed with multiple sclerosis?

Actually this is quite an important question as many people in the multiple sclerosis community are concerned that others in their family will develop the condition.

Some years ago when I discussed the question with a neurologist they said , rather lamely, that it was genetic in some cases.

So I thought the most useful thing to do would be to ask my readers. This should tell us a bit more about the incidence of multiple sclerosis in families.

Please feel free to add any thoughts you might have about ms and genetics in the comments section below!

 

patienttalk
patienttalk.org
LeslieCarbaughEvans Seems a sensible idea
LeslieCarbaughEvans Also, my daughter is having her young sons tested
LeslieCarbaughEvans My daughter was diagnosed in her 20’s and I was diagnosed in my 50’s. No one in MY family has/had it. However, my first husband and father of my daughter had MS, as did his sister and mother. And no, he and I weren’t related, ha! SO it was bizarre when I was diagnosed, which I guess means my daughter got a double dose.
LeslieCarbaughEvans Mamaw5
Cindyk54 I am the only one in my family that has MS. I am thankful for that.
patienttalk
patienttalk.org
klane2325 Have you considered genetic testing?
patienttalk
patienttalk.org
JennieJo Not sure you do get kids diagnosed with MS
JennieJo I am the only one who has MS in my family. It was a very challenging thing to accept and understand when you never saw it coming. I am 50% Latvian 25%polish 25%Irish. .with that being said my natural born genetic makeup consists mostly to people who are in a region that is not near the equator, fair skinned, and usually low in Vitamin D due to lack of sunlight. Not sure if that could be a link? I also am extremely low in B12. My body doesn’t absorb it unless I get the monthly injection . Im 27 and was diagnosed at age 20 . Which I am told that is pretty young to have this diagnosis.
klane2325 My father’s brother has been diagnosed with MS and so has my mother’s niece. I worry for my children because my husband’s grandmother had MS as well. I was diagnosed November 2015.

Free webinar on multiple sclerosis and pain management

One of our readers has written to us saying “I wanted to let you know that on December 2 2015 at 1PM EST we are conducting another webinar for the MS community. The webinar will be hosted by Dr. Yael Wilnai who will discuss topics of pain management, genetics of Multiple Sclerosis and a review of the latest clinical trials. We will also have a guest speaker Ms. Yvonne Decelis who is affected by Multiple Sclerosis and Fibromyalgia and she will speak about her patient journey and how she uses nutrition and exercise to manage her conditions.

I would appreciate the opportunity to offer your members our webinar and am including an invitation and banner that provides more details. The registration link is www.genefo.com/webinarms.”


GeneFo Multiple sclerosis webinar

GeneFo Multiple sclerosis webinar

GeneFo Multiple sclerosis webinar

GeneFo Multiple sclerosis webinar

Creating a Special Gift with a Family Tree – a guest post from Suzie Kolber


This is a bit of an odd choice of guest post to be selected for inclusion in a healthcare blog but

Suzie Kolber

Suzie Kolber

please bear with me.

Over the last few years it has become increasingly obvious that many conditions , such as autism or multiple sclerosis, have a genetic or inherited element to them. So if one is going to take part in genetic counseling , and many of us will it is good to have at least some idea of our family tree. So Suzie Kolber very kindly offered to provide us with an outline of how to set up a family tree.

Kolber writes “Researching your family history can teach you a lot about your ancestry. It also makes a wonderful gift once you have completed your research. Give it as an anniversary present, birthday gift or for other special occasions. If this is your plan, you need to begin early, especially if you plan to go in-depth with your research.

Set a Goal

You have numerous options for how you want to create your family tree. You may want to select a template that covers three or four generations related to the recipient of the gift. This option will have special meaning since the person already knows the people listed.

You may prefer to be more historic in your approach and select a ten- or eleven-generation family tree template. This option makes for a wonderful gift that will appeal to many people. Just be prepared that the research could take you several months so play far ahead if this is the approach you choose.



Another option is to take smaller templates and create multiple family trees. For instance, you may decide to cover the ancestry of all of the person’s grandparents. You would create four separate templates that could be placed together in a large frame. You would probably select three- or four-generation templates to ensure that everything fits in the space and isn’t too overwhelming.

Choose a Template

Once you know what kind of research you will need to do and how much information you want to present, you need to decide on the format. Numerous options are available to suit many tastes. A landscape family tree template is a classic choice with ovals where you can put either information or photos.
Bowties and wide or tall trees are other options that are ideal for three- or four-generations. They often allow you to include photos or more information other than just the names to personalize your design.

For more in-depth research, you can also use the bowtie design. You may also want to try a circular pattern to fit more names into the space. A chart format is another option when you have a lot of names to include. It is easy to read and keeps everything organized. To be more decorative, choose a template that includes a border. You can even find ones that allow you to input the family crest.
Give the family tree as a wedding or anniversary present and include both families of the couple on your template. A bowtie design is the ideal choice for this gift and is easy to read.

When giving a gift of a family tree to someone, you want it to be visually pleasant to look at and easy to follow. You may want to include photos or more data to create a gift that is interesting and will have meaning to the recipient. This is both a unique and heartfelt gift that you put a lot of time and effort into. Choose the right design for your gift that fits the information you collected and puts it into a lovely display. ”

Fibromyalgia and Genetics! Do other members of your family also have Fibro? Take our poll and share your experiences?

Fibromyalgia

Fibromyalgia

As I’m sure you are aware that many medical conditions, such as cancer or sickle cell anemia, have a genetic component.

On the other hand there are other conditions which may only be genetic in some cases.

What about fibromyalgia?  We thought it would be interesting to find out from our readers if any of their family members have fibro or exhibit symptoms of fibromyalgia without a diagnosis.

Feel free to use the comments box below to add any thoughts you may have on the subject of fibromyalgia and genetics

Many thanks in advance