fibromyalgia

5 Comments Posted on Fibromyalgia, Pain Management

What is your worst symptom of Fibromyalgia? Please take our poll!

While pain seems to be the most common symptom of fibromyalgia is is certainly not the only one.

Fibromyalgia

Fibromyalgia

You may find a previous blog which explores some of these issues with fibromyalgia of interest https://patienttalk.org/?p=451

So we thought it would be useful to run a poll among our readers to find out which aspect of fibro is the most debilitating.

It would be great if you could take part in the poll and use the comments box below to share your views and experiences.

Thanks very much in advance

 

Leave a comment Posted on Fibromyalgia, Patient Talk

Fibromyalgia and Genetics! Do other members of your family also have Fibro? Take our poll and share your experiences?

Fibromyalgia

Fibromyalgia

As I’m sure you are aware that many medical conditions, such as cancer or sickle cell anemia, have a genetic component.

On the other hand there are other conditions which may only be genetic in some cases.

What about fibromyalgia?  We thought it would be interesting to find out from our readers if any of their family members have fibro or exhibit symptoms of fibromyalgia without a diagnosis.

Feel free to use the comments box below to add any thoughts you may have on the subject of fibromyalgia and genetics

Many thanks in advance


Leave a comment Posted on Fibromyalgia, Patient Talk

Getting diagnosed with Fibromyalgia. What tests were used to find out if that you have Fibro?

Fibromyalgia and household gadgets

Fibromyalgia and household gadgets

Welcome to our latest fibromyalgia blog on the subject of your FMS and the tests used for  its diagnosis.

The aim of this blog is to find out more about the experiences (and stories) of people who have been diagnosed with fibromyalgia and their friends and families.

One of the reasons for this is the attitude to Fibro of physicians.   Many people with Fibro will be familiar with the saying “it’s all in the mind” being directed at them by healthcare professionals and friends alike.  Indeed there are still some doctors who say the condition does not actually exist.

We should like to focus therefore on the story of the tests used for diagnosis of fibromyalgia. In particular we are interested in the following questions:-

Firstly, have you actually been diagnosed with fibromyalgia yet?

  • Were you diagnosed by a specialist or primary care physician?  Did you find them sympathetic to the condition?
  • What symptoms did you exhibit before and after diagnosis?
    What was your physicians’ attitude to your symptoms?
  • Were you given a “table tilt test”? What other tests were used?
    How would you like to see the diagnostic process improved?

Finally, if you have any advice for other patients or suggestions as to other resources please do not hesitate to add them to your blog comments.

Thanks very much in advance for your help.

4 Comments Posted on Fibromyalgia

Fibromyalgia – How long did it take you to get a diagnosis of fibromyalgia?

One of the first things I noticed about fibromyalgia was the time it seemed to take for a person to

Fibromyalgia

Fibromyalgia

get diagnosed.

We are there for running a poll to try and find out what was the general experience of our readers. The poll is below and it would be great if you could take part.

Please feel free to use the comments box below to share more about your fibromyalgia diagnosis story.  Hopefully other readers will be able to benefit from the knowledge you have picked up during your journey!

 


 

SandyJean Actually it took almost two years.  I kept going back to the doctor for sever pain that did not seem to be in the same place all the time.  It moved around my body.  Finally my family physician suggested I see a Rehumetologist.  After a few visits and trying several medications that only upset my stomach he sent me to see a neurologist.  He tried to do a nerve conduction test and could not get the needles in my back because the muscles were so (threaded) as he called it.  They were extremely tight.  So he started finding my pressure points and found i had pain in 13 points.  That was over 20 years ago.  9 years ago i had to apply for dissability because the pain has become more intense and lasts longer the older I get.  If only a medication could be found with NO SIDE EFFECTS.  I am tired of the weight gain and the stomach upset and the sleepless nights do to medications.  So I deal with it and use only over the counter meds.
MichelleBennett In reply to BobbielynHarrsch.BobbielynHarrsch thats what they probably did to me also
authorKJRoberts I said 6-12 months in the survey because it was 7 months after I had a bad flare that I was diagnosed. I believe it was my first real bad flare. But I really believe I’ve had fibro my whole life. I wasn’t going to the doctor for a lot of other things. I just wasn’t going to the doctor, but looking back, I think I was born with it. So, if that is the case then it was 27 years before I was diagnosed.
BobbielynHarrsch I was going to a clinic for many years, for several health issues, lower back, knees, migraines, neck,  elbows, depression, arthritis, asthma. I finally got a private Dr I could afford, the second year I was with him I asked him to fill out a form for my boss, and he listed Fibromyalgia  as one of my diagnoses! I did not notice it, when I brought the form into my boss, his wife was the one who spotted it and said “You never told me you had this too, what do you take for it, I’m on Cymbalta” When I went for my next Dr’s appointment he said “I thought you knew, it is in your clinic records 9 years back!”
19 Comments Posted on Pain Management

How does the change in the seasons and temperature impact your pain levels?

Pain

Pain

With Winter drawing in in the Northern hemisphere conversation on our pages has turned to how the cold weather might affect pain levels.  This is very much the case for people with fibromyalgia and multiple sclerosis.

For some winter means increased pain but for others the opposite is true.

As part of our series of pain management blogs we have decided to run a poll of our readers to see if there is any pattern.   It would be great if you could take part in the poll below.

Feel free to use the comments box to add anything you think will be of interest to our readers.