fibromyalgia

7 Comments Posted on June 23, 2014February 8, 2017 Fibromyalgia, Patient Talk

Fibromyalgia and household gadgets. What household gadget has been most useful to you as a member of the fibromyalgia community?

Serious question!

Fibromyalgia and household gadgets

People talk a lot about therapies for fibro and ME etc and certainly they are very important.

But we all often forget the little things.

So I was wondering as a member of the fibromyalgia community what household item have you found the most useful?

It could be a bit of kit which helps you open jars or maybe a way of cutting the grass on the lawn which does not cause too much fatigue.

What ever it is we would love it if you would share in the comments box below. Also could you tell us what you use the gadget for please?

Thanks very much in advance.

1 Comment Posted on June 18, 2014June 18, 2014 Fibromyalgia, Pain Management, Patient Talk, Research

Looking for people with lower back pain or fibromyalgia to take part in an opinion survey. You might win $50.

University of Colorado Denver

This is the third in a series of survey invitations by Jessica Payne-Murphy, of the University of Colorado Denver, to participate in a survey on pain. She is, in particular, looking for people with lower back pain to take part. If you do participate you will be entered into a draw and you could win $50 worth of Amazon vouchers.

Please feel free to share with you friends and family.

As they say “If you aren’t in you can’t win”!

Payne Murphy writes “If you have already completed this research survey, thank you and there is no need to complete this again.

You are invited to take part in a research study: Acceptance-Based Factors in Chronic Pain: A Comparison Between Fibromyalgia and Low Back Pain Patients in an Internet Support Group Sample (COMIRB No: 13-3263). This study is being led by Jessica Payne-Murphy, M.A. at the University of Colorado Denver.

The study involves answering a series of online questionnaires designed to increase understanding of chronic pain. We are inviting participants (age 18 and older) who have been and are currently managing low back pain or fibromyalgia for at least 3 months to complete an online survey. It is anticipated that this survey will take approximately 30-45 minutes of your time to complete.

If you choose to participate in the study, you will have the opportunity to enter a drawing for one of up to ten $50 Amazon.com or Amazon.eu gift cards.

In addition, we request that you forward/share the survey link to other individuals with chronic low back pain or fibromyalgia who may wish to participate in this study so that they may have the opportunity to assist us in gathering information about chronic pain and online support groups.

Please click on the following link if you are interested in learning more about the research study”

If you have any questions or concerns, please contact me

Thank you!

6 Comments Posted on June 17, 2014February 10, 2017 Fibromyalgia, Patient Talk

Now Updated – Fibromyalgia Tattoos – Why not share yours?

A few months ago Sheely shared a picture of a fibromyalgia and cancer tattoo she had recently had completed. She said “I thought i would share my finished tattoo. Thinking of all those who are suffering XXX big hugs xxxx”

Shelly’s Fibromyalgia Tattoo

We we thought we would take this opportunity to share it with our readers and to find out if anyone else might care to share their FMS body art.

Medical and healthcare related tattoo seem to be popular for two reasons. For people with diabetes it is a great tool to let ambulance people, nurses and doctors know about their condition in case of diabetes related coma or a car accident.

Within the fibromyalgia community on the other hand tattoos are used as a great way of increasing awareness of fibro and, in some cases, for showing support for a loved one.

PatientTalk.Org thought it would be a good idea to provide a blog post where our readers could share their fibromyalgia tattoos

So please feel free to post a picture of your multiple sclerosis tattoos in the comments section of this blog. If this proves a problem you can email your picture to us at info@patienttalk.org and we will post them on your behalf.

3 Comments Posted on June 16, 2014September 13, 2017 Fibromyalgia

“I don’t look sick” – Life with Fibromyalgia – Please like and share Donnee Spencer’s great infographic which explains to others what it is like to have Fibromyalgia

< "I don't look sick" Please like and share Donnee Spencer's great infographic which explains to others what it is like to have Fibromyalgia. “I don’t look sick” – Life with Fibromyalgia – Please like and share Donnee Spencer’s great infographic which explains to others what it is like to have Fibromyalgia[/caption]

1 Comment Posted on June 15, 2014September 28, 2017 Fatigue, Fibromyalgia, Multiple Sclerosis, Patient Talk

Fatigue ” I can’t remember what it feels like not to be tired!” – Donnee Spencer has produced a brilliant infographic to help educate the world about life with fatigue.

Fatigue from Donnee Spencer

Donnee Spencer has very graciously let us share her brilliant new infographic about fatigue. While Donne is a member of the multiple sclerosis community this really applies to so many other conditions such as cancers or fibromyalgia. it would be really great if you could share this as widely as possible.

Donnee shares “This was my third of four MS poster creation I started creating them last year in an attempt to help MS’ers explain to others what it is that we go through The extreme fatigue we live with is one of the hardest things for others to understand!”

Many thanks.