Gender and Fibromyalgia – Can you please take our poll?

Gender and Fibromyalgia

Gender and Fibromyalgia

As people in the fibro community know – facts about the prevalence and nature of the condition are pretty sparse. Even today there are some Doctors who deny its very existence. Diagnosis and many of our readers pointed out here can be very difficult. For lots of reasons as you can see.

Indeed it is unclear still if fibromyalgia is an autoimmune condition. Now, as it happens, autoimmune conditions seem to impact more women then men. According to the American Government’s National Institute of Arthritis and Musculoskeletal and Skin Diseases between 80-90% of those affected are women.

But is this actually true?

A way of finding out is to ask you the fibromyalgia community. So we have set up a poll to ask people with fibro what gender they are.

The poll is below but do feel free to share it with as many people as possible. The larger the sample the more accurate the results!


Thanks for your help.

What type of Fibromyalgia do you suffer from? Please share using our poll!

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Pain

Pain

A couple of days ago, minding my own business, I can across the web site of Dr. Blair Lamb . While a bit of a curates egg it is well worth the trip over because of some very useful information and ideas on pain and pain management.

I was particularly struck by a very interesting article he wrote on types of fibromyalgia.

He broke fibro down into the following categories which I thought was pretty useful:-

  • Post-Traumatic
  • Repetitive Strain (or Repetitive Traumatic)
  • Mood-Related & Sleep disruptive
  • Rheumatoid and Chronic Disease
  • Hormonal
  • Age-Related
  • Or a mixture of any of the above

You can check out his excellent article for more information about each description but I think they do explain themselves.

So my question to you is which of these types of fibromyalgia do you have?  Please share your thoughts in our poll below.

If you feel that none of them match your experience of fibro please feel free to tell us more in the comments section below.

Many thanks in advance.


Fibromyalgia. At what age did your first symptoms of Fibro appear? Please take our poll and share your story!

Age and Fibromyagia

Age and Fibromyalgia

Welcome to the first in series of blog posts and polls looking in some detail at fibromyalgia and the relationship between age and diagnosis.

We would like to start of with a short poll which ask the question “At what age did your first symptoms of Fibromyalgia appear?”.



Once you have taken the poll it would be great if you could share more information about those symptoms in the comments section below.

Please remember that it would also be great to hear from caregivers and loved one of people with fibromyalgia!

Fibromyalgia – Seeking people with fibromyalgia – Nursing students MacEwan University from would like you help with a very short survey.


MacEwan University Fibromyalgia Research

MacEwan University Fibromyalgia Research

A couple of days ago Maria Keirstead got in touch with us at our FaceBook Page FibromyagiaTalk.

Keirstead wrote “My name is Maria and am a third year nursing student at MacEwan University in Edmonton, Alberta. Myself and another student, Jessica, are currently working on a project related to fibromyalgia and have created a questionnaire to help guide us.”

With Fibro being one of the big subjects covered by this blog we are delighted to help Maria and Jessica in any way we can.

You can download the questionnaire here.Fibromyalgia Questionnaire from MacEwan University.

It would be great if you could respond by September 17th, 2014. Thank-you so much.
If you have any questions for us or would like to reply via email, we can be reached at flemingm16@mymacewan.ca or use the comments box below!

We are always delighted to help promote our readers events, blogs, research and publications. Indeed if you have anything you would like us to blog about please email us at patienttalkblog@gmail.com. Thanks.


Fibromyalgia and household gadgets – What household gadget have you found useful since you were diagnosed with fibro?

Fibromyalgia Awareness

Fibromyalgia Awareness

A few years ago when I started conducting research with people who had a variety of medical conditions one of the more surprising outcomes was that a lot of people mentioned that they were helped by simple household tools and gadgets just as much as they were helped by more formal treatments.

In my previous job we explored this is quite a bit of detail. A few years on i thought it would be interesting to see if this was still true today and what household gadgets and devices people with fibromyalgia found of use in dealing with the condition!

To do so I thought it would be interesting to poll the members of our Facebook discussion page FibromyagiaTalk. So a week or so ago we asked the question “Do you have a household gadget which ask provided you with particular help since your first symptoms of fibro?”

I have to say the results were fascinating as you would expect!

One item mentioned by a lot of responders was electric blankets. Indeed Pamela shared “Electric blanket has gotten me out of many binds. Also electric fireplace – I sleep on a dog bed all wrapped in blankets.” She goes on to mention “Drinking vanilla protein powder in ice water has fixed my binging on carbs which always brought on symptoms. Also it takes the place of iced tea or diet coke, which also did bc of caffeine. Dole fruit in 100% juice replaced the candy I was using to stay awake and functioning. Pushing past whatever physical, mental or emotional limits I think fibro sets for me has been my best gadget tho prayers to everyone struggling with it”

Aids to keeping warm are also mentioned in particular both Heather and Marsha mentioned heating pads. TENS machines also got mentioned by Kate.

Wendy commented ” “Walking stick, raised toilet seat, jar and bottle openers, electric can opener, back scratcher, shoe horn, safety handle on my bed to help with lying down and sitting up! Tubigrip and joint supports for my feet/ankles, knees, wrists and elbows! “. All great ideas.

Lesley said “I have a hot water dispenser instead of a kettle it makes things easier x”.

While Paula told us “Scissors..of course that might be helpful with all the arthritis I have also. I keep them everywhere”.

And Su offered “Grab rails in the bathroom over bath and in shower”.

Other however took a different approach. Sue-Ann said ” Although it’s probably not a household gadget, I will share that I play guitar. The nylon strings don’t sound like the steel that I love. I have found silk coated strings made by D’Addario. So for all u string instrument players suffering with fibromyalgia who love ur steel string sound….these give u the sound u love w/o the stress on ur fingers. ” And Debbie said “I love to sing and I mostly sing gospel music. It helps a lot and my gadget is my electric throw and my husband is awesome he takes care of me when I have a flare”.

The final comment I would like to mention is from Shay who gave us this plea: “I would like to start a campaign to ask vacuum manufacturers like Dyson to make the height of the handles adjustable so that particularly tall people like myself don’t have to stoop all the time while using them. This post is kind of the opposite of the question asked. My vacuum is the instrument that most frequently causes me extreme pain since the onset of #fibro. ”

So over to to you. What would you add to this list?

Feel free to add you thoughts and ideas in the comments section below.

Many thanks in advance!