People with Fibromyalgia – how well do you feel fibro is understood by the healthcare professionals who treat you?

A growing chorus of discontent suggests that the once-revered doctor-patient relationship is on the rocks.

A growing chorus of discontent suggests that the once-revered doctor-patient relationship is on the rocks.

Yes I know it is a bit of an odd question.

But when I started out in healthcare market research all those years ago many of the people with fibro we spoke with felt that many doctors seemed not even to believe that fibro existed.

For some this made diagnosis virtually impossible.

Has this changed?  To find out we have decided to run a  short poll which you can find below.

If you want to expand on your thoughts please feel free to use the comments boxes below.

Many thanks in advance.


Fibromyalgia. What were your first signs and symptoms of fibromyalgia?

Lady Gaga - does she have fibromyalgia?

Lady Gaga – does she have fibromyalgia?

Welcome to the latest in our series of fibromyalgia blogs where we explore your experiences of the early signs and symptoms of fibromyalgia.  You can see all our previous fibro blogs here – https://patienttalk.org/?tag=fibromyalgia.  Well worth it as there are some great fibro hints.

All of us are individuals who may suffer from the same medical conditions but in very different ways.  We hope that you will use this blog to share with our readers your fibro story.  In particular the early signs and symptoms of fibromyalgia.

For most people with fibromyalgia the key symptom is widespread and long term pain.  The effect on our lives can be debilitating.  People with fibro also may suffer from what is called Allodynia.  This is where a person feels pain from a source which normally would not provoke pain.  A good example of this would be a change in temperature or sometimes just even touch.  Nerve or neuropathic pain is also common.  Check out our previous blog on the subject – https://patienttalk.org/?p=281.

Common signs and symptoms of fibromyalgia can include:-

a)      Fatigue.  This in some cases can be extreme.  Please check out our previous blog about ways of fighting fatigue – https://patienttalk.org/?p=239

b)      Related to this is what is often described as “Fibro Fog”.  These are problems with both memory and concentration which lead to a sense of confusion.

c)       Irritable bowel syndrome.  Normally either diarrhea or constipation but sometimes  bloating as well.

d)      Sleeping issues which can include insomnia.  For more information please take a look at this blog https://patienttalk.org/?p=246.

e)      Depression and anxiety.

But, of course, fibromyalgia is a syndrome.  A syndrome could be described as a “constellation of symptoms”.  This means that each person with fibromyalgia experiences it in a unique way.

This is where you come in.  We would be very grateful if you could share your experiences of the signs and symptoms of fibro with other readers.  As always we are very interested in anything you have to share but you may find the following questions a good guide:-

1)      What was your first symptom of fibromyalgia?

2)      How long after it appeared did you get diagnosed with fibro?

3)      What sorts of pain do you experience with your fibromyalgia?

4)      What would you say is the worst symptom of fibro?

5)      How do you manage your symptoms?

Please feel free to add anything you think will be of use or interest in the comments box below.

Thanks very much in advance.

Fibromyalgia Documentary – Getting Our Lives Back from Dr Melissa Congdon

Dr Melissa Congdon

Dr Melissa Congdon

Dr Melissa Congdon is not just a doctor who treats fibromyalgia she is herself a person with fibromyalgia.

In this brilliant documentary she explodes so many of the myths around fibro and at the same time she shows people getting their lives back.

Please watch below. If you have any comments feel free to share in the comments section below.

Fibromyalgia – Would you wear a purple tie to help us raise awareness of Fibro? #tie1on4fibro

#tie1on4fibro

#tie1on4fibro


Would you wear a purple tie to help us raise awareness of Fibro?

Simple as that really.

Please would you answer yes or no in the comments section below. Even better when not share a picture of you in purple tie below!

Thanks and Tie One on for Fibromyalgia!




Fibromyalgia Awareness Day May 12th 2016 – please share this Facebook cover on social media

Fibromyalgia Awareness day 2016

Fibromyalgia Awareness day 2016

As many of you know this Thursday is Fibromyalgia Awareness Day.

We have prepared a Facebook cover in honour of all those who live with fibro. It would be great if you could use it on your profile and share with friends and family to help us raise awareness of the day.

It would be great if you could use the comments section below to inform our readers of any events which are being planned to mark Fibromyalgia Awareness Day!