Decoding My Autism
Why we do this?
My son was diagnosed with Autism when he was 8. I was trying to explain Autism and the spectrum to my husband. He was having a hard time understanding, and knowing that my husband works with computers I said to him, “Think of your MP3 player, your phone, and tablets. They are all different operating systems, you have to program them differently. Our son learns on a different operating system.” After thinking about it for a minute he then asked, “Well, why can’t his operating system come with a manual or a book?” One with just his symptoms and a guide how to understand him.” That is how this book came to be.
… I have a different operating system. Different but not inferior.
What is our Goal? How we are achieving our Goals.
In the gap of time between testing and receiving your official diagnosis you will have a lot of questions. In this period endless, stressful time you will go online and read everything you can find on Autism. Between my wife and I we read at least 100 books and articles on the subject. These books were great and helped us to better understand but most had general information, not specifics to our child. This is where our idea is a little different, we have taken the basics, personalized it, and put the information into a very easy to understand handbook. I jokingly said, “Wouldn’t it be nice if we had a book of everything someone else needed to know about our son, without preconceived ideas. A handbook.” My wife didn’t say “No”! So, after a lot of consideration, we came up with this basic concept:
Go to the website: www.decodingmyautism.com
- Pick the cover.
- Pick the pages that you want in your book.
- Your custom book will be put together.
If you decide you want something more customized, or want the model changed to look like your child, we have packages. (Based on Availability of Artist). We can customize anything and want to add more available pages as we go on. We use 3D modeling to help make sure that our pages are as informative and respectful as possible.
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Think of yourself taking your child to the park on a perfect day. Everybody is happy and in a good mood. If you as parents left your child with another fully qualified adult that understood everything about Autism, but didn’t know your child specifically. What 10 things would they need to know to watch your child for 1 to 2 hours? What are some of the responses and triggers that could cause a pleasant afternoon to turn into a meltdown?
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This is the perfect book to give to a coach or social leader that can be quickly read or referenced with little effort.
We are committed to making these books as complete as possible. We know this works because we have used this book in our own life. We want to thank PatientTalk for allowing us do a guest blog, and get our message out to all of you. All pre-sales are going toward improvements on the book, also adding more pages. We currently have 16 pages to choose from, and plan to add more in the near future. During development we hope to use our blog at http://blog.decodingmyautism.com to get suggestions from the communities and make sure we can cover what is needed more completely.
We know that children may have multiple diagnosis so we are plan to launch “Decoding My ADHD” as soon as funds become available. We believe this can help not just our community but also other communities that have some of the same needs. Another book we are looking to do is “Decoding My Dementia”. We believe if a picture is worth 1000 words, then we should be able to condense down symptoms to their most basic picture to make sure all levels can consume this information as needed.
Thank You:
Angie & Chris Bayne