Healthcare costs for adults with autism more than double those for general population

Autism and Teens in Hospital

-Researchers compared total annual healthcare costs for adults on the autism spectrum to costs for adults with attention-deficit and hyperactivity disorder (ADHD) and adults in the general population and found them to be 20% and 70% higher, respectively. Adults on the spectrum also had increased use of specific services, such as primary care, mental health, and laboratory services, but lower use of gynecology visits and screening for cervical cancer. The study, “Healthcare Service Utilization and Cost Among Adults with Autism Spectrum Disorders in a U.S. Integrated Healthcare System,” was coauthored by Ousseny Zerbo, PhD, and colleagues from Kaiser Permanente Northern California, Oakland and Santa Rosa, and is published in the preview issue of Autism in Adulthood, a new peer-reviewed journal from Mary Ann Liebert, Inc., publishers. The preview issue is available free on Autism in Adulthood website.

“Most of what we know about autism comes from research on children. Zerbo and colleagues’ study–the largest to date looking at the healthcare utilization of adults on the autism spectrum–highlights the importance of considering autism throughout the lifespan,” says Christina Nicolaidis, MD, MPH, Portland State University and Oregon Health & Science University, Portland, Oregon and Editor-in-Chief of Autism in Adulthood.

Additional articles in the preview issue include two perspectives that envision a way to ad-dress the health disparities experienced by adults on the autism spectrum. “Community Mental Health Services for Autistic Adults: Good News and Bad News” focuses on the cur-rent state of community mental health services in the U.S. for autistic adults who have co-occurring psychiatric conditions, such as depression or anxiety. Coauthors Brenna Mad-dox, PhD, Perelman School of Medicine, University of Pennsylvania, Philadelphia, and Va-lerie Gaus, PhD, a licensed clinical psychologist in Huntington, NY, highlight recent posi-tive developments, summarize continuing barriers to providing affordable mental health care for this patient population, and provide recommendations for patients and their fami-lies, clinicians, and health system administrators.

In “Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People,” coauthors Georgina Warner, PhD and James Cusack, PhD, Autistica, London, U.K. and Jeremy Parr, MD, Newcastle Uni-versity, Newcastle upon Tyne, U.K. present the results of a collaborative workshop de-signed to identify priority research areas for improving the physical health and well-being of adults with autism.

“Both of these perspectives articles help us envision a path forward to addressing the health needs of adults on the autism spectrum,” says Dr. Nicolaidis. “These discussions capitalize on the experience and wisdom of researchers, clinicians, autistic adults, and families. Autism in Adulthood will serve as a home for such dialogue – and for the research and scholarship that is necessary to allow all autistic adults to lead healthy, fulfilling lives.”

Researchers suggest parents, caregivers and financial institutions can play a role in helping young adults with autism improve financial literacy




Nancy Cheak Zamora, assistant professor in the School of Health Professions, found when teenagers and young adults with autism enter adulthood and age out of many of the services designed to help them, they often are anxious about how to handle new adult responsibilities such as paying bills and filing taxes. MU News Bureau




More than 3 million people in the United States are estimated to have an autism spectrum disorder diagnosis and annual diagnosis rates continue to rise. Researchers from the University of Missouri have found when teenagers and young adults with autism enter adulthood and age out of many of the services designed to help them, they often are anxious about how to handle new adult responsibilities such as paying bills and filing taxes. These findings highlight the importance of incorporating financial management into early education to empower young adults with autism.

Nancy Cheak-Zamora, assistant professor in the School of Health Professions, led a research team that conducted interviews with individuals with autism between 16 and 25 years old. Through the interviews, the researchers identified common themes regarding adulthood and financial skills.




“Most of the participants saw a definite association between adulthood and handling money,” Cheak-Zamora said. “Participants agreed that independence required managing finances and all expressed frustration in their own abilities when it came to knowing how to handle and use money. According to the participants, the lack of financial skills has serious consequences on their ability to assume adult responsibilities.”

This new research highlights the importance of implementing financial management programs early and tailoring them to the specific needs of people on the autism spectrum. Researchers suggest that financial management and literacy need to become an integral part of social services and education.

“Despite the importance of financial autonomy and the increased independence that comes from understanding money, financial management and decision-making often are seen as outside the purview of professionals working with young people with autism,” said Clark Peters, co-author of the study and associate professor in the MU School of Social Work. “Educational programs that include financial literacy in both schools and independent living programs could increase autonomy and quality of life for people with autism.”

Cheak-Zamora and Peters suggest that parents and caregivers can help by providing skills and encouragement. They say helping children with autism pay for items at a store and setting up bank accounts can provide the confidence needed to understand financial matters. They also suggest that financial institutions should play a role in helping customers with special needs, such as providing dedicated phone lines to assist consumers.

“Financial capabilities among youth with autism spectrum disorder,” recently was published in the Journal of Child and Family Studies. Michelle Teti, associate professor of health sciences, and Anna Maurer-Batjer, a graduate student in the School of Social Work also co-authored the study. Research was supported by the U.S. Army Medical Research Acquisition Activity and the Assistant Secretary of Defense for Health Affairs through the Autism Research Program. The content is solely the responsibility of the authors and does not necessarily represent the official views of the funding agencies.

 

Autism News Flash! The real cost of autism!


Autism Spectrum Condition

Autism Spectrum Condition

Well it is not really a news flash more the blinding obvious.

A report yesterday on the UK’s BBC web site announced “The economic cost of supporting someone with autism over a lifetime is much higher than previously thought, research suggests. It amounts to £1.5m in the UK and $2.4m in the US for individuals with the highest needs, say UK and US experts.”

Without wishing to sound rude to me, at least, as the parent of a child on the autistic spectrum it is not really news.

Indeed I suspect that the figure is much higher when you consider other ways we have had to change our lifestyles. For example where we live and what hours we can work.

The report from Journal of the American Medical Association Pediatrics also highlights how little is actually spend on autism research. In particular how little is spent on effective interventions. You can read up more here.

So what do you think? Do these figures sound reasonable? And I’d really like to kick off a conversation on how we should be spending money earmarked for autism research?

Have your say in the comment box below!

Thanks in advance.