Drexel Report: Low-income and minority youth with autism face worse outcomes than peers

 

“The 2018 National Autism Indicators Report: High School Students on the Autism Spectrum” highlights the challenges facing minority youth and those from low-income households. Drexel University

Youth with autism are growing up in a world where awareness of autism and expectations for full inclusion in society are increasing. Today, one in 59 children have an autism spectrum disorder (ASD) according to the Centers for Disease Control and Prevention. Because autism spectrum disorder is a lifelong neurodevelopmental disorder and no two youth with ASD are alike, their service and support needs vary and continually change as they age.

However, there are few current national statistics about the characteristics and needs of this growing and changing population. Such statistics are needed to ensure policies and programs are appropriately matched to the evolving needs of youth on the autism spectrum. This is where the National Autism Indicators Reports by Drexel University’s A.J. Drexel Autism Institute come into play, a series that has been produced since 2015.

The recently released fourth edition, “The 2018 National Autism Indicators Report: High School Students on the Autism Spectrum,” highlights the challenges facing minority youth and those from low-income households. Autism occurs in children from all backgrounds. But the impacts of autism are not felt equally across all groups. Youth from poorer households have fewer choices for services, fewer opportunities for work experiences and generally worse outcomes across a wide range of indicators. Minority youth often face obstacles accessing needed care and experience worse outcomes in many realms.

For the 2018 report, researchers looked at national data on youth ages 12-23 during their secondary school years.

Most notably, nearly half of teens on the autism spectrum live in households with incomes at or below 185 percent of the federal poverty level (about $45,000 for a household of four). One in four lived in a home that received at least one form of public assistance.

“We must understand that many families parenting teens on the autism spectrum are also struggling to make ends meet while trying to navigate complex systems of care and get the help their children need,” said Paul Shattuck, PhD, program director of the Autism Institute’s Life Outcomes Program and lead author of the report. “Moving the needle to improve young adult outcomes will require us all to acknowledge that we cannot disentangle helping youth from helping families – and that families have unique needs depending on their financial status. We cannot assume that programs developed to help relatively affluent families will work for financially disadvantaged families.”

African American teens with ASD were more likely to have difficulty than their peers in several areas, including communication, self-care and adaptive behaviors and independently getting places outside of the home. Twenty to 26 percent of teens on the autism spectrum were non-white and 11-15 percent were Hispanic. By comparison, U.S. Census statistics indicate that 26 percent of all 18-year-olds were non-white in 2016 and 22 percent were Hispanic.

Shattuck’s team found that service receipt and functional abilities varied widely across individual and household demographics. However, more help is needed in the transition to young adulthood for all youth and young adults with ASD. Being prepared for a healthy transition can set the stage for years of positive development.

“Inadequate preparation during the last few years of high school can hinder success on many fronts: physical health and mental health, employment, continued education, friendships and integration into community life,” said Shattuck “Students do not always receive transition planning, or sometimes it begins too late in high school to allow for adequate preparation. Community-based help is not always available after high school and this leaves many families struggling to navigate on their own and results in too many who are failing to launch successfully into adulthood.”

The report includes information from the National Longitudinal Transition Study 2012 (NLTS-2012) – a national survey that provides a window into the lives of high school students on the autism spectrum, youth with other disabilities, and those without disabilities. It also includes the latest data on health and health care access among youth with autism from the National Survey of Children’s Health (NSCH 2016).

“This report, like the others in the series, can inform the improvement of policies and community services that support the goal of an inclusive and just society where all persons have the ability to participate in meaningful life activities,” said Jessica Rast, co-author of the report.

 

Autism: How to make schools better for autistic pupils

School Bus

School Bus

One mother describes how low expectations of pupils with additional needs marred her son’s experiences of school

School for my son, Sandy* was always a challenge – but this wasn’t because of his autism, as you might expect. Instead, it was down to the low expectations that the education system has of him. This is not unique to where we live, it’s an endemic problem across the UK (we have experience of the English system, too) where academic progress for children with additional support needs is discouraged.

My son has quite an unusual presentation of autism. He’s very bright and interested in learning and school, but has difficulty dressing, cooking and can’t go out on his own. He has sensory issues and struggles socially.

So he just about coped in mainstream primary school. But when it came to secondary school, it was too hard for him to manage, and we started to look at special schools. But all the special schools we saw did not offer academic opportunities, which is where Sandy’s interest lies. We were given the impression that following an academic programme and taking exams was a route that was closed off to our son. We were told that wasn’t important – instead, the most important thing was that he could manage himself. He was offered training in practical skills to help him cook and garden, things that really do not interest him.

Read the full article here

Nearly a third of parents of children with autism have had to give up their job due to school exclusions

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Nearly a third of parents of children with autism have had to give up their job due to school exclusions

Parents of children with autism are regularly having to miss days from work, reduce their working hours or give up their job entirely, according to new research by Ambitious about Autism.

The charity surveyed over 900 parents and carers of children and young people with autism to find out their experiences of the education system.

The survey revealed the impact that school exclusions have on wider family life:

30% of parents said they had given up their job as a result of school exclusions.

29% said they had missed days from work.

20% said they had reduced their working hours to part time.

Parents also reported an increase in the number of unlawful exclusions affecting their children – with 56% saying their child had been sent home early, worked on a reduced timetable or asked not to come on a school trip – without an official letter being received.

In 2016, 45% of parents reported that their child had suffered an unlawful school exclusion.

The survey also revealed wider problems with how children with autism are able to access the right support at school. Nearly 40% of those who have a child with an Education, Health and Care plan (EHC) said they had waited over 18 months for an assessment. This is despite a 20 week statutory deadline for assessments. EHC plans place a legal obligation on local authorities to provide extra support for pupils with special educational needs.

Meanwhile 90% of parents said they stress of getting their child the right support at school caused them to lose sleep.

Jolanta Lasota, Chief Executive of Ambitious about Autism, said: “Children and young people with autism and their families are being badly let down by our education system.

“It’s very worrying that parents are reporting an increase in ‘unofficial’ exclusions – such as children being banned from school trips or sent home early. These add up to hundreds of hours of missed education, but they slip under the radar because they are not officially recorded. We must make sure schools are held to account if they break exclusions rules.

“The wider cost to families – and society – resulting from problems at school is very troubling. Parents are having to give up jobs to look after children forced out of education – creating even more stress and instability in their lives. We must work towards a more inclusive education system for the benefit of all.”

Earlier this year, Ambitious about Autism published findings showing official exclusions of autistic pupils have increased by nearly 60% increase since 2011.

The charity is running a campaign called We Need An Education calling for a fairer deal for children and young people with autism in education.

Boy with autism left with no school to go to for 12 months – I’m shocked what about you?

Image result for classroom youtube

A child with autism was left without a school place for 12 months following poor communication within a council, an investigation has found.

The boy, who was excluded from his primary school because of behavioural problems, was denied full-time education and support because council departments did not communicate with each other.

A Local Government and Social Care Ombudsman (LGO) report has concluded that Cornwall Council was “delivering a fragmented service to the detriment of [the boy’s] needs”.

The council, which has apologised to the family for “falling short” of standards, will pay them £2,500 to recognise the injustice caused as a result of missed education, distress and trouble caused.

A further £1,000 will be paid to the parents to “fund additional activities” for the boy’s needs.

Read more here

Ten Essential Life Skills for Autistic Students From Trisha Katkin

10 Essential Life Skills for Students with Autism By Trisha Katkin

10 Essential Life Skills for Students with Autism
By Trisha Katkin

Life skills are vital for everyone. These are the important life lessons that teach a child how to be independent. For students with autism, these skills are invaluable. Autistic students may not acquire basic life skills passively. They need a more direct route to be taught life skills. For many students, learning life skills will be more important than the dreaded common core.

  1. Safety Skills

Safety skills include rudimentary understandings of impending danger. Some children with autism do not understand that they shouldn’t run into a street or go off with a stranger. These are VERY important things for a student to learn. Safety skills include understanding of safety signs such as stop signs and street lights, but also what to do in an emergency.

In order for a student to be independent in the long term, they must know how to keep themselves safe. Staying indoors during a thunderstorm, calling 911 in an emergency, and how to properly shut off the oven or stove are just a few of the safety skills that a student would need to know before true independence.

Where to start? Take it slow. Start where the student is at. Teach safety awareness in a variety of settings.

At recess?

-Teach the student how to stay safe maneuvering around the playground equipment or how to swing without falling off.

In the classroom?

Trisha Katkin

Trisha Katkin

-Teach how to sit properly in a chair, not to rock back, and not to climb on desks or tables.

In the hall?

-Practice walking calmly, with hands by the side, and a quiet mouth.

Taking a walk?

-Practice learning the safety signs such as stop or turn it into a game by playing “Red Light, Green Light.”

 

  1. Communication

For me, I cannot imagine not being able to communicate. The frustration, the anger, and the yearn to be understood would otherwise consume me. Providing your students with a means of communication is critical. Find a communication tool that works for your student and is on their level. This can be gesturing to a desired object, a vocalization, use of PECs, or a AAC device. Start slow and work with the most important things to your student. If it is motivating to them, it is more likely to be communicated to you. Be open and discerning. Be observant.

 

 

 

  1. Self-Regulation

Self-regulation is tough. It is the idea that a student check in with themselves and see where they are at. It’s the idea that a student can think about one’s thoughts and understand how to cope with overwhelming situations and emotions. It’s sometimes called meta-cognition and is something that many neurotypical adults have a hard time with. Believe me, if you sat me in front of a plate of nachos and told me I had to wait to eat them, I wouldn’t last but 30 seconds. Teach the art of self-control. Help your students by teaching emotions and coping mechanisms directly. Discrete trial sessions are a good time to introduce new materials that you can then generalize to the rest of the day. Social stories are a perfect way to teach self-regulation skills throughout the day or as a group during morning meeting. If you need help getting started with social stories, check out my FREE Course HERE!

Predictors of Success for Adults with Autism

Predictors of Success for Adults with Autism

 

  1. Health

Health life skills include learning how to brush one’s teeth and hair and know how to follow through and complete a bathroom routine. This includes helping your student create healthy habits such as teaching them nutrition and healthy eating. The importance of exercise also falls into this category. Facilitate this by working in regular exercise into your day. Find time for stretching in the morning, yoga in the afternoon, or extra walks throughout the day. Exercise is fantastic for reinvigorating the body and mind. It’s also a nice way to take a break after a hard task. Make exercise fun by finding games and movement activities that your students like. Other health habits include bathing, clipping nails, and remembering to use soap.

 

  1. Self-Advocacy

Learning how to keep one’s body healthy is important, but also teaching what to do when one’s body is not healthy is another thing. You must teach both sides of this coin. Teaching self-advocacy will do just that. A student needs to know how to express what they need and when. The ability to ask someone for assistance is a necessary life skill. Help your students learn how to ask for help when they need it. Learning how to ask a teacher for help will be invaluable to them in the future when they are presented in situations that they be unaccustomed to.

 

  1. Independence

Becoming independent is the hope and dream for many parents and individuals with autism. Becoming independent includes activities of daily living. This means one’s ability to prepare, cook and feed one’s self, but also aspects such as washing, drying and folding laundry. Simple tasks such as sweeping or vacuuming the floor or folding small towels is a great place to start.

Adding jobs to your classroom is a great place to start. Practicing running the lunch choices down to the office or wiping down the desks at the end of the day are perfect options for integrating these skills.

 

  1. Self-Esteem

Self-esteem is the way your student views him or herself. It is important to foster self-esteem with your students in order to prevent shut down. Show respect for your students and in return, they will for you. Build self-esteem by using a student’s natural interests to motivate them, encourage along the way, and build trust. If you need help building self-esteem in your students, read my post, 10 Ways to Increase Self-Esteem in Your Students with Autism.

 

  1. Time-management

Executive functioning skills are typically hard for students with autism. Time management is one of these skills. The idea of breaking down a task, learning priorities and estimating how long a task may take is a hard one. Practice time-management skills by breaking down tasks for your student. As your students learn routines, their time-management skills will increase. As they become better at following certain routines you can teach them how to estimate how long a task will take them and practice breaking down easy tasks.

You could even double-dip a bit here. Tackle time-management and some independence skills by practicing making simple dishes. You could have your student practice breaking down the task of making a sandwich, trail mix, or some other small snack or meal.

 

  1. Money management

Understanding the basics of money management is important in everyday life skills. This includes paying bills, balancing checkbooks, and clipping coupons. Need ideas on where to start? Turn your math activities into life skills activities. Practice having a budget, paying for pretend bills or using coupons. In the long-term, a student will need to have these skills to buy their own groceries or pay their own rent.

 

  1. Decision-Making Skills

Becoming independent includes the ability to make decisions. We make hundreds of decisions a day. From simple to complex, decision making is something everyone does. Some students with autism have a hard time with decision making as it requires a multi-step process.

Teach your student how to make good decisions in three steps:

Think about the future. (Will this decision help further your student to their future goals?)

Stick to the facts. (What are the facts surrounding this decision?)

Weigh the pros and cons. (Do the pros outweigh the cons? Choose that one.)

 

Now you know the skills that need to be taught. But you may be wondering how exactly do I teach them?

 

Click HERE to get the HOW TO TEACH LIFE SKILLS CHECKLIST

 

XO,

Trisha

 

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