Pain and the Seasons – Which time of year is the worst for pain?

A tip for cooling down in the heat

A tip for cooling down in the heat

APRIL is the cruellest month, breeding
Lilacs out of the dead land, mixing
Memory and desire, stirring
Dull roots with spring rain.

Said TS Eliot at the opening of the Waste Land.

But is that true?

For many people with painful conditions the height of summer or the depths of winter are the worst times of the year for pain.

In fact there does seen to be a correlation between climate, temperature and pain levels. In fact one of the most popular post on the blog has been how to cool down in the summer.

But temperature change is not the only part of the equation.

One of the first things I was told, as a child , by my grandmother was that her rheumatoid arthritis enabled her to know when it was going to rain. Which would suggest humidity can also play a part.

The aim of this blog is to explore the whole area in a bit more detail.

Firstly it would be great if you could take the poll below. The question is “Looking back at the last year which season has been the most painful?” Secondly it would be fantastic if you could answer a few questions about pain and climate. These question are only a guide and we would love to hear from you about any part of your story you may think is of interest.

a) What is your main medical condition which causes pain?
b) What is the main change in weather which affects your pain levels?
c) How do you treat seasonally related pain?
d) Have you moved because of your pain levels? If not would you consider it?
e) Do you have any advice for somebody who has just been diagnosed with a painful medical condition such as multiple sclerosis, arthritis or fibromyalgia?

Thanks very much in advance.


World Arthritis Day 2014 – announcing the winners of the Vision 2043 competition on Sunday 12th October


World Arthritis Day

World Arthritis Day

As some of you may remember we covered the Vision 2043 competition earlier on this year.

With Sunday marking World Arthritis Day 2014 we thought we would share with you the news that the day will also see the announcement of the winners.

We will be covering a couple of categories on Sunday morning so please do drop back them.

Can we also take the opportunity so telling you that there will be a “WAD Thunderclap ” on the day. No we have no idea what that means either but have been assured that we will get more information nearer the date.

So drop back to the blog and find out!


What is your worst symptom of Rheumatoid Arthritis? Please share at our latest poll!


Rheumatoid Arthritis

Rheumatoid Arthritis

As some of you may know my late grandmother suffered , through most of her life with severe Rheumatoid Arthritis (RA).

As a child it is hard to understand all the various symptoms of Rheumatoid Arthritis she lived with and how they impacted upon the totality of her lifestyle. Certainly RA put massive strain on her marriage.

If you has asked me at the time I would have said that mobility was her biggest issue. Indeed she was housebound for the last 15 or so years of her life. The perhaps pain. She died 25 years ago when pain management was much more primitive that it is now.

But with the benefit of hindsight I going to suggest something rather different. I’d say now depression. She came from a generation which did not “mention these things”. Only after her death did I find out that she had been hospitalised a number of time for depression during the forties and fifties. Due in part to, of course, to the pressures of the war but also, I’m certain, to her RA.

Thinking about this I wondered to what extent her experience was similar to yours. To achieve this I was wondering if you could take part in the poll below which asks “What is your worst symptom of Rheumatoid Arthritis?”


If you would like it would be great if you could share more of your RA story in the comments section below. If we have missed out your worst symptom of RA in the poll please could you mention it in the comments section as well!

Many thanks in advance!


Staying cool – Improving health – Lowering pain. Sharing tips to keep us cool this summer!

Ice pack. Make at home a cool off!

Ice pack. Make at home a cool off!

One of the original ideas behind this healthcare blog was to provide and online space where people could share their ideas and experiences. And most importantly their tips.

Last year we ran a poll looking at how temperature impacts upon pain levels. In that case the poll itself looked at the cold but from the comments it became clear that heat was also an issue for pain for many of our readers and commenters.

Indeed one of our most popular posts of last year was the great tip on how to keep cool in the heat. Indeed I was introduced to the idea from a member of the multiple sclerosis community who found it a very effective way of reducing summertime pain.

Similar applies to other conditions such as rheumatoid arthritis and fibromyalgia.

So what is the point of this blog?

Well pretty simple from past research we know that people with conditions such as MS and fibro have loads of great ideas on how to keep cool. The aim of this blog is to ask you to share them in the comments box below.

By the way if you are a commercial vendor we won’t delete you post but we do ask you to be very clear the your offering is part of a business.

Otherwise cheap and effective are the watchwords for the comments on this blog.

Thanks very much in advance!

 

NRamey The sponge ice pack is a wonderful idea! I usually don’t have a problem with being too hot at night because I sleep with a fan blowing on me, even in the winter. My biggest heat problem is when I go out in the summer. I’ll keep this idea in mind!~
patienttalk Julie White Thanks Julie
Julie White You can buy “chillow” to keep your head cool & I have a mattress pad made from cooling gel which is invaluable! Just pop it under your sheet & sleep comfortably- until you get too cold then move over the other side if the bed!! Got mine from bright life uk. Xx
patienttalk FrancesSedgwick Thanks Frances This is great
FrancesSedgwick I live with ME/CFS/FMS since 1993. I had a constant symptom of head sweats whenever I tried to rest or sleep. I started using wet washers, then bags of ice, then onto large gel ice packs. I put them in single layer in a freezer, wrap them in a half folded velour towel. Put them on my pillow behind my neck and sleep in comfort. I wake up when they get hot or defrost too much and I get up and replace them. Probably 3 or 4 times a night. I had surgery 18 mths ago and when I came back to the ward, they could not get my temperature down and I was very unsettled, the nurse did not know what to do for me. Luckily hubby was there and I had bought 2 ice packs in with me. He asked for them to be got and I settled immediately. Slept the anesthetic off and was able to go home. I keep about 4 large 6 x 6 ice paks in the freezer now and take on to bed every time I lay down.

Juvenile Arthritis Awareness Month 2014 – can anyone tell me more?


Rheumatoid Arthritis

Rheumatoid Arthritis

As I have mentioned a few times before one of the objectives of this blog is to support different awareness days (or indeed weeks or months).

I have a couple of news feeds and calendars which help me find out what event are going on. And then I sort of curate them (ghastly social media term) here at PatientTalk.Org.

So when i found out the tomorrow sees the start of Juvenile Arthritis Awareness Month I went “Whoo hoo this is one for me”. While browsing the web for more information for this years Juvenile Arthritis Awareness Month I found well. Not much. Actually Nada. Zip. Nowt. Nothing. Zilch. I did come across this online press release for last year (from the Arthritis Foundation) but precious little else.

So does anyone know if this event is still going? Does anyone have any more information. If you do know anything at all please feel free to add any links etc in the comments section below.

Many thanks

PS As you can see I’ve used Donnee Spencer’s brilliant Rheumatoid arthritis butterfly to promote the month if it is taking place.