The Types of Dementia You Rarely Hear About

An incredible 47.5 million people live with dementia all over the world and the number of cases are expected to triple by 2050. While 60-80% of dementia cases are Alzheimer’s disease, there are a host of other forms of dementia that are not as common.

This infographic from Be Independent Home Care aims to increase awareness on the eight types of dementia that we rarely hear about. We examine the symptoms, causes, prevalence and those most susceptible, in the hope of educating sufferers, carers, families and friends.


The Types of Dementia You Rarely Hear About

The Types of Dementia You Rarely Hear About

Alzheimer’s Disease and Dementia Toolkit – some great ideas for caregivers of people with dementia.

Alzheimer’s Disease and Dementia Toolkit – some great ideas for caregivers of people with dementia.

Please like and share this brilliant and informative infographic!


Dementia Toolkit

From Visually.

Alzheimer’s disease – Why I am giving my brain away!


Brains for Dementia Research

Brains for Dementia Research

This is one of those Christmas stories we love.

Robert and Lindsay Mudge are a unique couple. They plan to give away their brains after they die.

Robert was diagnosed with Alzheimer’s disease in January 2013. Alzheimer’s is a physical disease that affects the brain. During the course of the disease, protein ‘plaques’ and ‘tangles’ develop in the structure of the brain, leading to the death of brain cells. It is the most common cause of dementia.

Robert went to his local GP and was referred to Loughborough Memory Clinic and three months later, after undertaking various memory tests, he was diagnosed with early on-set Alzheimer’s disease.


Lindsay said: “Our experience of the NHS has been excellent and they have done everything they can for us. But interestingly when Bob was diagnosed, the first thing we were told was ‘It’s early on-set Alzheimer’s and there is no cure. We can maybe help the symptoms but it’s progressive and there is no cure. The medication may slow the disease down, but there is no cure.’ We made it clear that we wanted to be involved in research. They didn’t ask us.”

Robert and Lindsay were determined to find out as much information about the disease as possible and discovered the Alzheimer’s Society website, where Robert noticed an advertisement for the annual Alzheimer’s Show held in London during the summer in 2013. Robert and Lindsay decided to go and while they were there, Lindsay found an article about Brains for Dementia Research (BDR) which is a partnership between Alzheimer’s Research UK and the Alzheimer’s Society. BDR promote brain donation and develop a network of brain tissue banks for dementia research. They discussed it and Lindsay gave them a call.

Catherine Thompson is the DeNDRoN (Dementia and Neurodegenerative Diseases) research nurse for the Clinical Research Network: East Midlands based at Leicester’s Hospitals. She contacted Lindsay and Robert to discuss what was involved in donating your brain. As part of the visit, she explained that the BDR trial needs brains from both sufferers of dementia as well as non-sufferers. This is so a full comparison can be made.

Catherine explains what it is that inspired her to work in research in this specialty area: “I love my job as a nurse. I especially enjoy meeting new people who are interested in research and finding out more about them and their families’ lives. I have been a nurse for over 25 years and this has been by far the most rewarding job I have ever had.”

When asked, why be involved? Robert stated: “I just want to learn as much as I can about what’s going to happen and to help people understand how it works.”

Lindsay agreed: “Catherine brought the paperwork, took us through it and discussed it. She left us to think about it for a few weeks, before arranging a follow-up appointment where we signed a consent form. I’m quite at ease about it but it is handled very gently, carefully and professionally. At any time you can withdraw. It’s nothing to be fearful of; they’re guided by you all the time.”

“Taking part in research makes us feel better. We’re doing something. And we are doing it together.”

Could a memory wall and a memory box help people with dementia? Find out about the simple but brilliant idea here.


People with dementia

People with dementia

A UK hospital has just announced that it has opened what it calls a “memory wall ” as a way of helping people with dementia such as Alzheimer’s.

On the face of it it seems a brilliant idea and I would be very interested in finding out what our readers thought about the memory wall! You may also find this interview with Dr Nori Graham who is Medical Director of Red and Yellow Care, Vice President of Alzheimer’s Disease International and The Alzheimer’s Society a useful introduction to the whole area of dementia and Alzheimer’s.

The wall contains a selection of old photographs which have been donated by the Leicester Mercury is at Glenfield Hospital’s ward 33a. The pictures are on display for patients’ enjoyment as they move around the cardiology ward.

Vanessa Struthers, who is ward clerk for Leicester’s Hospitals for 23 years, came up with the idea. She said: “It started off with old photos of Leicestershire but as the collection has grown, we’ve included iconic photos from key historical events, such as the Queen’s visit to Leicester.”


Struthers worked with people on the ward to create the display, which aims to help those admitted to the ward. She commented : “We thought it was important that our patients chose the pictures, so the wall is made up of their memories. It’s really fascinating to see all these wonderful pictures on display in one single place.”

Thanks to a kind donation from the family of a former patient, the team at Glenfield have also been able to purchase a memory box. It contains various items from days gone by, which are recognisable through touch or smell, such as carbolic soap, moth balls and a dolly peg.

Using memory boxes with elderly patients has been shown to help stimulate and focus their minds as they have very vivid memories of their past, but can struggle to retain short term memories due to Alzheimer’s or dementia.

Struthers said : “We have had a fantastic response to both the memory wall and the box. We are so grateful for the donations which have enabled us to provide these for our patients.”

World Alzheimer’s Month 2014 – Dementia: Can we reduce the risk?


World Alzheimer’s Month 2014 - Dementia: Can we reduce the risk?

World Alzheimer’s Month 2014 – Dementia: Can we reduce the risk?

Today sees the start of World Alzheimer’s Month 2014. This years theme is “Dementia: Can we reduce the risk?”

Please feel free to use the picture above as you Facebook cover for the month.

Alzheimer’s Disease International  have produced two very useful pieces of information which we have shared below.

The first looks at the social impact of dementia while the second introduces us to the early signs and symptoms of dementia.  Please so feel free to share far and wide!

The Global Impact of Dementia

What is dementia?

Dementia is a progressive, degenerative brain syndrome that affects memory, thinking, behaviour and emotion. Dementia knows no social, economic, ethnic or geographical boundaries and affects people throughout the world. As dementia progresses individuals affected need care with all aspects of daily life, worldwide families mostly provide this care.


Alzheimer’s disease is the most common cause of dementia and accounts for 50-60% of all cases and is caused by abnormal brain tissue changes.

Who does it affect?

International studies make it clear that dementia occurs in every country of the world. Dementia affects 1 in 20 people over the age of 65 and 1 in 5 over the age of 80. Worldwide there are an estimated 44 million people with dementia. By 2050 the number will rise to 135 million.

Where do people with dementia live?

For at least the last 15 years, the majority of people with dementia worldwide have been living in developing regions of the world. They account already for over 62% of all cases; by 2050 this proportion will have risen to 71%.

Care arrangements

Research has shown that most people with dementia live in their own homes and are cared for by a female caregiver usually a spouse or daughter and that caring is associated with substantial psychological and financial strain (Int J Geriatric Psychiatry 2004 19 170-177). In contrast to developed countries, more than a quarter of people with dementia in developing countries live in a multigenerational household with their children and grandchildren.

Cost of care

Caregivers have to cut back on paid work or stop work altogether, informal care is often supplemented by formal paid care and people with dementia are relatively heavy consumers of health services. The total estimated worldwide costs of dementia are US$604 billion in 2010, according to ADI’s World Alzheimer Report

What is needed?

1. Recognition of the early symptoms of dementia

Dementia is surrounded by stigma and myth. Many people see the early symptoms of dementia as a normal consequence of ageing and therefore do not come forward for the help and support that is available. Recognising the symptoms of dementia is the first step towards receiving a diagnosis. A diagnosis can help to reduce the anxiety of people with dementia and their family, allow a greater chance to benefit from existing treatments, access resources and information and provide more time to plan for the future.

Ten early symptoms of dementia:

  1. Memory loss
  2. Difficulty in performing everyday tasks
  3. Problems with language
  4. Disorientation to time and place
  5. Poor or decreased judgment
  6. Problems with keeping track of things
  7. Misplacing things
  8. Changes in mood or behaviour
  9. Changes in personality
  10. Loss of initiative

2. Cost effective interventions

These are needed worldwide to provide support for people with dementia and their families to maintain and improve quality of life. Research has shown that there are ways to reduce the stresses of caring:

  • Information and education empowers people to understand what is happening to them and their loved one and how to cope better.
  • Support groups provide an opportunity to share experiences and feelings.
  • Professional counselling has been shown to be effective in improving morale and decreasing feelings of stress.
  • A break from caring is essential, respite can be achieved informally by arranging for the person with dementia to stay with relatives or friends or formally through services such as day care and short stays in residential units.
  • Practical help in the home, financial support and a key person to turn to are also useful.”