GeneFo
GeneFo is its early stages and is seeking members to embrace this technology and help create a great Multiple Sclerosis patient community. Early adopters may find that activity and data are limited at first, but they will have the full attention of genetic in-house counselors and community managers, the opportunity to lead data input, and a voice in shaping the platform with content and features that are important to them!
Multiple Sclerosis Community
GeneFo was founded by Dr. Yael Wilnai – a Stanford graduate and practicing medical geneticist.
Dr. Wilnai has extensive experience in helping patients navigate the different aspects of their condition. On July 21, 2015, she is kicking off series of free educational webinars to share her knowledge, and will also address the growing interest in genetic research with relation to Multiple Sclerosis. The first webinar will offer tips on how to get the most out of your physician/geneticist visits. The webinar will include a Q&A session and best practices.
https://www.genefo.com/webinar
GeneFo – Three core beliefs:
– Get real-time feedback and information both from top-notch genetic experts and patients/caregivers like you
In medicine, you need to specialize in order to offer the most relevant, reliable and professional input. That is why GeneFo makes sure that in addition to core patient-centered knowledge, they provide medical feedback by top-notch genetic experts with the most up-to-date medical information and resources, all presented in a clear and comprehensive manner.
– Consolidate all aspects of condition management in one place
While the internet is filled with many great resources, they are not usually accessible in one convenient place. Dr.Wilnai witnessed the frustration of patients and caregivers trying to access accumulated medical information from different sources – navigating several different websites were a real pain point. That is why GeneFo is designed to consolidate all aspects of condition management: real-time patient-driven knowledge, expert medical feedback and up-to-date medical content.
– The knowledge shared on GeneFo is used for the common good
Healthcare professionals, looking for opportunities to share their experience and better access to patients, partake in the community in order to advance research for the benefit of patients around the globe.