MS Patients Are Among the Most Satisfied with Their Healthcare, Surveys Show – But are you?

At the doctor's office - doctor and patient

At the doctor’s office – doctor and patient

Multiple sclerosis patients are among those with debilitating diseases who are most satisfied with their healthcare, two surveys indicate.

Others who are satisfied include people with amyotrophic lateral sclerosis and Parkinson’s, according to the questionnaire-based PatientsLikeMe research.

In contrast, people with fibromyalgia, post-traumatic stress disorder (PTSD) and major depressive disorder (MDD) are the least satisfied with their care, the surveys showed.

 PatientsLikeMe describes itself as the world’s largest personalized healthcare network. It was created to help people find new treatment options, connect with others with the same disease, and encourage patients to take action to improve their outcomes.

It uses a broad portfolio of pharmaceutical companies and a range of government organizations to help establish bridges between patients, research, public policy and therapy development.

PatientsLikeMe studies, conducted with support from the Robert Wood Johnson Foundation, are based on the results of a six-question online survey. Those surveyed include patients, doctors and researchers. The goal is to understand how they define good care and to improve how provider effectiveness is measured.

 

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