A couple of weeks ago I received an email from a website called May 12th. You can visit them here.
The reason that I’m mentioning them today is four fold.
Firstly the blindly obvious fact that they are bothering to promote next week’s Fibromyalgia Awareness Day. I’ve been doing a few things myself which you can check out here. Not much but it is a start.
Secondly they are putting together a list of of events which mark Fibromyalgia Awareness Day. You can see them here https://docs.google.com/document/d/10Gi4ZR_2DMv6TxlQOMBdYpCHDbRwTCVHmVilZnk9naM/edit. It is a Google document which means that anyone can edit it. So we would be very grateful if you could update it with any events you are involved in, on or offline, which mark FMS Awareness Day. It would also be great if you would share this is family, friends and all members of the fibro and chronic pain community.
The other reasons is that the site itself does not limit itself to just fibromyalgia but also provides information and awareness about a number of closely linked but very much ignored medical conditions such as Gulf War Syndrome , Multiple Chemical Sensitivities and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. It is great to see an awareness site with the blinkers off and looking at the relationships between medical conditions.
The final reason I would love it for you to visit the site, and share it, is that it is not written by an overmighty NGO but rather by us. People who live with, and care about, our medical conditions and health. For me this is the future of healthcare and wellness in the long run. Not the tinkering about with a system with does not work for us.
PS If you have any FMS awareness resources you would like to share please feel free to use the comments box below to share with our readers!