Multiple Sclerosis Research
A couple of days ago we decided to follow up the blog post with another asking People with Multiple Sclerosis (PwMS) what tips they would like to share about living with MS with our readers.
The results were incredible so we decided to share a few with you. We have got nearly 500 so far so can’t include them all. It would be great if you wanted to share your ideas and suggestions in the comments section below.
Christina’s was the most popular when she said “Take a deep breath and always look forward never backwards. Times will get hard occasionally but you must be grateful for the good times. Never give up and fight for your independence and never ever give up. You got this, even if you think you don’t.” Traci supported this saying “You are stronger than you think you are”.
Laura emphasised the need to take control through research 2Research, research, research. Avoid the DMD’s because they don’t work! MS can be controlled by diet. Food is our medicine! Check out Swanks diet for MS. I have been following this for 9 months and I’m feeling great. I also take LDN and supplements. Recovery and healing are possible if you take the right road. A strong positive mindset is also key….”
Isla said “find yourself a holistic doctor”.
Jackie was very practical “Heat is your enemy. Try to stay cool. Your body will start to feel better once you cool down.”.
Sharri had lots of great ideas “Don’t feel bad for feeling bad. Keep your sense of humor. Increase your sense of humor. Join an MS / chat group, local support group and fun www.meetup. com groups.
Nutritional supplements also help you feel better and the meds to work better. Eat the fish and spit out the bones of what people say who do not have MS. Nurture and do kind things for yourself.
Know that you will have good days, great days, bad days and horrible days. ”
Like many of our readers Christina felt we should listen to our bodies ” Don’t let MS change who you are! Biggest challenge was learning to listen to my body, cognitive issues, and the MS Fatigue (which is not the normal fatigue people have) If you can learn to listen to your body, eat healthy and exercise and most important stay true to who you are and maintain a positive attitude (you may have MS but MS does not have you or define you) then you will see MS becomes more of the “Ah” that is why I feel this way or that makes sense now and can move forward. I took it as a positive when I was diagnosed (March 2012) as I honestly thought I was losing my mind (cognitive is bad for me) and I did not understand the fatigue I was having. It was a relief to know there was a reason for it and now I know what to do to help with these issues. Attitude is the key to MS success (as with any illness). I find if I keep moving I’m fine. It is when I give in to MS that I get bad. It is a choice you have to make every day if you are going to get up or let MS win. I REFUSE to give in to it. There are many days I forget I even have MS and again, that is a choice I make. Make sure your family and friends are aware that you are still you and that YOU will let them know if you cannot do something as only you know how you feel and your limitations (which you learn as you go but always try). I have amazing support with all of my family and friends. I asked them to not treat me any differently and I promised I would let them know if I needed help (which I admit is hard for me to ask for any help, I’m very stubborn) but there are things you will need to say “hey, my body does not react well if I did this, can you help”. You will be amazed by taking one day at a time, one breath at a time how well you will be able to handle your MS and live life just like you did prior to your diagnosis. Research the different types of MS and make sure you understand which level you are diagnosed. Unfortunately, there are more severe cases of MS and I pray for those with the more severe cases. So we cannot dismiss what we have but we can listen to what our body tells us and make the right choice to get up and live! Prayers as you begin learning your new path in life.”
Finally Georgia went the other way and said “Don’t listen to other people’s “advice” that don’t have MS and have absolutely no idea what you may be going through! Only you know your body, no one else does!”
So what do you think about these tips? Do you have any you would like to share? If so please do use the comments section below to add your ideas.
Thanks very much in advance.
sallynutter Your attitude is not going to change a disease that is affecting the myelin being stripped off your nerves. MS is like taking the insulation off all of your electrical wires in your house and watching it short circuit and catch on fire. Literally that’s what happens. Plaques are areas that have burned up or are dead due to it, and those abilities are not coming back once lost. The nerve might rebuild but due to scar tissue it won’t be the same. Medication stops a high percentage of the progression. You sound like an idiot who has zero research and probably believes every conspiracy theory that you hear. People need to take control of their disease and kick it’s ass. That’s the mentality that is going to make you survive. Don’t use your MS as an excuse, and don’t ever assume it’s going to fix itself. You need to be proactive not running away and hoping it goes away if you think happy thoughts. You are in the denial stage of grief in dealing with it. I hope you and some of the other crackpots see a psychologist to hep you deal with the depression that eats at you from the inside with this disease. I am hoping your desperation is just that , combined with denial. Please seek help because it’s obvious you don’t know how yet to deal with the fact that you have MS and you will have to be on medication to stop the progression. People will not understand what you go through no matter how hard they try. Unless someone has MS, they won’t get it including your doctors. You’re going to have to accept this disease and then fight it to keep what you have as a good strategy.
sallynutter MikeSochacki
You guys are idiots, ASEA is just expensive water. The PH of your water does jack for your body. Think about it your stomach is a bag of acid that dissolves/digests food.
jennya2584 lynneheal
The shits a scam, look it up. You are playing with fire if you don’t go on the medications. The only proven technique not allowed currently in the US is one that is very dangerous. That is where through Chemo they kill your immune system. They then use stem cells to reboot it and start it again. This was done in Germany with 34 patients and 2 died because of no immune system. The best way to put it, is if you take the medication expect a 50-60% reduction in rrms. So you will still get 40, out of 100 relapses, but but the 60 you don’t could be ones that might have paralyzed you or caused further damage. If you’re taking Lyrica or Gabapentin, try cymbalta and tumeric, it works about the same. They call MS the snowflake disease when I talked to the Dr about it because everyone is different. I am hoping with all of the studies into fibromyalgia they find something to help beat it. So far all they can prove is that it comes from a herpes type virus Mono if I remember correctly that manifests in certain gene types, and is also influenced by female hormones.
jennya2584 tlc2tfruitie Thanks. I viewed the video that I “think” you posted & just wanted to let you know that I had this procedure done approximately 3 years ago in N.Y., and I honestly believe it worked quite well for me! I’ve been following & researching CCSVI for several years, which is partially why I refuse any of the MS meds offered to me. If you or anyone you know has the opportunity to have the angioplasty done, I would very highly recommend it. It’s been 3 years now and I’m starting to get a few of my symptoms back, but not as bad as they were prior to the procedure ~ I’m assuming that I have blockage again – My angioplasty was done in my right jugular at that time. Just thought I’d share! Thanks, good luck & feel free to message me anytime! 🙂
lynneheal These videos are amazing! I have had this strange feeling that something was wrong with my veins and blood circulation. I know my body better than my Dr. does and they just don’t seem to care….. this gives me hope and now I know I’m not alone!! Thank you!
tlc2tfruitie Beautifully said!
Fighting for a better deal for Multiple Sclerosis (MS) sufferers. Who cares? I do#lynneheal https://twitter.com/hashtag/MultipleSclerosis?src=hash https://twitter.com/hashtag/SPMS?src=hashhttps://twitter.com/hashtag/CCSVI?src=hash https://twitter.com/hashtag/Health?src=hash https://twitter.com/hashtag/NHS?src=hashhttp://t.co/tlxhBDVqLG LEICESTER UKhttp://t.co/UAwZA5cVyU
MikeSochacki sallynutter LOL!! Thank you for telling me that!
Just the same… I’m going to decide what I want to do. 🙂
sallynutter MikeSochacki then ASEA should be your no. one product
tlc2tfruitie I wholeheartedly agree!!
MikeSochacki sallynutter Thanks, but not at this time. I’m in the middle of a program right now. See, I’m a doctor of nutrition, so this sort of thing interests me!
sallynutter MikeSochacki i can also have my dr. talk to you he introed me to ASEA would love for you to try it! positive it will help!
I agree… Don’t jump on the Meds that your Neuro pushes on you (that’s the Pharmaceutical Co’s pushing their poison!) – Trust your own instinct and what your body tells you – Only YOU know YOUR body & how/what it is feeling, they do not. Humor is key to keeping your sanity throughout this fun-filled journey to “anywhere-land”; expect the unexpected and never, ever expect the expected because you will never be prepared for what comes next ~ Just remember that you have MS and IT does not have YOU! Never let others allow you to feel guilty for feeling the way you feel – they do not live in your body; YOU do – If they cannot take the time to learn about the disease you’ve been so kindly blessed with, then they’re not worthy of being part of your life; even if they are family, trust me – It’s hard enough to remain positive on a daily basis just dealing with your OWN issues – don’t waste your energy, emotions & immune system on theirs. Stay positive, take care of YOU and do your research – knowledge is power and we can beat this monster ~ I know we can! <3
MikeSochacki OK! I’m checking this out! I’ve never heard of ASEA before!
STAY AWAY FROM MEDS!!!! Seek alternatives vitimin d magnesium (always good quality vit dont b cheap they will not work) see a chiropractor. the absolute best nat. prod. i have used is ASEA check it out at mikesochacki.teamasea.com. it is not a scam or fad. my fatigue gone headaches gone depression gone overall pain reduced by 70% also if you can find it in your area P.E.M.F.
These tips are awesome! I agree – the meds are just poison and the LAST thing I need on top of everything else is to be drugged! Yikes!
I want to add this one.
Always judge things RIGHT NOW! Just because you couldn’t do something last week does NOT mean that you can’t do it this week. Things change, so make sure your positive attitude stays constant.
Judge it right now! Just because you fell down last week, don’t think that you’ll fall down this week. Trust your gut, but don’t listen to your past. There’s a reason you left it behind! 🙂