Joint hypermobility syndrome – what it is and why you need to know

Joint hypermobility syndrome

Joint hypermobility syndrome



Hypermobility means your joints are more flexible than other people’s (you may think of yourself as being double jointed). When this causes pain, it might be joint hypermobility syndrome.

From the NHS Choices website here.

See a GP if you:

often get pain or stiffness in your joints or muscles

keep getting sprains and strains

keep dislocating your joints (joints “pop out”)

have poor balance or co-ordination

have thin, stretchy skin

have digestive problems like diarrhoea or constipation

These can be symptoms of joint hypermobility syndrome.

What happens at your GP appointment

Your GP will usually test the flexibility of your joints using the Beighton score.

They may also refer you for a blood test or X-ray to help rule out any other conditions like arthritis.

 Testing hypermobility – Beighton score

Treating joint hypermobility syndrome

There’s no cure for joint hypermobility syndrome.

The main treatment is improving muscle strength and fitness so your joints are protected.

Ask your GP to refer you to a physiotherapist or occupational therapist for specialist advice. You can also book them privately.

They can help you:

reduce pain and risk of dislocations

improve muscle strength and fitness

improve posture and balance

It may help to meet other people with joint hypermobility syndrome, or join a support group like the Hypermobility Syndromes Associationor Ehlers-Danlos Support UK.

Treating joint pain

Paracetamol and anti-inflammatory painkillers (like ibuprofen, which can come in tablets, gels and sprays) may help ease any pain. Speak to a pharmacist about the best treatment for you.

Your GP may be able to prescribe stronger painkillers.

If you’re in severe pain, ask your GP to refer you to a pain clinic to help you learn how to cope better with pain.

To help ease joint pain and stiffness, you can:

have warm baths

use hot water bottles

use heat-rub cream

Joint care you can do yourself

To improve joint and muscle strength, and reduce strain:

Do

gentle low-impact exercise like swimming or cycling – not doing any exercise can make your symptoms worse

maintain a healthy weight

buy good, firm shoes

if you have flat feet, use special insoles (support arches) in shoes

Don’t

do high-impact exercise

overexercise

grip things too tightly

overextend your joints just because you can

Children’s joint care

Download joint care techniques for children (PDF, 332kb)

What causes joint hypermobility syndrome

Joint hypermobility syndrome usually runs in families and can’t be prevented.

Usually, the joints are loose and stretchy because the tissues that should make them stronger and support them are weak.

The weakness is because the collagen that strengthens the tissues is different from other people’s.