One of the first things I noticed about fibromyalgia was the time it seemed to take for a person to
get diagnosed.
We are there for running a poll to try and find out what was the general experience of our readers. The poll is below and it would be great if you could take part.
Please feel free to use the comments box below to share more about your fibromyalgia diagnosis story. Hopefully other readers will be able to benefit from the knowledge you have picked up during your journey!
SandyJean | Actually it took almost two years. I kept going back to the doctor for sever pain that did not seem to be in the same place all the time. It moved around my body. Finally my family physician suggested I see a Rehumetologist. After a few visits and trying several medications that only upset my stomach he sent me to see a neurologist. He tried to do a nerve conduction test and could not get the needles in my back because the muscles were so (threaded) as he called it. They were extremely tight. So he started finding my pressure points and found i had pain in 13 points. That was over 20 years ago. 9 years ago i had to apply for dissability because the pain has become more intense and lasts longer the older I get. If only a medication could be found with NO SIDE EFFECTS. I am tired of the weight gain and the stomach upset and the sleepless nights do to medications. So I deal with it and use only over the counter meds. |
MichelleBennett | In reply to BobbielynHarrsch.BobbielynHarrsch thats what they probably did to me also |
authorKJRoberts | I said 6-12 months in the survey because it was 7 months after I had a bad flare that I was diagnosed. I believe it was my first real bad flare. But I really believe I’ve had fibro my whole life. I wasn’t going to the doctor for a lot of other things. I just wasn’t going to the doctor, but looking back, I think I was born with it. So, if that is the case then it was 27 years before I was diagnosed. |
BobbielynHarrsch | I was going to a clinic for many years, for several health issues, lower back, knees, migraines, neck, elbows, depression, arthritis, asthma. I finally got a private Dr I could afford, the second year I was with him I asked him to fill out a form for my boss, and he listed Fibromyalgia as one of my diagnoses! I did not notice it, when I brought the form into my boss, his wife was the one who spotted it and said “You never told me you had this too, what do you take for it, I’m on Cymbalta” When I went for my next Dr’s appointment he said “I thought you knew, it is in your clinic records 9 years back!” |
Actually it took almost two years. I kept going back to the doctor for sever pain that did not seem to be in the same place all the time. It moved around my body. Finally my family physician suggested I see a Rehumetologist. After a few visits and trying several medications that only upset my stomach he sent me to see a neurologist. He tried to do a nerve conduction test and could not get the needles in my back because the muscles were so (threaded) as he called it. They were extremely tight. So he started finding my pressure points and found i had pain in 13 points. That was over 20 years ago. 9 years ago i had to apply for dissability because the pain has become more intense and lasts longer the older I get. If only a medication could be found with NO SIDE EFFECTS. I am tired of the weight gain and the stomach upset and the sleepless nights do to medications. So I deal with it and use only over the counter meds.
I said 6-12 months in the survey because it was 7 months after I had a bad flare that I was diagnosed. I believe it was my first real bad flare. But I really believe I’ve had fibro my whole life. I wasn’t going to the doctor for a lot of other things. I just wasn’t going to the doctor, but looking back, I think I was born with it. So, if that is the case then it was 27 years before I was diagnosed.
I was going to a clinic for many years, for several health issues, lower back, knees, migraines, neck, elbows, depression, arthritis, asthma. I finally got a private Dr I could afford, the second year I was with him I asked him to fill out a form for my boss, and he listed Fibromyalgia as one of my diagnoses! I did not notice it, when I brought the form into my boss, his wife was the one who spotted it and said “You never told me you had this too, what do you take for it, I’m on Cymbalta” When I went for my next Dr’s appointment he said “I thought you knew, it is in your clinic records 9 years back!”
BobbielynHarrsch thats what they probably did to me also