10 Things That Doctors Don’t Tell You About Fibromyalgia

At the doctor's office - doctor and patient

At the doctor’s office – doctor and patient

According to the National Fibromyalgia Association, 3-6% of the world’s population has fibromyalgia syndrome estimating that somewhere around 300 million people worldwide suffer from the condition.

The NHS estimates that 2-4.5% of people in the UK may have fibromyalgia syndrome – estimating between 1.2 million and 2.8 million people. 75-90% of people with fibromyalgia syndrome are women.

It is a condition that conventional medicine currently has no answer for and sufferers are often prescribed with long lists of symptom-managing medication with often damaging side effects. So here are some things your doctor might not tell you about causes and treatment of fibromyalgia, based on my own personal experience and that of my patients:

Prolonged Virus – if you have previously suffered from a prolonged virus such as glandular fever it can either be a primary cause of fibromyalgia or significantly increase your chances of getting it in the future. A prolonged virus increases the sensitivity of your nervous system, lowering your resilience to stressful situations in the future.

Prolonged Emotional Stress – whether it’s work stress of domestic stress, if it has been constant for a while it can play a large role in an individual developing fibromyalgia. Stress affects a part of the brain called the amygdala. The amygdala is responsible for controlling our stress response. If it becomes overloaded by repeated daily stresses then it can often start to malfunction and lead to conditions such as fibromyalgia and its sister condition chronic fatigue syndrome.

Read more: http://www.femalefirst.co.uk/health/10-things-that-doctors-dont-tell-you-about-fibromyalgia-1144274.html#ixzz5Fm5wWKB5

Living with fibromyalgia – The debilitating condition that’s not classed as a disability

Image result for Living with fibromyalgia - The debilitating condition that's not classed as a disability

It is a severe and debilitating condition that causes pain, fatigue, memory loss and bowel problems, but fibromyalgia isn’t recognised as a disability, and those with it say they struggle to get the support and the benefits they need. Tomorrow, MPs will debate whether that should change, after a petition reached 100,000 signatures.

Multiple Sclerosis and Fibromyalgia – is there a connection?




Fibromyalgia and multiple sclerosis

Fibromyalgia and multiple sclerosis

As some readers will know my background was conducting market research with people who suffer from various medical conditions. The main ones were in fact diabetes, cancer, rheumatoid arthritis and multiple sclerosis.

It was only when we started working with a lot of social media in around 2006 that I became commented with members of the fibromyalgia community.




You might also aware that we run various communities on Facebook and Twitter where we encourage discussion on a whole range of subject which are important to people with various conditions.

Over the years there has been a number of questions which come up from time to time. One of which is the relation between multiple sclerosis and fibromyalgia. After all having more than one autoimmune condition is not uncommon.

Indeed one of our members posted this on our page MultipleSclerosisTalk a few days ago “Hi. I just had a quick question. I am currently diagnosed with Fibromyalgia but with this last relapse, I have noticed many new and worsening symptoms, and I’m worried it may be more related to MS. I have a appointment with a neurologist on Tuesday and I was wondering how I should approach this with him. I’m really sick on this because I feel like they don’t really listen to how you feel sometimes. Thank you for any advice.”

Firstly if you do have any advice for this reader please feel free to use the comments box below to share your ideas.

Secondly I’m wondering how common this situation actually is? So I thought it would be useful to run the following poll to see how our readers have been diagnosed in the past.

It would great if you could take part below.





 

Bonnie2405 I think fibro me CFs lupus Lyme and ms are all the same, like polio, some get it small some get it big. If ritbixin works, they may have a cure for all of it, the virus attacks the autoimmune system that goes into overdrive, ritbixin removes all B cells wipes long term memory and the mitochondria has to start building healthy cells all over again freshly removing the virus from our bodies. The drug will be ready within three years are u ready to start recommending it DR because patients are desperate and want to try it they are that desperate.
traceychace Hi my name is Tracey, I was diagnosed with fibro about 3years ago after suffering for many years before hand.
My Dad had MS, my Mom has always said that she thought that’s what I have more than fibro.
My neurologist said that I deffinatley don’t have ms as there is no connection & its not hereditary.
My health seems to be deteriorating quite quickly, does fibro usually deteriorate quickly?
emily89 My mom was diagnosed with ms in her 30’s & im 24 I was just diagnosed with fibromyalgia, my older sister also has fibromyalgia. All of our symptoms are similar the only difference is that in an mri my mom has visible plaque on her brain.
anarivera Hi my name is ana rivera and i have fibromyalgia and i just cant find thevright medication can someone please help !!
RebeccaRaeThomas Go in with a detailed history of all symptoms over time and voice your concerns. Be assertive in getting additional tests. Don’t let them dismiss your concerns.

Barb MacLeod – 1 year ago
Diagnosed with IDDM (Type 1 or Insulin Dependent Diabetes Mellitus) in 1984; Diagnosed with RRMS (Relapsing Remitting Multiple Sclerosis) in 2015. My sister has Type 2 Diabetes diagnosed in 2012. My mother has Fibromyalgia diagnosed in 2014. It is tough being female in our family ! 🙂

Ileana Peters – 2 years ago
I was diagnosed with MS in 2011. i have a cousin that has fibromyalgia. Our symptoms are very similar . Its crossed our minds, she might have been misdiagnosed.

Carole mellor – 3 years ago
I was diagnosed with MS in 2008 and just been diagnosed now with Fibromyalgia the symptoms are very similar

linda Barlow – 3 years ago
Iv just fibormyalgy it’s a very painful ms what symptoms for that.