Before I start the blog post proper I want to get something off my chest.
As readers of this blog know, our seven year old now attends a ResourceBase rather than a mainstream school to access learning. One of the key reasons from our point of view was that his old mainstream school was not able to provide him with the Occupation Therapy (OT) which, according to government and healthcare officials, he needs. The ResourceBase would be able to meet these requirements or so we were told.
Well, on Tuesday we met with his various teachers at the new school and were rather surprised to be told that he had received no formal OT that term. The reason was that even with daily phone calls from the school the relevant authorities had not provided one until that week. Even then this OT support would end with the current semester.
So not exactly what we bargained for. I have to say I’m a bit troubled that even the school have asked us to complain to the relevant local government department. Which I fear will give them more chance to prevaricate and not deliver what they have agreed to. Out of interest, do you have similar issues with statutory funding/support for children with special needs where you live? If so please add your thoughts in the comments box below.
Not to say that our son gets no OT support. The teaching staff and my wife and I provide as much as we can but none of us is an OT professional and I’m concerned our son may lose out. For John OT is particularly important because of his handwriting and concentration issues.
The main theme of this blog is not a whine, in fact. It is much more about what we can actually do with John.
While both we and the school do OT exercises such as the wheel barrow, his main love is swimming. It is great for both co-ordination and self-esteem.
Originally we just used to take him to our local pool each week or so. But when he went to his new school we decided that he would benefit from proper swimming lessons. As luck would have it, only ten minutes’ walk, from his new unit there is a swimming school which provides special needs swimming lessons. (At a discount as well). Due to his autism he has a one-to-one session rather than learning in a group situation. Which is sort of a shame but necessary in our son’s case.
Here I’d like to pay tribute to Keith, John’s teacher. Not just can he put up with our son, he demonstrates the patience of Job. Indeed they were introduced when John was having a full scale melt down but around five minutes later he was in the pool immersed (in both senses) in his lesson.
As a point of information Keith uses John’s interest in space and science fiction to provide an imaginary framework for the lessons. So a take away for other autistic parents who want their child to learn something like swimming is to use the childs special interests as a way of getting them to embrace the activity.
Obviously for any autistic child progress is not as straight forward as we would like but in eight weeks real strides have been made. He has moved from the doggy paddle to nearly being able to crawl and do the back stroke.
That being said I’m interested to know where we go from here and your advice would be much appreciated. For example I’m very interested in the following questions:-
- Does your child do any sporting activity?
- How do you encourage them to participate in team as well as individual sports?
- What sort of OT support does your child receive?
- What difference has exercise and sport made to your child?
Thanks very much in advance
PS I have to say Keith is a marvel and I have every intention of getting him a bottle of Bunderburg Rum for Christmas by way of thanks.
Public schools are required by IDEA to provide occupational therapy services to special education children that qualify, requiring an evaluation by an occupational therapist, and if services are recommended, then a plan is written by the OTR and is part of the IEP in collaboration with the IEP team at an IEP meeting, including the parents. Swimming lessons are not educationally relevant, so those would have to be provided outside the public school system.
We just started swim lessons as well with my 9 year old son. It is in a class with 3 other younger kids, but he doesn’t care. He loves it! After only 2 lessons he is putting his head back in the tub when I shampoo his hair. That is a big milestone for us. Yes he is learning at a slower rate, but that’s ok. I use a virtual school, because he needs 1 on 1. When he was in a regular school he would come home with all of his school work, so I figured I might as well keep him home. He gets OT, speech and group therapy all virtually. We also take him to a private therapist. She works on all the motor skills that he needs. We do not have a good school in our area for children with autism. So we had to take matters into our own hands.
Sounds like you’ve just described my 7 year old son. He has OT at school, a therapist has been to see him a couple of times and left exercises for the teachers and us to do with him. He’s in a mainstream school with a resource provision. However, he can only attend until the end if this school year and we have to find him a new school as the provision is only for up to end of year 2.
We have also been discussing him having swimming lessons, but he would need 1 to 1 teaching, where are you based? Your swimming instructor sounds just like what we are looking for?
Thanks Ruth
My son does freestyle wrestling he has done this since he was 5 years old now hes 17 and has never missed a training session the last year in school he went 1 day aweek he now helps train kids in primary schools to learn freestyle wrestling and loves it and has meddled in lots of competition’s its what he lives for the joy on his face doing it is worth everything
I strongly recommend finding a child advocate to assure that your child is receiving every service assigned in his Individiual Education Plan. The IEP is a legal document protected by the IDEA. In New York where I live, if the school cannot comply with the IEP within 30 days, the the parent may seek an outside therapist who will be compenstated through the Depatment of Education. Currently there are shortages of therapists. I receive at least 5 emails a day from various agencies as well as direct calls from parents and schools. If a shortage of therapists exist in your area you may need to be extremely dilligent to assure one is assigned to your child.
Good luck,
Steven Dubin, MS Ed, MA OTR/L NDT (INPP)