Patients’ experiences of health conditions are slowly being integrated into healthcare AI studies, a review of 25 years of studies has found.

In a new paper published in Lancet Digital Health along with an associated opinion piece, experts from the University of Birmingham and University Hospitals Birmingham have looked at more than 600 interventional studies on AI healthcare technologies.

While the team, funded by the National Institute for Health and Care Research (NIHR), found that only 24% of studies have a patient-reported outcome element included in their study, there has been an increase in the number in recent years with 2021 and 2022 seeing nearly two-thirds of all studies included.

Dr Samantha Cruz Rivera from the Centre for Patient Reported Outcomes at the University of Birmingham said:

“The opportunities for AI to revolutionise healthcare will only improve patients’ lives if those models consider how patients actually feel and respond to healthcare interventions. Our review shows that patient reported outcomes, such as measures of symptom burden and quality of life, are increasingly being incorporated into AI studies which is very encouraging.

“The future could see AI healthcare tech analysing and raising  an alert if a patient’s health is declining, but such a future is going to depend on having large-scale patient reported outcome datasets so that AI can support or drive care in a specific condition, and incorporate patient experience. Integrating PROs within AI can support the humanisation of AI for health and ensure that the patient’s voice is not lost in a rush to digitise and automate health care.”

Chronic health leading the way

Patient reported outcomes from chronic health conditions such as mental health and arthritis are being adopted into more AI studies than other conditions according to the review.

The research into patient reported outcomes is a key theme of the National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre. The team involved in this paper say that the adoption of PROs for testing AI healthcare technologies in chronic conditions demonstrates how important patient voices are for long-term health management.

Melanie Calvert, Professor of Outcomes Methodology at the University of Birmingham said:

“Managing long term health conditions places a huge burden on patients and their families, but also the NHS and social care system.  AI systems can help support patients and healthcare systems to aid decision-making, improve workflow and lead to more efficient care with improved outcomes.  Encouragingly, we are seeing more research into AI tech solutions for chronic conditions incorporating patient reported outcomes.

“It’s clear that having technology that can analyse and predict patient outcomes to help prioritise care is going to be a part of healthcare’s future. However, we must ensure that the patient reported outcome data used to train the AI systems are applicable to the population they are intended to serve. If we don’t do this, the gaps between advantaged and disadvantaged populations will only get worse.”