Multiple sclerosis patients are among those with debilitating diseases who are most satisfied with their healthcare, two surveys indicate.
Others who are satisfied include people with amyotrophic lateral sclerosis and Parkinson’s, according to the questionnaire-based PatientsLikeMe research.
In contrast, people with fibromyalgia, post-traumatic stress disorder (PTSD) and major depressive disorder (MDD) are the least satisfied with their care, the surveys showed.
It uses a broad portfolio of pharmaceutical companies and a range of government organizations to help establish bridges between patients, research, public policy and therapy development.
PatientsLikeMe studies, conducted with support from the Robert Wood Johnson Foundation, are based on the results of a six-question online survey. Those surveyed include patients, doctors and researchers. The goal is to understand how they define good care and to improve how provider effectiveness is measured.
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