Autism – Please help an Australian School Student with her research into Autism.

Autism research
Autism research

A couple of days ago we were asked by a Emma, a student at St Francis Xavier’s College in Australia, to help her find people to take part in a survey.

Emma writes ” I am currently completing Year 12 in Australia and for my major work I plan on creating a short film about Autism both generally and within Australia.

I was wondering if anyone with an ASD or a child with ASD would like to complete a survey for me. I am conducting a set of surveys as a part of my HSC Major Work for Industrial Technology – Multimedia. The purpose of these surveys is to:

1. investigate what people with Autism Spectrum Disorders would like other people to know about the disorder, specifically in Australia,

2. investigate what people would like to see in an informative video about Autism Spectrum Disorders

Each survey should only take 5-10 minutes to complete. All responses will be anonymous and confidential. The findings in the research will only be published in my folio for assessment purposes.

Thank you in advance for taking the time to help me create this.

Please feel free to share these links with other people who may like have an input.”

There are two surveys which you can take below.

1. For People with on the autism spectrum.

2. For the General Public.

It would be great if you could share with anyone who may be interested.

Many thanks in advance!

Autism research – Are you the parent of a child on the autism spectrum?

St John's University Autism Research
St John’s University Autism Research

Christia Goodman has asked us to help her find people to participate in a short online survey.

Goodman told us “I am a doctoral psychology student at St. John’s University. I am looking for parents of children with Autism or a developmental disability ages 3 to 18 to participate in research for my dissertation study.  I volunteer for an organization called Autism Friendly Spaces that transforms spaces (plays/shows at the theater, restaurants, museums) to accommodate individuals with autism: http://autismfriendlyspaces.org/ My research is seeking to better understand community participation in families of children with Autism and developmental disabilities, specifically, what promotes and prevents families of children with ASD and DD from participating in the community. The study requires participants to complete a short 10-15 minute online survey. After completing the survey, participants will get a chance to enter a raffle to win a $50 gift card!

I am a clinician that works with families of children with autism and I am hoping to find out how to improve quality of life for these families by learning more about how these families participate in the community.”

You can take the survey here.

https://stjohns.az1.qualtrics.com/SE/?SID=SV_3QbIewdpUj4sejz

If you have any queries please contact Ms Goodman at christia.goodman12@stjohns.edu

Thanks very much for your consideration.

Does your child on the Autism Spectrum experience low moods, sleep problems, gastrointestinal issues or behaviour problems?

Low moods and depression in children and adolescents with ASD
Low moods and depression in children and adolescents with ASD

Does your child on the Autism Spectrum experience low moods. sleep problems. gastrointestinal issues or behaviour problems?

If so please can you help the Irish Centre for Autism and Neurodevelopmental Research (ICAN) would like your help with a survey! They say they are interested in hearing from parents of children with ASD aged 2 to 18 years. It is a study about low moods and depression in children and adolescents with ASD. We also hope to learn more about how low moods affect sleep problems, gastrointestinal symptoms and behavior problems. Here is the link to the study:

http://bit.ly/1UpXtvr

A Survey of Fibromyalgia Patients’ Journey to Diagnosis and Treatment.

Fibromyalgia Survey and Research
Fibromyalgia Survey and Research

 

We have been asked by Pamela Andrews at PhD student at Glasgow Caledonian University to help her find people with Fibromyalgia to help her with some research.

Andrews writes ” I am a PhD student within the Health and Life Sciences department at Glasgow Caledonian University. I am conducting a study into the journey patients take from presenting with their first symptom through to receiving a diagnosis of fibromyalgia syndrome and subsequent treatment.

The study requires participants are aged 18 and over and have received a diagnosis of fibromyalgia. The study will involve an online questionnaire, which will include a series of surveys asking about the journey leading to a diagnosis, what happened immediately following and what treatments were prescribed by your healthcare provider and which ones you researched yourself.


The purpose of this research is to understand the patient journey from the initial symptom to diagnosis and subsequent treatment. Following the diagnosis, the study aims to examine the treatment pathways made available to you and the experiences you have had with this along with the effectiveness on symptoms.

If you agree to take part in this study, you will be asked to complete an online survey, this survey will ask about:

Journey leading to a diagnosis
Immediately following the diagnosis
Treatments prescribed
Treatments tried

It will take approximately 20mins to complete. Questions asked will either involve selecting from a few options or a sliding scale, in addition you may be asked to give brief responses. If you feel you need to take a break at any time, the survey may be saved and you can then return to it at a later date.”

The link to the survey can be found here.

For more information Ms Andrews can be contacted at pamela.andrews@gcu.ac.uk

Many thanks in advance for your help!




Autism Research – young people on the autism spectrum please can you help with this survey

Yoga and meditation
Yoga and meditation


We have been asked by a student at University of Toronto  to help find young people to take part in research survey.  He says

“My name is Patrick and I am a PhD candidate at the University of Toronto. My research examines the physical activity habits of youth diagnosed with Autism Spectrum Disorder through the use of a survey.  I would like to know whether it would be possible for you to pass on this survey to be pilot tested with some of your families to help provide me with some feedback. I am looking to learn whether the survey is written in an accessible manner and whether youth are able to complete it on their own, or with the support of a parent/caregiver. ”

Could you download  the survey University of Toronto Autism Surveyand email it to patrick.jachyra@utoronto.ca upon completion.

Many thanks in advance!