Autism and Blogging – Please help a student at Gothenburg University with some research.


Gothenburg University

Gothenburg University

Autism and blogging is, as my regulars will know, a subject close to my heart. Indeed one of the first areas I covered when I started this blog was the disappearance of many Autism bloggers.

So I am very interested in supporting Ekaterina Boytsova, a student at Gothenburg University, who is conducting some research in the area.

Boytsova writes “As a master student in Gothenburg University (Sweden) I am now conducting a research dedicated to autism and blogging and their communication experiences transmitted via posting. It is not much written about narrative practices of people with autism especially in the dimension of Internet. That is why I find it important to convey a message to the scientific community about the necessity and advantages of computer-mediated interaction via blogs and social networks. I believe those who already benefit from it will stand for wider implementation of information and communication technology tools in an educational context as well.

That is why I kindly ask a person with autism keeping his/her blog to take part in my survey which is confidential. However, if you want your blog to be referred to, it is also possible to put your name and the link in the reference list.

If you have any further question on participation or want to see the support letter from the supervisor, please contact me gusboyek@student.gu.se

 


If you have any queries please feel free to mention them in the comments section and I will ask Ms Boytsova to respond.

Healthcare and Social Media – What social media would you recommend for online conversations about health?


Healthcare and social media

Healthcare and social media

Yes I know I go on all the time about healthcare and how social media will change it completely.

(And it’s not just me it seems Newt Gingrich also thinks I’m right).

A few weeks back I was at a very interesting seminar on social media usage and over lunch I was chatting to a lady who also works in healthcare.  She worked for a company which provides colostomy bags for ostomates.  She mentioned that form their research into online conversation most discussion about colostomy bags had moved from Facebook to Twitter.   Indeed she said that their research comparing the two types of social media suggested that 97% of conversations went on now on Twitter.

Now this is a massive change since I started working in the area.   And I’m wondering if I’m missing a trick here.

So I’d like to ask a question of my readers “What social media would you recommend for online conversations about health?”

I’ve set up a short poll below but this is limited to the main social media platforms around.

What would be really great is if you could use the comments box below to share any others you use.  If you run one yourself that would be of huge interest to both my readers and myself.

So “don’t be square” please share!



Glasgow asks world to ‘Think Again’ about hepatitis – Glasgow takes centre stage in bid to raise awareness of hepatitis via world’s largest tweet wall


World Hepatitis Day 2014 Tweet wall in action

World Hepatitis Day 2014 Tweet wall in action

In recognition of World Hepatitis Day on 28 July 2014, the world’s largest tweet wall was erected in the heart of Glasgow, St Enoch Square, to raise awareness about viral hepatitis and the barriers faced by people living with the disease.

The interactive tweet wall was created to raise awareness amongst the Scottish public and the thousands of people attending the Commonwealth Games. It displayed bricks showing negative aspects of viral hepatitis that people living with the disease face every day. Every tweet and text message sent using the hashtag #thinkhepatitis turned a negative statement into a positive message of support, encouraging people to think again about hepatitis.

“We are very excited to be celebrating World Hepatitis Day at the Commonwealth Games this year,” said Charles Gore, President of the World Hepatitis Alliance. Viral hepatitis rarely gets the visibility it deserves despite killing 1.5 million people every year, the same number as HIV/AIDS.


Presence at such a major international event is therefore crucial to raising awareness on the global stage and challenging preconceptions about viral hepatitis. What’s more, Scotland is one of only a handful of countries worldwide with a comprehensive strategy for tackling all aspects of viral hepatitis. We are proud to be recognising that achievement by celebrating World Hepatitis Day here in Glasgow.”

The event was hosted by the World Hepatitis Alliance, in partnership with the World Health Organisation (WHO), the Scottish Government and local patient groups, in order to raise awareness of hepatitis in Scotland and across the globe to improve prevention, diagnosis and treatment.

World Hepatitis Day is one of only four official disease-specific world health days recognised by WHO.

Speaking about the impact of this year’s World Hepatitis Day campaign, Stefan Wiktor, team lead for WHO Global Hepatitis Programme, who attended the event in Glasgow, commented: “Raising awareness about viral hepatitis is the first step to increasing action against this disease. By spreading its message in countries around the world, the ‘Hepatitis: Think Again” campaign will help to build on the growing momentum to fight this pandemic.”

You can watch the video of the event here and find out more about this innovative use of social media in healthcare!

World MS Trend Day 31st July 2014 – get involved in a social media campaign to raise awareness of the need for a cure for Multiple Sclerosis


World MS Trend Day

World MS Trend Day

So what is World MS Trend Day?

Simple the aim is to get the hashtag #curems to trend on Twitter on July 31st 2014.

That is it. You can use social media like Facebook or Twitter to raise awareness of the need for a cure for MS by just using the #curems in all your posts on that day.

You might also wish to post this page to help us with this important campaign.

Thanks very much in advance.

#worldmstrendday #curems


Cycling Apps – St John Ambulance launches First Aid for Cyclists App


First Aid for Cyclists App  - St John Ambulance

First Aid for Cyclists App – St John Ambulance

As some of you may know I recently took up cycling as part of my lose weight get fitter mid life crisis.

At the same time I finally fought of my natural luddism and got myself an iPhone. So I have been looking at various different apps which can help me to improve my “cycling experience” as a our friends in marketing would put it.

As regular readers will know I live in London, England which means that I have to contend with rather a lot of traffic when I’m out and about on my bike. I’m sorry to say that a lot of the traffic seems to to realise that driving laws actually apply to them. This by the way seems to apply to most sections of the traffic world. With bus drivers and cyclists being the worst. motor bike riders are far and away the best.


So of course there is a certain amount of concern on my part about accidents which may happen when I’m out on my bike. The concern grows, I might add, the closer I get to central London.

So I was really interested when I read last week that St John Ambulance, the UK’s leading first aid charity, has just produced a free app to provide first aid advice for cyclists. This followed research that shows they are nine times more likely to stop and help fellow cyclists than other road users in an accident. With three million people now cycling three times a week or more , they felt there was a need to ensure cyclists are equipped with the essential skills to help others in an emergency.

So we thought it would be useful to highlight more about this app for our readers!

St John Ambulance research found that on average, cyclists took the least amount of time to come to a cyclist’s aid, just 1 minute and 28 seconds compared to pedestrians’ 1 minute and 51 seconds. Overall cyclists have the shortest response time and respond at least three times quicker than motorists. St John Ambulance has therefore launched their campaign to build the world’s largest first aid equipped cycling community so that every cyclist knows how to help when an accident happens.

The Department for Transport announces a rise in the number of all cycling casualties, up 2% from 2012 – in comparison to the falling number of injuries/fatalities for all other road user types. The highest increase in casualties is amongst adults aged 18-59 years reporting a 5% rise. Overall killed and seriously injured figures have come down (by 10%) but slightly injured figures have risen by 3%, and this is where first aid can be the difference.

Ashley Sweetland, National Cycle Response Unit Lead at St John Ambulance said: “Our unique, free app, launching today, is a new tool specifically aimed at equipping the increasing numbers of cyclists across the country with first aid skills and should be as essential as a puncture repair kit.

“We know many cyclists have accidents on the road each year, sometimes resulting in injuries where first aid could have made a difference. As the nation’s leading first aid charity, we want to ensure that the UK’s cycling community is equipped with first aid knowledge, so that more cyclists can help where circumstances might need them.”

The app, produced by British Company Animmersion, was created using the expertise of the charity’s medically trained staff and SJA’s Cycle Response Unit, their team of highly trained first aid volunteers who use specially equipped mountain bikes, and can be first at the scene of an accident.

You can follow #SaveaCyclist for live updates from SJA and further information on the app, training and first aid advice.

The free “First Aid for Cyclists” app is available to download now on Google Play and the App Store.

You can also have a look at the SJA’s cycling site here.

If you use the app (or other cycling social media) and would like to comment on it please feel free to use the comments section below.