Lyme disease – Signs and symptoms of Lyme disease

Lyme Disease rash
Lyme Disease rash Lyme Disease

Lyme disease, or Lyme borreliosis, is a bacterial infection spread to humans by infected ticks.

Ticks are tiny spider-like creatures found in woodland and heath areas. They feed on the blood of birds and mammals, including humans. Ticks that carry the bacteria responsible for Lyme disease are found throughout the UK and in other parts of Europe and North America.

It’s estimated there are 2,000 to 3,000 new cases of Lyme disease in England and Wales each year. About 15% of cases occur while people are abroad.

Lyme disease can often be treated effectively if it’s detected early on. But if it’s not treated or treatment is delayed, there’s a risk you could develop severe and long-lasting symptoms.

 

Signs and symptoms of Lyme disease

Early symptoms

Many people with early-stage Lyme disease develop a distinctive circular rash at the site of the tick bite, usually around three to 30 days after being bitten. This is known as erythema migrans.

The rash is often described as looking like a bull’s-eye on a dart board. The affected area of skin will be red and the edges may feel slightly raised.

The size of the rash can vary significantly and it may expand over several days or weeks. Typically it’s around 15cm (6 inches) across, but it can be much larger or smaller than this. Some people may develop several rashes in different parts of their body.

However, around one in three people with Lyme disease won’t develop this rash.

Some people with Lyme disease also experience flu-like symptoms in the early

Lyme Disease tick
Lyme Disease tick

stages, such as tiredness (fatigue), muscle pain, joint pain, headaches, a high temperature (fever), chills and neck stiffness.

Later symptoms

More serious symptoms may develop several weeks, months or even years later if Lyme disease is left untreated or is not treated early on. These can include:

pain and swelling in the joints (inflammatory arthritis)

problems affecting the nervous system – such as numbness and pain in your limbs, paralysis of your facial muscles, memory problems and difficulty concentrating

heart problems – such as inflammation of the heart muscle (myocarditis) or sac surrounding the heart (pericarditis), heart block and heart failure

inflammation of the membranes surrounding the brain and spinal cord (meningitis) – which can cause a severe headache, a stiff neck and increased sensitivity to light

Some of these problems will get better slowly with treatment, although they can persist if treatment is started late.

A few people with Lyme disease go on to develop long-term symptoms similar to those of fibromyalgia or chronic fatigue syndrome. This is known as post-infectious Lyme disease. It’s not clear exactly why this happens, but it’s likely to be related to overactivity of your immune system rather than persistent infection.

When to see your GP

You should see your GP if you develop any of the symptoms described above after being bitten by a tick, or if you think you may have been bitten. Make sure you let your GP know if you’ve spent time in woodland or heath areas where ticks are known to live.

Diagnosing Lyme disease is often difficult as many of the symptoms are similar to other conditions. A spreading rash some days after a known tick bite should be treated with appropriate antibiotics without waiting for the results of a blood test.

Blood tests can be carried out to confirm the diagnosis after a few weeks, but these can be negative in the early stages of the infection. You may need to be re-tested if Lyme disease is still suspected after a negative test result.

In the UK, two types of blood test are used to ensure Lyme disease is diagnosed accurately. This is because a single blood test can sometimes produce a positive result even when a person doesn’t have the infection.

If you have post-infectious Lyme disease or long-lasting symptoms, you may see a specialist in microbiology or infectious diseases. They can arrange for blood samples to be sent to the national reference laboratory run by Public Health England (PHE), where further tests for other tick-borne infections can be carried out.

How you get Lyme disease

If a tick bites an animal carrying the bacteria that cause Lyme disease (Borrelia burgdorferi), the tick can also become infected. The tick can then transfer the bacteria to a human by biting them.

Ticks can be found in any areas with deep or overgrown vegetation where they have access to animals to feed on.

They’re common in woodland and heath areas, but can also be found in gardens or parks.

Ticks don’t jump or fly, but climb on to your clothes or skin if you brush against something they’re on. They then bite into the skin and start to feed on your blood.

Generally, you’re more likely to become infected if the tick remains attached to your skin for more than 24 hours. But ticks are very small and their bites are not painful, so you may not realise you have one attached to your skin.

Who’s at risk and where are ticks found?

People who spend time in woodland or heath areas in the UK and parts of Europe or North America are most at risk of developing Lyme disease.

Most tick bites happen in late spring, early summer and autumn because these are the times of year when most people take part in outdoor activities, such as hiking and camping.

Cases of Lyme disease have been reported throughout the UK, but areas known to have a particularly high population of ticks include:

Exmoor

the New Forest and other rural areas of Hampshire

the South Downs

parts of Wiltshire and Berkshire

parts of Surrey and West Sussex

Thetford Forest in Norfolk

the Lake District

the North York Moors

the Scottish Highlands

It’s thought only a small proportion of ticks carry the bacteria that cause Lyme disease, so being bitten doesn’t mean you’ll definitely be infected. However, it’s important to be aware of the risk and seek medical advice if you start to feel unwell.

Treating Lyme disease

If you develop symptoms of Lyme disease, you will normally be given a course of antibiotic tablets, capsules or liquid. Most people will require a two- to four-week course, depending on the stage of the condition.

If you are prescribed antibiotics, it’s important you finish the course even if you are feeling better, because this will help ensure all the bacteria are killed.

If your symptoms are particularly severe, you may be referred to a specialist to have antibiotic injections (intravenous antibiotics).

Some of the antibiotics used to treat Lyme disease can make your skin more sensitive to sunlight. In these cases, you should avoid prolonged exposure to the sun and not use sunbeds until after you have finished the treatment.

There’s currently no clear consensus on the best treatment for post-infectious Lyme disease because the underlying cause is not yet clear. Be wary of internet sites offering alternative diagnostic tests and treatments that may not be supported by scientific evidence.

Preventing Lyme disease

There is currently no vaccine available to prevent Lyme disease. The best way to prevent the condition is to be aware of the risks when you visit areas where ticks are found and to take sensible precautions.

You can reduce the risk of infection by:

keeping to footpaths and avoiding long grass when out walking

wearing appropriate clothing in tick-infested areas (a long-sleeved shirt and trousers tucked into your socks)

wearing light-coloured fabrics that may help you spot a tick on your clothes

using insect repellent on exposed skin

inspecting your skin for ticks, particularly at the end of the day, including your head, neck and skin folds (armpits, groin, and waistband) – remove any ticks you find promptly

checking your children’s head and neck areas, including their scalp

making sure ticks are not brought home on your clothes

checking that pets do not bring ticks into your home in their fur

How to remove a tick

If you find a tick on your or your child’s skin, remove it by gently gripping it as close to the skin as possible.

Use a pair of tweezers that won’t squash the tick (such as fine-tipped tweezers), or use a tick removal tool (available from pet shops or vets). Pull steadily away from the skin without twisting or crushing the tick.

Wash your skin with water and soap afterwards, and apply an antiseptic cream to the skin around the bite.

Don’t use a lit cigarette end, a match head or substances such as alcohol or petroleum jelly to force the tick out.

Some veterinary surgeries and pet shops sell inexpensive tick removal devices, which may be useful if you frequently spend time in areas where there are ticks.

“Chronic Lyme disease”

There has recently been a lot of focus on Lyme disease in the media, with much attention on people who’ve been diagnosed with “chronic Lyme disease”.

This term has been used by some people to describe persistent symptoms such as tiredness, aches and pains, usually in the absence of a confirmed Lyme disease infection. It’s different to “post-infectious Lyme disease” (see above), which is used to describe persistent symptoms after a confirmed and treated infection.

It’s important to be aware that a diagnosis of chronic Lyme disease is controversial. Experts do not agree on whether the condition exists, or whether the symptoms are actually caused by a different, undiagnosed problem.

In either case, there’s no evidence to suggest people diagnosed with chronic Lyme disease can pass the condition on to others, and there’s little clear evidence about how best to treat it.

Common Hidden and Invisible Illnesses Explained – Please share to raise awareness

If you saw a person in a wheelchair or on crutches struggling to move, would you accuse them of milking it for attention? Not unless you were a truly malign, cold-hearted individual. If you saw a seemingly healthy person climbing out of a car that’s just been parked in a disabled parking spot, would you accost them and insist that they park elsewhere? Quite possibly, but before you do, it’s worth taking the time to consider whether that person actually does need the spot, even though they seem healthy.

There’s a little insight into the world of the hidden illness sufferer. Aside from the crippling physical pain they courageously endure on a daily basis, there’s also the frustration and torment of unsympathetic observers who take their exterior appearance at face value and believe that there’s nothing wrong. It doesn’t have to be a physical illness, either. Depression is also classified as a hidden illness, as it is a medical condition which might be highly concealed but has an enormously damaging impact on a person’s day-to-day life.

For people living with hidden illnesses, a basic degree of understanding and empathy from others is greatly appreciated. If you hear someone saying profusely that they’re feeling unwell, don’t just brush their words aside as the attention-seeking whines of a serial complainer. Ask them if there is anything you can do to make them feel a bit better. A person without a chronic illness just does not know the extent of the suffering of those with such illnesses.

This infographic from Burning Nights neatly summarises 10 of the most common hidden illnesses so that we can all obtain a small level of understanding. This include multiple sclerosis, rheumatoid arthritis, fibromyalgia, osteoarthritis, depression, Ehlers-Danlos syndrome, Lyme disease, Lupus and CRPS. Maybe the next time we see a seemingly healthy person occupying a handicapped parking space, we won’t be so hasty in our judgement.

Common Hidden Illnesses Explained [Infographic]

Invisible Disabilities – the Facts and Figures

One of the objectives of this blog is to help raise awareness of various different medical conditions. Especially those which are less well and often invisible to most people. So when Izzy asked me if I would like to share this infographic I was delighted to do so.  It gives a useful overview of some of the main conditions including Chronic Fatigue Syndrome, Lupus, Complex Regional Pain Syndrome, Fibromyalgia, Multiple Sclerosis, IBD, and Lyme disease!

You can read the original here.


Invisible Disabilities

HealClick – find out about this new social media website for patients to discuss healthcare – a guest post by Rachael Korinek


HealClick
HealClick

Welcome to our latest guest post on healthcare and social media

Today Rachael Korinek introduces us to to HealClick and new social media website for patients to discuss healthcare issues.

Korinek shares “HealClick is a brand new and completely free website created for patients and by patients. This unique hybrid of social network and medical forum matches people based on shared details like diagnoses, symptoms, and treatment responses. This makes it much for patients to share and compare treatment experiences. The data that you and other patients provide will be made completely anonymous so it can fuel new research for autoimmune and neuroimmune conditions like Fibromyalgia, Rheumatoid Arthritis, Lupus, Lyme Disease, ME/CFS, and so many others.

Sign up at www.HealClick.com

Help us grow at www.indiegogo.com/projects/revolutionizing-patient-sharing

This project was created by a team of patients in 2013. The co-founders are both chronically ill with multiple neuroimmune and autoimmune conditions. This unique perspective has allowed them to create a site that truly caters to the needs of patients.

Forums are extremely helpful  when researching treatments and for connecting with other patients. But, what about when you can’t find anyone your age?  Or when it seems like no one shares your set of co-conditions and symptoms? What about when you don’t respond normally to standard treatments? Come on over to HealClick.

Our unique matching feature allows you to focus on what’s important; your health. The site factors in your diagnoses, symptoms, treatments tried, and treatment responses and then tells you how similar you are to every other member. No more guessing whether you and another member share medical details in common, just check the match percentage under their profile picture.

Sometimes networking with people with different conditions can be just as beneficial as talking to someone with the same illness. We currently have patients representing over 20 different neuroimmune, autoimmune, and related conditions. Since we have so many conditions represented on our site you can also see how patients with other diagnoses are managing similar symptoms. There are many symptoms like fatigue that are common with multiple conditions and we believe that patients can learn from these other patients even though they might not share a diagnosis.

By combining information from your medical matches and ideas from patients with other conditions we believe that you will be better able to take charge of your health care. Come sign up, make meaningful connections for social support, share your treatment reviews, and compare your results with the results of other patients. Who knows, you might even end up with some new ideas to bring up at your next appointment with your Doctor!

Whenever people share their experiences and network with other patients online they generate huge amounts of data.  Previously, the majority of this valuable health data has gone unused. What if instead, all of this data could be used by medical researchers to help diagnose, treat, or even cure us? That’s HealClick’s goal. But don’t worry, we take pride in protecting patient privacy every step of the way. The data that you share on the site will never be made public and will be completely stripped of all identifiers before being shared with researchers. Check out the link for more information about HIPAA-compliant data security.


We are so excited to share this technology with you. We also want you to know that we pride ourselves on being there for patients.  I don’t have to tell you that having quality social support is important. Chronic illness can be incredibly isolating and hard for other people to relate to or understand. The founders as well as the entire HealClick team all patients. We understand what you’re going through on a personal level and we strive to make HealClick a place where you can find support on bad days and celebration on your good days.

Come join us at www.healclick.com. We can’t wait to meet you!

Still have questions? Check out our blog for answers to 5 frequently asked questions:  http://blog.healclick.com/uncategorized/we-got-answers